Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
No diagnosis yet
3 posters
Page 1 of 1
No diagnosis yet
Hi guys,
I wonder if anyone can help. I have not had a diagnosis of Vulvodynia yet but I’m positive it is what I’m experiencing. I can’t believe how suddenly and unexpectedly this has taken over my life. I’m 35 years old and have been single for around a year. I have just started seeing someone and at the beginning of feb I decided to go to my gp and start bc. I had been taking it for around 2 weeks when I was suddenly struck with a bad case of tonsillitis which is normal during stressful times (which lately has been stressful with one thing and another). I went to my GP and was prescribed antibiotics. I was also prescribed treatment for vaginal thrush as I always get thrush when I am on antibiotics. Sure enough thrush appeared but it was so severe I needed three lots of treatment to get rid of it. Ever since I have been burning and sometimes itching but it does not feel like thrush. It comes and goes and having sex with my new partner is almost impossible. I just feel like I’m on fire down below and in some areas quite painful too. I don’t know if this is some after effect of ready bad thrush or because of my bc. Any advice ladies. Thank you
I wonder if anyone can help. I have not had a diagnosis of Vulvodynia yet but I’m positive it is what I’m experiencing. I can’t believe how suddenly and unexpectedly this has taken over my life. I’m 35 years old and have been single for around a year. I have just started seeing someone and at the beginning of feb I decided to go to my gp and start bc. I had been taking it for around 2 weeks when I was suddenly struck with a bad case of tonsillitis which is normal during stressful times (which lately has been stressful with one thing and another). I went to my GP and was prescribed antibiotics. I was also prescribed treatment for vaginal thrush as I always get thrush when I am on antibiotics. Sure enough thrush appeared but it was so severe I needed three lots of treatment to get rid of it. Ever since I have been burning and sometimes itching but it does not feel like thrush. It comes and goes and having sex with my new partner is almost impossible. I just feel like I’m on fire down below and in some areas quite painful too. I don’t know if this is some after effect of ready bad thrush or because of my bc. Any advice ladies. Thank you
Lill83- Posts : 1
Join date : 2018-04-01
Re: No diagnosis yet
I developped vulvodynia after a pretty bad UTI in 2010. A few days after there was massive buning from the vulvar tissue and the doctor said it was a yeast infection and I took one of those OTC treatments. It made it worse! I went back and ahe said "It will just go away " ???? So instead I got a gyne appoint through another doc, did those insertable probiotic ovules etc- after 1week of that it was worse- the highest pain I've ever had. It was the acid from the lactibacillis that further "burned the skin". So I went back to this gyne and I was prescribed a steroid cream for 6 weeks because he thought I had lichen sclerosis. Let's just say the most I could do was 2 weeks because the cream made even worse again! By then I'm in agony and decide to go to an acupuncturist to help with the pain. It brought it down by 30-40%. So acupuncture could help regulate any circulation and pain issues. That would be my best suggestion to start with. Also thwre is a probiotic tablet called RePhresh ( that's how it's spelled- not a typo...). It's just for women. Then please consider seeing a pelvic physiotherapist that's what saved me really. I still have issues but the problem all along was screwed up connective tissue and muscle dysfunction. Good luck and take care.
Warrior2010- Posts : 5
Join date : 2017-10-10
Re: No diagnosis yet
Ok.. so I had unprovoked vulvodynia and provoked vulvodynia, chronic UTI, chronic yeast, lichen sclerosis, etc. I'm cured from it all. I followed the protocol by Anthony William.
According to Anthony, UTIs are caused by an unknown/currently undetectable strain of strep. Thrush is also caused by strep. It's a little confusing but lichen sclerosis is sometimes not recognized completely and that's caused by shingles. I think you're batting strep since of the UTI issues.
In my blog, under "necessary reading" I would listen to the shows on strep, lichen sclerosis and UTI (the UTI show covers more than just UTI)
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
If this is too much, I started coaching women and helping them create a protocol and it's really been working for them. So that's exciting. I'm not a practitioner, I don't charge. It's just the right thing to do since no one else has been helping. At least no one could help me except his info. And chronic pain really messes with your head so it's hard to see straight when you're in pain. I get it.
My email is on the bottom of my blog.
Don't give up!
Sarah
According to Anthony, UTIs are caused by an unknown/currently undetectable strain of strep. Thrush is also caused by strep. It's a little confusing but lichen sclerosis is sometimes not recognized completely and that's caused by shingles. I think you're batting strep since of the UTI issues.
In my blog, under "necessary reading" I would listen to the shows on strep, lichen sclerosis and UTI (the UTI show covers more than just UTI)
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
If this is too much, I started coaching women and helping them create a protocol and it's really been working for them. So that's exciting. I'm not a practitioner, I don't charge. It's just the right thing to do since no one else has been helping. At least no one could help me except his info. And chronic pain really messes with your head so it's hard to see straight when you're in pain. I get it.
My email is on the bottom of my blog.
Don't give up!
Sarah
sarisbaris- Posts : 69
Join date : 2014-02-17
Similar topics
» I want an exchange...my vagina doesn't work properly :(
» Help New Diagnosis
» Burning and Heavy Discharge, HELP!
» Help New Diagnosis
» Burning and Heavy Discharge, HELP!
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer