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» How I cured my Vulvodynia!
Recent "Poke" Pain - So Confused/Losing My Mind EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Recent "Poke" Pain - So Confused/Losing My Mind EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Recent "Poke" Pain - So Confused/Losing My Mind EmptySat Jun 15, 2019 5:22 pm by mary jane

Recent "Poke" Pain - So Confused/Losing My Mind EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Recent "Poke" Pain - So Confused/Losing My Mind EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Recent "Poke" Pain - So Confused/Losing My Mind EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Recent "Poke" Pain - So Confused/Losing My Mind EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Recent "Poke" Pain - So Confused/Losing My Mind EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Recent "Poke" Pain - So Confused/Losing My Mind EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

Recent "Poke" Pain - So Confused/Losing My Mind

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Post  kelseybeth23 on Thu Oct 12, 2017 9:26 am

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was working out of town and couldn't get in to see my regular doctor, so I kind of just dealt with it. I had a LOT of discharge, like everywhere. Then, two days in a row I had the most intense, sharp pain I had ever had... I cried at work it hurt so bad. It was always most painful at work, when sitting. It was centralized pain... and it's in a weird location. The right side of my vagina (I honestly am not very familiar with the area and names, so I could be labeling it wrong) towards the "top" (that is what I call the area outside of the clitoris). I called my dr and got in the day after Labor Day. While there, she notated how red I was and how much discharge I had and diagnosed me with a yeast infection. I was given fluconazole (2 for 1 day, 1 for 7 days, and 1 a week for 3 weeks). Initially, this made me feel SO MUCH BETTER. All of the redness and pain did not go away, but it definitely dulled down a LOT. However, when I only had one pill left I called to ask for something else because the pulsing shock/prick feeling was coming back. I went back in, they swabbed me, and tested me for certain STD's and infections, and gave me a week's worth of metronidazole. (I did test positive for some bacterial infection). When I started taking it, the prick feeling did not go away, and I also started to feel worse (the corners of my mouth were cracking really bad, and no relief down there). I was HOPING it was a candida infection in my body, because changing my diet would be fine. However, I went back this week and I told her it wasn't going away, how it's more of a prickling feeling when I am sitting a certain way or if I put pressure on the triangle area down there. I told her I was starting to lose my mind, I couldn't sleep well because sleeping on my side was out of the question, it caused uncomfortable pressure and the prickling feeling, etc. I can't work out, which defines me, so I am getting really, really upset and in a dark place.

I also brought up the fact that I had read about neuraligia and pelvic floor entrapment and that I was terrified this is what I had. She prescribed me a new cream (picking up tomorrow) and lyrica to test. She said if the lyrica helped in a week, we would go from there, if it didn't, she would like to do more extensive tests for infections. I took lyrica Tuesday morning and I swear I felt better that evening (which made me more depressed because I really don't know how to handle a nerve issue). I hoped that my natural remedies and being done with the metronidazole was actually helping. So, I had taken two lyrica's on Tuesday and one Wednesday. I didn't take one Wednesday night because I felt 100% no prickling pain down there and I wanted to know if it was really the lyrica or everything else I was changing.

So here I am, Thursday morning at 422 am and the prickling feeling is back. I am freaked out. I don't know how/if I can handle this diagnosis if it is a neuralgia. I am currently going through a divorce and am no sexually active so I am terrified (esp after a lot of online reading) that I will never be able to have happy sex again. I am 29 and things seem so dim to me right now, I don't know what to do. Any answers or ideas would be appreciated. Not only is this already a really depressing, stressful time for me, but the fact that I may have nerve damage (I don't get how) is making me lose my mind completely. I also am afraid of the side effects of weight gain and I can tell you that I have been sleepy for two days, the two days I did take Lyrica. My sister tried to easy my mind and say how one pill probably wouldn't have worked that fast, but why the heck am I prickling again down there when I stopped taking it just last night? I just don't know...


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Post  Angelmegs on Sat Oct 14, 2017 5:34 pm

The amount of times I’ve cried over this pain... I get it. I’m so sorry you’re going through this too. One common thread I’m seeing in many posts is that we were all told it was yeast originally. And if it was yeast, symptoms never went away. It’s gotten so bad that I can’t wear pants or underwear. Has anything helped at all? Even slight relief?

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Post  sarisbaris on Tue Oct 17, 2017 4:52 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative docs. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

Ok… sounds like you’re battle an unknown/undetectable form of streptococcus. Yeast isn’t actually the infection. Your body produces yeast when strep is present. I’m also assuming that this virus or another one inflamed a nerve in your lady parts as well which would explain the sharp pain.

First, you need to educate yourself. Listen to the strep show and read the page. Follow the protocol. Next, listen to the UTI show. He takes about an ice therapy in this show that I think would calm that nerve. Next, listen to the EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. Finally, listen to the metal detox show. Metal feeds strep and EBV. So you’ll need to do a metal detox. I added the neurological show that I thought might help.

Shows/pages that will help:

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil which is in almost everything. All these things feed strep.
SUPPLEMENTS: licorice root... try this first if you don’t see a difference in a day then try lemon balm and nettle-leaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
Douche with silver hydrosol, just use a small syringe. Will help with the yeast.
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

Only buy the ones he recommends, he’s right. They work. No one gets $ from these recommendations, just FYI. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.


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Post  Angelmegs on Tue Oct 17, 2017 4:57 pm

Thank you so much... wow... I am absolutely going to research all of that and try what you said. I’ll let you know how it does. You seem very educated on this— do you think there’s any chance this relates to my diagnoses of narcolepsy and Lyme disease?

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Post  kelseybeth23 on Tue Oct 17, 2017 5:10 pm

Hey sarisbaris,

I am also going to read what you wrote. I was planning on doing the candida diet to see if that helped but I think your idea sounds better. I went back to my dr bc the lyrica was helping, and she upped my dosage to 75mg twice a day. It's making it feel better, but I don't want a tempest fix. She scared me too, because she compared it to a shingles outbreak, and said it could last forever. I choose to be optimistic and try to find other solutions. Two months ago I felt great, and I will feel great again. Your information was so positive and I am so glad to have your experience, though I'm sad it bothered you for so long!!


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Post  sarisbaris on Wed Oct 18, 2017 2:37 am

So I did the candida diet the 2nd year in. It helps because you're cleaning up your diet but it didn't heal me. Once you learn from Anthony William's info, you'll understand why it helps but won't ultimately heal you. Yes, all my doctors saw no end to my pain in sight as well. When I was cured my Kaiser doctor was the one who actually told me to get online and try to spread the word about my experience. So don't be discouraged by the doctors. Unfortunately, doctors are going to be very pessimistic about healing because they have no idea what's going on. They know this even though most, except very experience ones, will state this. It's hard on us and them, to be in the dark.

So I couldn't find anything about narcolepsy in his current info but yes, lyme disease can be EBV or shingles. Strep is usually present when EBV is present and V can be caused by strep or shingles. There are many varieties of these viruses and our current tests can't detect them. And no, as you probably guessed lyme is not from you getting a tick in the forest. A tick bite can just be a trigger/final straw weakening your body to succumb to the virus that has been there awhile. Which makes sense cause I have friends who have lyme who live in the city and swear they never got a tick bite. All of these things are related. Just like your gut and common sense is telling you.

Here's his show on lyme.

Please keep in touch! Let me know if you have any questions, I know his stuff really well. But again, I am not a practitioner, just a survivor Wink I am attempting to gather a community of V survivors so once healed, we can continue to spread the word to those still battling V.


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