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» 7 months since the diagnosis
Partial Vestibulectomy EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Partial Vestibulectomy EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Partial Vestibulectomy EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Partial Vestibulectomy EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Partial Vestibulectomy EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Partial Vestibulectomy EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Partial Vestibulectomy EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Partial Vestibulectomy EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Partial Vestibulectomy EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Partial Vestibulectomy

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Partial Vestibulectomy Empty Partial Vestibulectomy

Post  JGD13 on Mon Jul 31, 2017 6:44 pm

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is most likely caused by the 1 week antibiotics that i was given, (ny doctor gives these to all her vestibulectomy patients to help fight any infection)
So he gave me the oral capsule for thrush and i took that 29/9. I cant see anymore white but i still have gloopy discharge. I have tried to look online but feel unsuccesful.

Have any of you that have had the surgery done noticed the discharge? Is it just a case of the sistches starting to heal now? And disolving? Should i see a doctor again?
I just want this to heal best it can.

Thankyou in advance

JGD13

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  Hopeitworks on Fri Aug 04, 2017 6:12 pm

Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

Hopeitworks

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  JGD13 on Sat Aug 05, 2017 6:48 am

Thankyou for replying,
I did visit my gp again who told me off a bit said the stitches look great and i am probably thinking about it too much, and cleaning too much etc which apparently when you do this it can cause change in discharge due to you interfereing with the natural ph balance.
2 days running i bled aswell only at 1 point 5/10 mins but quite a bit, i said hes not sure what this could be but dont worry to much and he has taken a swab just to rule out any infections.
I feel i am now at the itchy stage! Im ok if i ignore it but wen i go to the toilet im aware it suddenly very itchy, im hoping this is my stitches healing.
Oh bless you getting your period thsts bad timing isnt it, wish we was able to control our menstrual cycle, wouldnt that make life easier! I am due mine in around 7 days, my period stopped the day of my op.

I just am very hopful the op did what it was supposed to, i feel some discomfort down there still but the doctor said the skin is sore from the op so fingers crossed its just that.


JGD13

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  Hopeitworks on Sat Aug 05, 2017 1:39 pm

JGD13,

Mine itches the most when I go to the bathroom and shower/bath too. It must be our stitches healing of we are both going having the same symptoms. I'm staying as hopeful is all we can be. Keep in touch!

Hopeitworks

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:38 am

Hiya

I'm experiencing this gloopy discharge too! Perhaps it's not an infection, but just our body's way of combatting foreign materials (stitches) that it's not used to. It's interesting that we have the same sort of discharge, so I'm sure that means it's quite normal and nothing to worry about.

If you're worried about thrush, apply some bio live yoghurt down there which will kill any infection if there is any Smile

Xx

infinitelywondering

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  mary jane on Thu Aug 31, 2017 8:06 pm

Hopeitworks wrote:Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

I get nocturnal itching sometimes. The intense itching you get sounds like neurogenic itching to me (basically it's a nerve dysfunction). It's treated with amitriptyline. Are you on any medication for the nerve pain at all?
mary jane
mary jane

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Partial Vestibulectomy Empty Re: Partial Vestibulectomy

Post  Hopeitworks on Thu Aug 31, 2017 8:10 pm

Mary Jane I was on Ampiteipline and Gabapentin with no improvement. So I stopped taking it and I was on it for a year or so. My itching has gotten better now that may stitches are dissolving.

Hopeitworks

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