Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
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Join date : 2018-04-14
I have had surgery, but have not done the Mona Lisa. PM me if you want to talk!
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Join date : 2015-09-22
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Join date : 2018-04-22
I, as many others of us have suffered with this deliberating condition for coming up to 30 years now and like yourself have tried every possible way of relieving the condition. When I was diagnosed in my thirties, I spent years using creams, visiting various consultants, wearing or not wearing different clothing and on and on and on and I did eventually op for a vulval skin graft, which helped for a short period of time, but I generally believe that was because the nerves had been interfered with initially and it was another consultant, who said that in time all nerve endings regenerate and I did feed this to be true. On a more positive note, I do not feel that any of the attacks I experience now, are as painful or as long and I really do manage to enjoy life. I have been taking gabapentin 700mgs three times a day for quite a number of years now and do find they help and also have had regular injections into the vulval area for pain relief, which also seem to have helped.
One of the things that does seem to make a tremendous difference is the toilet tissue I use and also pads (which unfortunately I now use for slight incontinence), as some of the materials have a high bleach content. I actually mentioned this at the urodynamics clinic and apparently there is a trial being undertaken on the Always pad range, as there have been numerous account of vulval discomfort. It is just a thought, but it may help. I really do feel you need to thing very hard and long with regard to surgery, as it is not always the answer, though we have all felt like just having it taken away and I would definitely try the injections and medication first. With regard to the relationship with your husband, I can so relate to that as well and am aware of how this can have an effect on your own feeling of womanhood, but I used to make my husband appointments and in that way we continued to have a very close, loving relationship, until I was able to resume full sexual intercourse.
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I have also used amytriptyline. It worked well for a while. Now I am on gabapentin and that is working. I take 800mg a day. Try going back on amitriptyline for a while. It might work again, then swap back. Have you tried Lyrica?
I sometimes apply a big blob of vaseline...that helps. I also often use De Vere Aloe Vera Gel. It is really soothing. I don't know how I would manage without it.
Hope this helps
Last edited by jennyk2 on Tue Apr 24, 2018 4:11 pm; edited 1 time in total (Reason for editing : added more detail)
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Join date : 2015-07-17
Please read my blog. I explain everything. Lately, women have been reaching out to me. I've been helping them figure out what's going on (everyone's a little different) and I help them create a plan. That seems to really help their healing process. I love helping others heal and getting rid of the pain. I'm just trying to be the person I wish I had when I was in active pain.
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Join date : 2014-02-17