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» 7 months since the diagnosis
Cleveland Clinic - Pain Management, Weston, FL EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Cleveland Clinic - Pain Management, Weston, FL EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Cleveland Clinic - Pain Management, Weston, FL EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Cleveland Clinic - Pain Management, Weston, FL EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Cleveland Clinic - Pain Management, Weston, FL EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Cleveland Clinic - Pain Management, Weston, FL EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Cleveland Clinic - Pain Management, Weston, FL EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Cleveland Clinic - Pain Management, Weston, FL EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Cleveland Clinic - Pain Management, Weston, FL EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Cleveland Clinic - Pain Management, Weston, FL

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Post  SinclairSassy on Sat Apr 28, 2018 8:18 pm

Hello!

Has anyone gone to a Pain Management doctor at Cleveland Clinic - Weston, FL? My primary care doctor (the only doctor that actually pays attention to my whole body, not just one disease/affliction) told me that the city I live in is too small to have a facility that could work through all of the nerve, back, V pain I have and suggested I go to Mayo Clinic or Cleveland Clinic. Mayo really didn't seem to have anyone that knew about V, so I crossed that one out. Cleveland Clinic in Cleveland had a couple of people that worked with V. But as I was looking at doctors, I saw that there are some in Florida that list V as a specialty. Florida is much closer for me (I live in Alabama).

Of course, I have seen other doctors that list V as a specialty, but the minute you sit down and tell them what is going on, they suddenly realize that maybe V should not be listed under the specialties they treat - so it's always a crap shoot.

SinclairSassy

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Location : Huntsville, AL

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Post  SinclairSassy on Tue May 22, 2018 7:13 pm

I guess, as usual, the answer is no. There is no help out there, is there?

SinclairSassy

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Cleveland Clinic - Pain Management, Weston, FL Empty Re: Cleveland Clinic - Pain Management, Weston, FL

Post  infinitelywondering on Sat Jun 02, 2018 9:09 am

Sinclair Sassy,

That is simply not true. There’s certainly HELP out there, it’s just whether it can cure you. Everybody is different and th cause of Vulvodynia can be different so of course not all treatments are going to work. It’s about trying to look positively on what is (as we all know) a very negative situation. When I started looking positively about things I started to feel a bit better- obviously not cured but just happier in myself.

I think it’s alwaus good to try and be as positive as possible especially on a forum where so many others are suffering and it’s perhaps not always the best to send out a negative message. Keep fighting and you’ll get there one day- we all will.

This forum in itself is help. There’s physio. Antidepressants for nerve pain. Lidocaine. Surgery. Diet. Biofeedback and dilators. Aloe Vera feel. Steroid creams. Pelvic floor exercises. Botox injections. Laser therapy

That’s to name just a few^

Keep going and don’t lose hope

infinitelywondering

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Post  Alana3 on Sat Aug 11, 2018 12:37 pm

I wish I had seen this sooner! Yes I've been to Cleveland clinic in Westin but chose to stay with my private doctor Dr. Trabin in west palm beach who is affiliated with Cleveland. If you can go to him hes an absolute God send, but the doctors at Cleveland were top notch also! I just prefer private practice. Dr. T did my vestibulectomy and I have no complaints. If you have questions, feel free to directly message me aa I'm not on here anymore much.

Alana3

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