Vulvodynia Support
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» Hope to all my suffering ladies
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

2 posters

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I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain Empty I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

Post  acameron Fri Dec 22, 2017 4:03 am

Let me start with this disclaimer: I suffer from chronic pelvic pain as well, specifically vulvodynia. I am not regarding anyone interested in participating as a "test subject." We are peers sharing experiences.

My name is Annalise and I am a senior at the University of Oregon doing research for an honors thesis. I am conducting a study on the emotional experiences of women with chronic pelvic pain.

For this study to be successful, I am looking for women who suffer from chronic pelvic pain who would be interested in talking to me about their experiences. I can conduct interviews with you over the phone, skype, or in person if possible. Any identifying information will be kept confidential. If you wish to only provide me with your screen name that is okay too, I will only contact you on this platform and with your consent. This is on a voluntary basis so there will be no compensation, but I hope that this research will benefit women like us by alleviating some of the isolating effects of the pain.

I am looking for cisgender females 18 years or older who suffer from chronic pelvic pain originating from a genetically female reproductive system or the bladder/urinary system. In order to participate in this study you must have seen at least one doctor for your pain, and have experienced your pain for more than 50% of one year either consistently or episodically. You do not have to be diagnosed by a doctor with anything specific to participate, but it is okay if you are. Chronic pelvic pain includes, but is not limited to: vulvodynia, ovarian cysts, interstitial cystitis, vulvar vestibulitis, uterine fibroids, lichen sclerosis, pelvic inflammatory disorder, etc.

I am looking to complete an in-depth analysis on the emotional experiences of women who deal with chronic pelvic pain. I will be asking questions that span topics like interactions with medical professionals, experiences with sex and intimacy, coping strategies, and the physical and emotional effects of chronic pain.

If you are interested in participating in this study please let me know and we will go from there, thank you.

acameron

Posts : 2
Join date : 2017-12-22

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I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain Empty Re: I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

Post  sarisbaris Tue Jan 02, 2018 11:00 pm

I'd be happy to help but I consider myself cured now. And yes, I know that is rare. I battled V and UTIs for 15 years. So I've seen at least 20 western docs over the years and countless alternative including TCM and acupuncturists. I'm married and I have a toddler. So I have plenty of experience that I can talk about. Here's my blog. I really need to add more about personal testimony but I haven't found the time yet Wink
http://myvulvodyniacure.blogspot.com/


sarisbaris

Posts : 69
Join date : 2014-02-17

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