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    » 7 months since the diagnosis
    Vestibulectomy recovery question! EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Vestibulectomy recovery question! EmptySat Jun 15, 2019 5:22 pm by mary jane

    Vestibulectomy recovery question! EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Vestibulectomy recovery question! EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Vestibulectomy recovery question! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Vestibulectomy recovery question! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Vestibulectomy recovery question! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Vestibulectomy recovery question! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Vestibulectomy recovery question! EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    Vestibulectomy recovery question!

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    Vestibulectomy recovery question! Empty Vestibulectomy recovery question!

    Post  Kezz on Sun Jan 14, 2018 11:37 pm

    Hi there,

    I had a vestibulectomy done recently, end of October and got my stitches out after 8 weeks rather than 6. Anyway a couple of the stitches were done over my right labia, which as a result is now indented so it looks like there's been a couple of nips taken out of it! It's also still swollen looking, definitely bigger than it was before and not thin like my other labia. Has anyone experienced this? I just hope it goes down and back to normal size although it's been just under 5 weeks since I had the stitches out now. Any input would be appreciated. Thank you all xxx


    Posts : 24
    Join date : 2017-03-28
    Location : London, England

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    Vestibulectomy recovery question! Empty Response

    Post  stillinpain on Wed May 16, 2018 1:13 am

    Hi there, it's been a few months and I'm wondering if you are still having this issue. I got the surgery myself in Nov and it took 9 weeks for the stitches to dissolve. I still have bumps from where they were and trying to get used to my new shape. Did the surgery work for you? I still can't tell yet if it did for me. It's taking so long to get me stretched back out again.


    Posts : 7
    Join date : 2018-05-04

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    Vestibulectomy recovery question! Empty Re: Vestibulectomy recovery question!

    Post  Kezz on Thu May 17, 2018 11:11 pm

    Hey hun, glad to hear you had the surgery Smile I bet it's worked for you. Where did you have it done? I've not been able to put mine to the test properly yet either but I did once when I was drunk lol. Seemed okay but the real test will be sober!! Ha. The labia never went back down to the normal size, it's still alot bigger than it was but I've actually gotten used to it now and it doesn't really bother much anymore. I'll take that any day over the hell I had for 10 years. I also think we're just so used to looking at our vagina's compared to most women that any change in appearance seems drastic and prob not even noticeable to someone else. I have some indents on the same labia too from the stitches and it can slightly sore to the touch but no biggy. The stitches are actually what made it swell up because they were so tight. Dr. Downey said it's a simple op to get that piece of labia removed if the indents are still sore in the future. She said it takes at least 6 months for things to settle down overall, but I feel like it'll be a bit more for me. I have pretty sensitive skin. Are your indents painful and are they on the labia too?



    Posts : 24
    Join date : 2017-03-28
    Location : London, England

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