Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Good morning everyone.
I am at my ends here, from suffering with a unknown pain for the last five years of my life it's really taken a toll on my mental health. So finally I've got enough courage to ask for advice here.
I am currently 19 years ago and five years ago I suffered from a chronic vulvar pain, usually sprouting from sitting down in school all day in those horrible hard chairs. I suffered in silence for the most part eventually bringing up the courage to go for a physical exam only to be told that IM FINE?! I for one do not like this as I want there to be something you know? I want to be diagnosed and given medication so I can live my life again. Then at last 3 years into this I felt free, I was pain free! But to no surprise I got a urine infection and after that well it came back. full force, went to the doctors again telling me nothing was wrong no infections yet she even stated I looked inflamed down there. my mother is no help bless her she simply cant understand and she thinks that I am doing it to myself by thinking there is pain there when there isn't but I just know there is. I can understand that my brain my make the symptoms a thousand times worse but it's still there. Please ladies, people on here who have suffered help me identify what it is I have and how I can manage it so I can live my life again.
My symptoms are this:
Burning towards end of urination
I have noticed that during the end of urination I feel almost crampy and get a horrible tightness
Inflammation from sitting all day (I have no choice this is my work)
Sex is painful (most of the time)
Please understand that this is no infection I have had several tests done, nothing has been found. Why am I feeling like this?? is this a type of vulvodynia?
The pain isn't agonising but it is enough to constantly be on my mind. I cant speak to anyone about it IRL
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Join date : 2015-08-15
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Join date : 2016-04-17
I am 23 and had symptoms that started when I was your age. Today I am symptom-free and have sex normally. My issue was the result of a semen allergy and infection after infection due to the fact that no one knew I was allergic.
As a result of my experience, I will be applying to physical therapy school where I intend to specialize in women's health. Right now I work as an aide in a physical therapy clinic that does women's health and to me, it sounds like you could really benefit from a trip to a women's health physical therapist. My recommendation would be to try to get in with the vulvular specialist from the gynecology unit of your healthcare provider. They will have a ton of useful resources for you and hopefully have a better idea of what's going on. At this appointment, it may benefit you to discuss the possibility of women's health PT or possibly an antidepressant like gabapentin to quiet down those pesky nerves. I'm sure your MD will have some ideas as to what could help you. Because I'm only an aide I don't have a ton of insight into what's going on with you but I know that pt is helpful for reducing overactive nerves, helping muscles to relax, and returning to normal functionality.
Reading your message reminds me of when I was your age and had no idea what was wrong with me. It is such a terrible feeling and it is so difficult to navigate medical institutions and get the help you need. I am wishing you all the best. I believe you that it is painful and as someone who works with women with vulvodynia vaginismus and the like I can tell you that you shouldn't feel that way and you shouldn't have to live that way. You will get better!
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Join date : 2017-07-19
I followed the protocol by Anthony William. According to him, pelvic inflammation is caused by an unknown/currently undetectable strain of strep. This strain also causes UTIs. So I'm guessing your battling strep. Although, I would do one protocol for herbs for the strep and another for the pelvic inflammation. It's also going to require you remove the foods that feed these viruses.
Here's my blog:
I have noticed most of the women I talk to with V also have UTI issues, so I added a UTI section:
Please don't give up! Just keep trying stuff.
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Join date : 2014-02-17