Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
I'm new to the forum and I joined in to feel a little bit less lonely in this nightmare. I'm well aware of the fact that there are lots of women struggling with vulvodynia, but I don't really know any, so it feels as if I'm the only one.
Anyway, my name is Alice, I'm 19 and my vulvodynia started when I was just 17, but worsened a lot when I was 18.
Luckily I've found a gynaecologist who has lots of patients with vulvodynia and has cured or strongly helped many of them, but so far I haven't yet seen noticeable improvments on myself.
My burnig pain is pretty strong everyday, all the time, and depression is hitting real hard.
I was hoping to find someone in my same situation and gain a little comfort from sharing our experiences :/
Good luck to eveybody out there struggling everyday <3
- Posts : 1
Join date : 2018-04-07
Welcome to the forum - sorry that you have to be here I definitely share your feeling of isolation and have found that my diagnosis has taken a huge toll on my self esteem and mental health. I'm 23 and have had vulvodynia my whole life but only received a diagnosis last year (it's a long story!). You're certainly not alone in feeling this way, even though it feels sometimes like you are. It's so tough being the only one you know with this condition.. I hate having to constantly explain why my legs are cold (because tights and pants hurt!), why I need to sit on a cushion sometimes, why I can't use tampons etc. Tonight at a party my friend asked me if I could have penetrative sex yet. I told him that I can't and that this is a long journey and I don't know if I ever will. He told me that he admired my boyfriend because he (the friend) could never put up with being in a relationship with someone with my condition. It's so depressing, and the constant burning is only a consistent reminder of how bad it feels emotionally.
Alas, it sounds like you've got a great gyno. It seems to me like treatment is all trial and error, which sucks, but it's nice to have someone on your side who gets it.
Sending you love!
- Posts : 8
Join date : 2018-01-07