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» 7 months since the diagnosis
Burning redness and vulvodynia  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Burning redness and vulvodynia  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Burning redness and vulvodynia  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Burning redness and vulvodynia  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Burning redness and vulvodynia  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Burning redness and vulvodynia  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Burning redness and vulvodynia  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Burning redness and vulvodynia  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Burning redness and vulvodynia  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Burning redness and vulvodynia

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Burning redness and vulvodynia  Empty Burning redness and vulvodynia

Post  Bluenuddle on Mon May 28, 2018 11:34 am

Hi. I am looking to see if someone can give me hope or advice. I have self diagnosed vulvodynia. Doctors here do not have a clue. I been feeling it all my life but was mostly for a couple of days specially after peeing in the morning. I always thought is was an uti coming and going but I always tested negative for utis. About 2 months ago I had a flare that doesn't want to leave. You all know the misery and discomfort. The thing is for the first time it occurred me to look down there. I have an irritation in the vulva it is red just on one side. It burns like hell. Pee is my number one trigger. I don't have yeast or infection as I had tests done. I had antibiotics vaginal, creams, cortisone... You name it... nothing seems to help. The redness doesn't heal. Did anyone else had red add burning irritation? As i read vulvodynia is an inexplicable pain. The reason of my pain is the irritation... I guess. Thanks for taking the time to read my post. Very depressed...


Last edited by Bluenuddle on Wed May 30, 2018 8:31 am; edited 1 time in total

Bluenuddle

Posts : 2
Join date : 2018-05-28

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Burning redness and vulvodynia  Empty I'm in the same boat as you!

Post  anikita on Wed May 30, 2018 6:46 am

Hi!

I wish I could give you an answer to your problem but I just wanted to reach out and say that I'm in the same exact boat as you. I used to always have this burning pain during intercourse - burns but was manageable until one point (in August, it wasn't). Switched doctors two times until one tested me positive for Ureaplasma - YAY, I thought. Everything will be solved. Things were better for a month. I would burn VERY slightly at the start of intercourse but with a great amount of lube, I would become desensitized to the pain and all was well.

I started burning again a month ago and now the idea of sex is just awful. Like you, I decided to take a look and realized that I have these red spots around the entrance. They BURN to the touch but if I coat them HEAVILY in vitamin A & E or coconut oil or aloe vera, it is not as bad which had me thinking maybe it was an issue related to dryness.

But like you, I've tried everything left and right and the redness DOES not heal. There are just two spots that are bright red and cause ALL OF THE BURNING!!!!!! I read online that sometimes provoked vulvodynia has redness around the entrance, whether its all around, or just on the left or right side.

As of this week, my doctor has me on a homeopathic route - baking soda sitz or baths once daily for 10-15 minutes, and manual attempts to desensitize the nerve endings in the area with coconut oil.

I just want you to know that you're not alone and that you are the first person I've encountered in the last year who has the exact burning redness, and that alone is somewhat comforting.

anikita

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Join date : 2018-05-30

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Burning redness and vulvodynia  Empty Re: Burning redness and vulvodynia

Post  Bluenuddle on Wed Jun 06, 2018 3:48 pm

Anikita. Thanks for your answer. I am sorry you are in the same situation. I wanted to let you know that something that seems to be helping is msm. Might be you want to check with your naturopath. For mine made a lot of sense since 'sulfur' is my constitution. I didn't have sulfur as homeophaty handy. So I'm using msm which seems to be working. Fingers crossed. Might be this is something that can help you too.

Bluenuddle

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Burning redness and vulvodynia  Empty Re: Burning redness and vulvodynia

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