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» 7 months since the diagnosis
Vulvodynia help EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvodynia help EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvodynia help EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvodynia help EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvodynia help EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Vulvodynia help EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Vulvodynia help EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Vulvodynia help EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Vulvodynia help EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvodynia help

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Vulvodynia help Empty Vulvodynia help

Post  Katiej on Tue Nov 14, 2017 4:27 pm

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a very anxious person so I dont wanna hear about the sidee effects thanks ha). So the last few days my symptoms are the following.. :prickling and stabbing nerves all over vulva. Changing from clit to vastibule to vagina. Feels like a trapped nerve actually. I habr itchy perineum and anus. Not much burning reallu anymore. Mostly sharp nerves and almost like theres a foreign body down there and like something needs to be released hence the trapped nerve feeling. I have been told by all docs this will go as the nerves need a chance to calm down. I saw a chiropractor today who told me that my pelvis was misaligned and that my coxyc is inturned meaning it could ve causing impinged nerves. Im just so confused. Can someone tell me if they experience any of these symptoms and their thoughts. I never had anything like this till the bv last year. Please help. And no.scarey stories please im already off work a month scared shitless.

Katiej

Posts : 19
Join date : 2017-11-14

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Vulvodynia help Empty Re: Vulvodynia help

Post  ekaterina1996 on Wed Nov 15, 2017 8:37 am

Hello Katiej!
I have similar symptoms. My itching is from the clitoris to the rectal area. I have already gone a long way about my condition. I have a few questions to you:
1. Have you tried an antifungal cream throughout your area with oral pills?
2. Also I have to find out if you had anal sex? if it is true you need to check with your doctor if you have anal HPV and condyloma. It can cause itching and you should treat it.
3. Do you have anal fissures? If the answer is yes, the vaginal secretions that fall in them cauased the itching.
If you excluded these factors, I think the pudendal nerve causes our condition. I'm treating the coccyx with my neurologist, although I've never had a problem with it.
Also, you should observe where your symptoms begin.
If they appear in your vagina first, then the proximity of the organs can provoke a burning sensation in the areas near your vagina. It is very important to understand where your symptoms begin.
You can write to me, I am from Russia and I will be happy to talk with you about it. May be I will be able to give you some advice!

ekaterina1996

Posts : 6
Join date : 2017-11-03

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Vulvodynia help Empty Re: Vulvodynia help

Post  Katiej on Wed Nov 15, 2017 9:40 am

Hi there thanks for your reply. I have ruled out any possible std or infection. I dont have anal fissures. I had anal sex once but thats not causing this. I had the hpv vaccine years ago so im pretty sure im clear of that. My symptoms dont begin anywhere they are there 24/7 and constantly change. I am very sore all over vulva. Like its raw then burning then itching. Sometimes just sharp stabbing knife like nerve pain with no itching. I have been told its the nerves firing all over vagina and anus and that they need to calm down as they think there is still trauma goin on. I had about ten antibiotics in a row at one stage and lots of antifungal cream. My swabs are also all negative. To look at there is no redness. My discharge is normal. And no cuts or marks or anything at all. I just wanna know im not stuck like this forever and that even if I am someone or something can be done to reduce the discomfort.

Katiej

Posts : 19
Join date : 2017-11-14

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Vulvodynia help Empty I think you need more lactobacteria

Post  ekaterina1996 on Wed Nov 15, 2017 1:04 pm

Our symptoms are very similar.
Okay, I'm very pleased that you are vaccinated from HPV, this is great news!
Also, I assure you, nothing can be forever, we just got the most uncomfortable disease.

That's what can help you (this helped me):

1) Buy two types of candles: to enhance local immunity and with lactobacilli. Alternate these candles. I mean today you put a candle to improve immunity, and tomorrow you will put candle to restore lactobacilli. Do a one-week course and review the result. This made for me the first small remission. If therapy helps, continue, you can add oral probiotics. It means that in your vagina conditionally pathogenic microorganisms are rampant, which you can cure only with large doses of lactobacilli. This is called "dysbiosis" in Russia. I think this is a very bad disease.

2) Lubricate the burning area with coconut oil. I do not know why this works, but coconut oil really helps us. Also this will reduce the risk of candidiasis

3) Use only soap with lactic acid. It will also help to work your vagina.

4) Give up coffee. It also made my vulva less burning.

These things really helped me. Most of all, point 1, pay attention to it. These procedures are performed behind of your basic treatment. They will not make you worse, moreover, I am sure that they will improve your condition!

ekaterina1996

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Join date : 2017-11-03

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