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» 7 months since the diagnosis
MAY HAVE FOUND A CURE- PLEASE READ EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
MAY HAVE FOUND A CURE- PLEASE READ EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
MAY HAVE FOUND A CURE- PLEASE READ EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
MAY HAVE FOUND A CURE- PLEASE READ EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
MAY HAVE FOUND A CURE- PLEASE READ EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
MAY HAVE FOUND A CURE- PLEASE READ EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
MAY HAVE FOUND A CURE- PLEASE READ EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
MAY HAVE FOUND A CURE- PLEASE READ EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
MAY HAVE FOUND A CURE- PLEASE READ EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


MAY HAVE FOUND A CURE- PLEASE READ

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Post  infinitelywondering on Thu Feb 15, 2018 10:04 pm

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit a dermatologist! She tested my skin by scratching my back and diagnosed me with dermograhism and eczema. She suggested that this may be what is causing my vulval pain because I have extremely sensitive skin!

She also noted that most women who suffer vulvodynia or vulvodynia-like symptoms will also have this condition. Whenever you can, try it: on your bare leg or thigh, scratch yourself gently down a line and if you come up red quickly, you may be very sensitive too.

She's recommended I take some tablets and cream. For the eczema, she has suggested I use nothing other than Vaseline or Coconut Oil and massage gently into the area to prevent soreness and dryness.

I really hope this helps me out and also helps you ladies! Maybe this could be another thing that is causing our soreness ?

I will update you on how my treatment is going, very soon

Lots of love always,

Ellie x

infinitelywondering

Posts : 34
Join date : 2016-12-04

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Post  Peachy92 on Fri Mar 02, 2018 8:50 pm

Good evening,

Thank you for this post, it had given me some hope.

I too had a partial vestibulectomy (at the age of 23) 3 years ago, with little success. It treated pain during sex/tampon use, but the awful vulval itching and sore/scratchy feel remains, and appears to be getting worse. I too got referred to a vulval dermatologist. A biopsy was done, as the external skin is generally very red and sore in appearance. It came back clear of everything, other than mild eczema, which baffles me.

I feel I have exhausted all avenues. I am on noratryptiline (only 10mg) have had a long course of fluconazole (in case of thrush reoccurring), vagisil, lidocaine 5%, various strength steroid creams. Nothing helps the terrible itch!

Any advice would be amazing, and greatly received. Do you know the name of the pills and creams your dermatologist prescribed?

Thank you taking your time to read this.
I hope to hear from you Smile

Peachy92

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Peachy92

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Post  infinitelywondering on Mon Mar 05, 2018 10:30 pm

Heya,

Yes, I was given EMLA cream which is basically a numbing cream. I've had great success using it and I'm sure it would be good for itching too. The pills I'm taking are cetirizine and fexofenadine: both are antihistamines that help with the swelling.

Your itching may be being caused by an allergy as that is a really common symptom. Cetirizine can be easily bought over the counter. Also, I'd recommend trying aloe vera gel and vaseline that will really soothe the area and prevent any chafing.

I really hope this helps,

All my love and support x

infinitelywondering

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Post  Peachy92 on Mon Mar 05, 2018 10:43 pm

Thank you very much for your reply! I really appreciate it Smile any advice is fab- I’m very desperate to find something that will atleast ease this itching a bit.

I have taken an antihistamine this evening, in the hope it’ll help a little. Have also taken my usual noratrityline also.

I shall look into the creams Smile

Thanks! Take care

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Peachy92

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