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    » 7 months since the diagnosis
    VULVODYNIA AND SUICIDE EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    VULVODYNIA AND SUICIDE EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    VULVODYNIA AND SUICIDE EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    VULVODYNIA AND SUICIDE EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    VULVODYNIA AND SUICIDE EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    VULVODYNIA AND SUICIDE EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    VULVODYNIA AND SUICIDE EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    VULVODYNIA AND SUICIDE EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    VULVODYNIA AND SUICIDE EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    VULVODYNIA AND SUICIDE

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    VULVODYNIA AND SUICIDE Empty VULVODYNIA AND SUICIDE

    Post  rockylife on Sun Feb 04, 2018 8:33 am

    I was just diagnosed last 2 days ago with vulvodynia. This pain started Dec 17 2017. Until now the pain lasts all day. I have anxiety and panic attack disorder too so it's very hard for me to cope. I'm afraid my boyfriend will leave me due to this condition. suicide is the only way to end this suffering. what to do?

    rockylife

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    Age : 25

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    VULVODYNIA AND SUICIDE Empty Re: VULVODYNIA AND SUICIDE

    Post  fairlight10 on Sun Feb 04, 2018 10:06 am

    Hi Rockylife. I know your feeling desperate right now but do not do anything to hurt yourself please. What have you been prescribed for the condition? I am on 20 mgs Nortriptyline every night for nearly 6 years. It gave me my life back.l was off work for 4 months before l felt ready to go back. There are other meds for pain out there. Well done for finding this support forum. It is full of information to help you through this tough time. If your boyfriend does not support you then he is not the one for you. You mention your anxiety and panic disorder. This could be connected. I have found stress and anxiety aggravates this condition. Research as much information as you can. When I found this site I read every post. It was such a relief to know I was not the only one with this painful condition. My first thought when diagnosed was WHAT THE BLOODY HELL IS THAT. I was angry, tearful and did not want to live anymore. Then the meds gradually started to work. I have tried to drop to 10mgs Nortriptyline but after 24 hrs l start to feel an irritation down their. I have vulvar vestibulitis and have had to accept this otherwise I would have gone mad. My husband and family have been a great support. This is what you also need. So, keep in touch with this site. Good luck.

    fairlight10

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    Post  rockylife on Sun Feb 04, 2018 11:15 am

    Thank you fairlight10, it's just depressing to think that at a young age I already have to deal with this awful condition that affects the way I live especially my day to day activities. What's sad about it is, I live in the Philippines, my gyne doesn't even know much about Vulvodynia. She told me that it's all in my mind and try to relax. I know it's not because I feel something painful down there without visible lesions. It's painful even if no pressure is applied, all day everyday. She prescribed me with Etericoxib and Vitamin B complex. I haven't taken these meds yet, maybe tomorrow. I have read some articles that Primrose oil can help in the remission of Vulvodynia and Pregabalin is effective too. I would like to try them, but without prescription, I can't buy them. Any thoughts about these meds? I'm frustrated because it seem that I'm the only person in the Philippines who suffers from this illness plus no medical professional who's duly experienced with this kind of condition is available. Help is too far to reach. My boyfriend has changed a little on how he treats he after knowing my condition. I dont wanna deal with this problem all throughout my life. With this pain, I can't seem to have excitement about life. Feels like I wanna isolate myself away from everyone. This is so depressing. Suicidal thoughts are still active.

    rockylife

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    VULVODYNIA AND SUICIDE Empty Re: VULVODYNIA AND SUICIDE

    Post  fairlight10 on Sun Feb 04, 2018 1:25 pm

    Hi Rockylife I have not read of Etericoxib being used for vulvodynia. I have heard of prebagablin and gabapentin. These are usually used for epilepsy but have been useful for nerve pain. Also, trycyclic antidepressants are gold standard for vulvodynia namely amitriptyline and nortriptyline in low doses. There are many more. Sounds like you have unprovoked vulvodynia but it is possible to have both provoked and unprovoked. It makes me so cross when doctors say its all in the mind. It isn't but your stress and worry do exacerbate the condition. Best you can do is take the meds she has prescribed and if they don't help mention those you have heard of being used for vulvodynia. Do your own research and read the posts on this support forum. We will be their to support you.

    fairlight10

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    Post  sarisbaris on Tue Feb 13, 2018 5:48 am

    Rockylife,
    I'm so sorry! My heart goes out to you. I am cured. I battled V for 15 years. In those years, I tried so so many things. I followed the protocol by Anthony William and it worked. Here's my blog. http://myvulvodyniacure.blogspot.com/

    Please email me if you want to chat. sarahcamp20@gmail.com

    Just an FYI... according to him vaginal burning is caused by a strep or shingles virus. I had both. They are both currently undetectable by docs. Metals in our system (we all have them now) feed these viruses. (Cilantro would always calm down my flare. Cilantro is a powerful metal detoxer. I had a lot of metals back then.) And according to Anthony William, anxiety attacks are caused by too many metals in our bodies. It's all related.

    https://soundcloud.com/medicalmedium/conquering-anxiety
    http://www.medicalmedium.com/blog/heavy-metal-detox

    Please don't lose hope. Yes, the doctors don't understand but that doesn't mean there isn't healing. My western doctor was astonished by my healing and told me to get online and spread my healing testimony. So here I am.

    sarisbaris

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    Post  Faezeh on Sat Feb 24, 2018 11:20 pm

    Hi rocky life
    Do you have constipation and urinary hesitancy and pain when siitting in your buttock?if so , you may have pudendal neuralgia and you must go to the site : pudendalhope.info to get help.goodluck

    Faezeh

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