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» 7 months since the diagnosis
7 years later and life looks bleak :(  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
7 years later and life looks bleak :(  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
7 years later and life looks bleak :(  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
7 years later and life looks bleak :(  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
7 years later and life looks bleak :(  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
7 years later and life looks bleak :(  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
7 years later and life looks bleak :(  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
7 years later and life looks bleak :(  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
7 years later and life looks bleak :(  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


7 years later and life looks bleak :(

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7 years later and life looks bleak :(  Empty 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 2:50 am

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, neurontin, lyrica, flexeril) to no avail. The only time I seem to get relief is if I take Diflucan. I mentioned this to my gyn and a few years ago I did a candida diet for 6 months...we did daily Diflucan for 2 weeks (at the end of the 2 weeks I honestly thought I was cured). Then we did 3 pills a week and then went down to 1 pill a week. By the 1 pill a week my symptoms were flared back up. We repeated the 2 weeks an additional 2 times. Sadly, each time the same thing would happen when I got to the 1 pill a week. My specialist now thinks it is nerve related, but I am becoming skeptical. None of the medications have eased the pain at all, only the Diflucan. I don't date, mostly because I don't want to saddle some poor guy with a 'broken' woman who could never be intimate. At this point, I feel like I'll have to spend forever alone. If anyone has ever experienced relief with Diflucan or could offer suggestions I'd be so happy to speak with you. Thank you.

RainyShay77

Posts : 7
Join date : 2017-12-06

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7 years later and life looks bleak :(  Empty Every woman on this forum with you!

Post  ekaterina1996 on Wed Dec 06, 2017 5:10 am

Hello, dear friend!
I understand you, I am in this condition for the last 2 year, I know what you mean about burning, itching and other kinds of terrible pain. Other women in this forum too. I want to tell you that you can not be in this state forever. No one can be in this state forever. Every woman has to go a long way to find her successful treatment. Have you tried botox injections? Laser? Surgery? You must continue finding of your own treatment, because every woman has various reasons for the pain. Be strong and read more literature about your illness, find research about your symptoms. You will be successful! (sorry for my English, it is my 2nd language)

ekaterina1996

Posts : 6
Join date : 2017-11-03

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Post  sarisbaris on Wed Dec 06, 2017 5:25 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Yeast infections are also caused by strep.

Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, candida and UTI shows. He actually mentions antifungal medications in the UTI show. He says they will help temporarily but will not fix the underlining problem. Don't worry, he explains how to fix it for good. His stuff works. It worked for me.

And yes, my vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Sorry for TMI.... sex was always the ultimate test. Don't give up hope. You are not doing this alone. Let me know if you have any questions.

Sarah
sarahcamp20@gmail.com
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

sarisbaris

Posts : 69
Join date : 2014-02-17

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Post  RainyShay77 on Wed Dec 06, 2017 11:57 pm

Thank you both for your responses Smile I'll look into your blog. If I ask my doctor to test for strep is there a certain strain I should mention to her?

RainyShay77

Posts : 7
Join date : 2017-12-06

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Post  sarisbaris on Thu Dec 07, 2017 12:37 am

Unfortunately, there are currently no tests for these strains. The reason I know that Anthony William's recommendations worked was because I tried the strep protocol and it worked. So I figured that I had strep. There was a remaining rash, so I tried the shingles protocol and that cleared up the rash. I did it backwards.

sarisbaris

Posts : 69
Join date : 2014-02-17

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Post  RainyShay77 on Wed Jan 10, 2018 12:51 am

How much is a bushel of cilantro - is that just what you normally get in a bunch at the grocery store?

RainyShay77

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Post  RainyShay77 on Wed Jan 10, 2018 12:54 am

and can you use a juicer instead of a blender and nut bag?

RainyShay77

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Post  sarisbaris on Thu Jan 11, 2018 1:24 am

At least a cup of cilantro. When I was really sick I would use at least 1/2 bunch to a whole bunch. Try listening to your body. Those small preferences are actually your body trying to communicate what it needs.

Yes, I just use a blender and a nut bag myself. Keep me posted!

sarahcamp20@gmail.com

sarisbaris

Posts : 69
Join date : 2014-02-17

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