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    » 7 months since the diagnosis
    Acupuncture advice please  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Acupuncture advice please  EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Acupuncture advice please  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Acupuncture advice please  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Acupuncture advice please  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Acupuncture advice please  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Acupuncture advice please  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Acupuncture advice please  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Acupuncture advice please  EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Acupuncture advice please

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    Acupuncture advice please  Empty Acupuncture advice please

    Post  Bx11 on Sun Jan 21, 2018 10:59 pm

    I've suffered for 7 years now and just cannot have sex with my husband – he is a saint. The worse problem I have faced is this is stopping us trying for a baby which we both want more than anything. It breaks my heart and I'm sure his. Have tried lots over the years with no joy or support from the NHS so I'm researching alone. I have an amazing physio that I see for my Hypermobility and she is going to try acupuncture on me. I've seen comments about different types and I was wondering what other people have had done and what worked for them. I'm hoping to work with her and advice her what's recommended for his as she isn't a woman health physio normally.
    Any help greatly appreciated x

    Bx11

    Posts : 6
    Join date : 2018-01-21

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    Post  PainBlogger on Wed Jan 24, 2018 8:29 pm

    I've found acupuncture helpful- in conjunction with physio and medication (duloxetine). I had electroacupuncture as well as needles. Unfortunately, I was having needles in for other things at the same time so I don't know which points were for the pelvic pain. So I know that's not very helpful but I just wanted to wish you good luck with it all anyway.

    PainBlogger

    Posts : 219
    Join date : 2015-07-27

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    Post  ryn207 on Thu Feb 01, 2018 3:35 am

    I tried dry needling with pelvic floor physical therapy. I can't say 100% if it was the dry needling, the PT, or the combination of the two, but I definitely felt the severity of my symptoms decrease. While it didn't solve everything I think it's worth a shot! Crossing my fingers that you find relief as well!

    ryn207

    Posts : 22
    Join date : 2018-01-11

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    Post  Bx11 on Mon Feb 19, 2018 12:00 am

    Thank u. I have my first PT assessment with a woman health Physio tomorrow and the anxiety of it being a dead end has brought on a massive increase in symptoms.
    So far no joy with the needles but only had two sessions so far. Can I ask where ur needles were put as finding different info on locations and not sure what to try.

    Bx11

    Posts : 6
    Join date : 2018-01-21

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    Post  fairlight10 on Mon Feb 19, 2018 6:08 pm

    Hi bx 11 l had 20 sessions of acupuncture after first being diagnosed. The needles for vulvodynia where put into ankle, leg/knee area , small of the back and abdomen area. You need needles for the stress this condition is causing you. I was also treated at the same time for migraine and acid reflux disease. When l had my first session l had no idea if this would help but l felt that something powerful had happened to me. I was already on nortriptyline which was starting to help. But l definitely know it brought down my stress levels and l came off reflux medication. I tried chinese herbs which did not help what so ever.Goodluck.

    fairlight10

    Posts : 72
    Join date : 2016-04-17

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    Acupuncture advice please  Empty Acupuncture

    Post  infinitelywondering on Tue Feb 20, 2018 11:27 pm

    Hi there.

    I think Acupuncture is great and I've been having it for maybe 3/4 sessions now. It hasn't totally eradicated my pain but it's certainly reduced it. I don't know if that is because it has ACTUALLY helped or it's just my brain telling me it's helping. Either way, I am seeing a difference and I keep going back because it just makes me feel more positive, like something is moving forward in this.

    Please feel free to message me about any info on Acupuncture x

    infinitelywondering

    Posts : 34
    Join date : 2016-12-04

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    Post  ryn207 on Thu Feb 22, 2018 2:25 am

    I typically had them in my legs, feet, stomach, vulva, and fingers. I don't know how much relief I got from acupuncture itself. I know that pelvic floor PT helped me for sure. After the needles I definitely felt more relaxed, but I can't say if it really helped long term.

    ryn207

    Posts : 22
    Join date : 2018-01-11

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