Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I was embarrassed and figured it would just take a wee bit of time to have pain free sex, i figured it would take my body a bit of time to get used to it. After that I had a boyfriend at university and was with him for 2.5 years. Sex still hurt but it wasn't every single time at the same time. Sometimes it would be sore from a finger, and he couldn't even penetrate me, sometimes part way through penetration it would begin to really hurt, sometimes (very very very rarely) it would be ok but the pain would come on after. The pain is at the entrance to my vagina and it burns. It's near the bottom (just above the perineum) and the pain feels like I'm being burned or sliced with razor blades.
When I was at uni I went to the dr about 12 different occasions, had loads of tests done for STIs, yeast infections etc and they always came back negative. I was essentially shooed out of the door and told it was all in my head. My boyfriend was understanding and lovely but he was the only person who knew about this and it sometimes took a strain on our relationship. After me and him broke up I confided in my mum and told her the problem. She told to me to demand a referral to a gyno which i did and i'm currently being bounced around the NHS. I see a different dr each time and therefore have to have a new examination each time. Several drs have made me cry from being so insensitive (always female drs which shocked me) and last time I was at hospital in January a dr literally shrugged at me. I'm being referred to a neuro gyno and have an upcoming appt in April. I've had so many scans and nothing can be found for cysts / endometriosis etc. I've spent months with a psychosexual counsellor, I've had a few sessions with an acupuncturist and now I'm seeing a hypnotherapist (I've only had one session so I'll have to wait and see how that goes).
Emotionally I'm broken down. I worry about getting involved with any man because of this huge issue and my self confidence is very low. Yes I know that if a man doesn't accept it and deal with it properly he's not worth it - but that doesn't really help me. I ended up asking my best friend for a favour almost 2 years ago - I needed to have sex and he was single so could he help me. There was no way for me to track any progress unless I was sexually active so he's been a great help to me and is incredibly supportive. He recently sent me an article on vestibulodynia and said it sounds very similar to what I have. I've printed loads of info about it and will take it to my next appt with the dr as I think it's sometimes more beneficial to take your own ideas with you - from past experience. The pain isn't all around the "clock face" it's just at 5, 6, 7. Where it really just feels like I'm too tight. I've tried dilators in the past but found the whole process incredibly painful and anxiety provoking.
Does anyone have any idea if this could be vestibulodynia? Even though the pain is only nearer the perineum and it doesn't hurt to the same degree each time?? And does anyone have any hints and tips for how to make the process of using a dilator less traumatic and more useful? I find that drs haven't been giving me much guidance on this kind of thing. I just read a post below and have bought the Amy Stein book "Heal pelvic pain" as it was recommended, and will look in to doing more yoga, but if anyone has any more advice please please please please please help. I'm going a bit crazy. 8 years is a long time and is really effecting my mental health. Another issue with my life is I don't always stay in the same place. Last year I lived in Africa (with no access to a gyno) so my hunt for a cure was put on hold for a year. In june I'm moving to Vancouver (definitely more medical help available in Canada but also pretty expensive for a Brit on a budget). I know this is a long shot but if any Canadians happen to read this and could give me any advice on help to get while I'm out there that would be amazing.
I've read a lot of the stories below and I feel for everyone. I know exactly what it's like and just want it to be over. Thanks for taking the time to read this xxxx
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Join date : 2018-03-03
- Posts : 72
Join date : 2016-04-17
Is Nortriptyline an antidepressant? Can I ask how that helps you? I don't really understand all the different types of treatment / pain control. Was your pain there continuously or only during intercourse?
Thank you for your help it feels like such a relief to even get a reply and know there are other people who are experiencing the exact same thing xxx
- Posts : 14
Join date : 2018-03-03
- Posts : 72
Join date : 2016-04-17