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    » 7 months since the diagnosis
    HELP !!! Post Vestibulectomy pain  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    HELP !!! Post Vestibulectomy pain  EmptySat Jun 15, 2019 5:22 pm by mary jane

    HELP !!! Post Vestibulectomy pain  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    HELP !!! Post Vestibulectomy pain  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    HELP !!! Post Vestibulectomy pain  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    HELP !!! Post Vestibulectomy pain  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    HELP !!! Post Vestibulectomy pain  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    HELP !!! Post Vestibulectomy pain  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    HELP !!! Post Vestibulectomy pain  EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    HELP !!! Post Vestibulectomy pain

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    HELP !!! Post Vestibulectomy pain  Empty HELP !!! Post Vestibulectomy pain

    Post  sj17 on Thu Aug 03, 2017 4:44 am

    Hi ladies,

    It's been less than 24 hours since my Vestibulectomy but I am in a LOT of pain and I mean one hundred times more post surgery. I'm freaking out as I feel this isn't normal and I shouldn't be experiencing so much pain after surgery. I was just wondering if anyone who's had the surgery could advise me on how they felt after the op. I had a full vestibulectomy and I literally feel like somebody has taken a knife to my vagina and is cutting it over and over.

    Thanks ladies,



    Posts : 32
    Join date : 2017-05-06

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    HELP !!! Post Vestibulectomy pain  Empty OMG!! - please message me for some tips

    Post  infinitelywondering on Thu Aug 03, 2017 5:54 pm

    Hi Sarah,

    I had my vestibulectomy surgery yesterday too!
    Were you at Birmingham hospital because the nurses told me another girl called Sarah Taylor had the same operation and had the same pain as me!!!!

    Please private message me asap because I feel your pain!!!

    I have been sent home today by Miss Downey and have put a pack of frozen peas down there to ease the swelling. I have been washing with warm water regularly and have applied some manuka honey onto the area after thoroughly cleaning my hands.

    I hope you see this and can get in touch,

    I hope you get better soon xxx


    Posts : 34
    Join date : 2016-12-04

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    HELP !!! Post Vestibulectomy pain  Empty Re: HELP !!! Post Vestibulectomy pain

    Post  sj17 on Thu Aug 03, 2017 8:54 pm

    Oh my god are you the lady who was before me?! That is so crazy. I tried to message you privately but I'm not sure how to as when I tried to click your name it wouldn't let me! Can you message me? I hope your surgery went well and you're not in too much pain! I had to stay another night as I was in so much pain throughout the day.

    Sarah xxxxx


    Posts : 32
    Join date : 2017-05-06

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    HELP !!! Post Vestibulectomy pain  Empty Re: HELP !!! Post Vestibulectomy pain

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