Vulvodynia Support
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» Hope to all my suffering ladies
Found something that helps! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Found something that helps! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Found something that helps! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Found something that helps! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Found something that helps! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Found something that helps! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Found something that helps! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Found something that helps! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Found something that helps! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Found something that helps!

2 posters

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Found something that helps! Empty Found something that helps!

Post  Garudapants Tue Jul 11, 2017 5:48 pm

I'm new to this forum but have been suffering from Vulvodynia for almost five years. I have tried absolutely everything, nothing has really helped all that much, decreased the pain somewhat, but I have worried that I will never have a good and pleasurable sex life again. I recently went to see a cranio-sacral practicioner and she said that my nervous system was so hyperactive that she could barely touch me without causing pain. She said that she thought that some of my pain may be caused by stuff being stuck and blocked in my pelvis. She gave me a mini treatement and said to try to calm down my nervous system and then come see her again.

Since then I have started taking ashwaganda regularly with some body salts spray (Cali Forse) to help calm my nervous system, and that has helped my overall stress and pain level a lot, but sex was still unsaticefying, unwanted, and uncomfortable.

My friend has just started making a product that combines essential oils and crystals. I bought one of her little roller bottles, just to help her out, and chose one called Women's Hormone Balance. I started using it and immediately felt something shift. I started to feel frisky for the first time in years. After 24 hours of rolling this oil onto my temples, wrists, and the bottom of my feet, I have had pleasurable and orgasmic sex with my fiance three times!! It is really blowing my mind. I almost am afraid to believe that this could be happening.

I immediately looked for a place to share this information, because I have struggled for so long alone, and have tried all of the creams and meds and everything just to have things get worse and hopeless. I don't know how or why this is helping, and the idea of essential oils and crystals, CRYSTALS for goodness sake! Being the thing that helps, is challenging me in many ways. But I wanted to share this in case anyone else has gotten to this point, where it is so bad you are willing to try anything. This weird gemoil thing has really changed my world and given me three orgasms already. Plus it smells nice.

I hope that this continues to work, and I hope that everyone, all of us, can find some cure.

In case you want to try out this remedy. Her etsy shop is brand new, but I'm pretty excited about this weird magic stuff she's figured out. I never ever thought that I would be advocating for something like this, but I guess it is what I got when I asked for a miracle.

It is called Sea Berry Gem Oils, from Tatamagouche Nova Scotia, and the remedy that worked for me was Horomone Balance.



Garudapants

Posts : 1
Join date : 2017-07-11

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Found something that helps! Empty Re: Found something that helps!

Post  mary jane Sun Jul 16, 2017 12:14 pm

I don't think I've ever read a more boring SPAM post in my entire life.. why not give the link to her "etsy" page too, huh?
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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