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    » 7 months since the diagnosis
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Which birth control should I choose to be on that won't make my Vulvodynia worse? EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Which birth control should I choose to be on that won't make my Vulvodynia worse?

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    Which birth control should I choose to be on that won't make my Vulvodynia worse? Empty Which birth control should I choose to be on that won't make my Vulvodynia worse?

    Post  Olivia D on Tue Jun 12, 2018 1:31 pm

    Hello all! I am new here. I would like some advice. I was diagnosed with Vulvodynia when I was 17. After a year of mental anguish, doctors telling my mother I am mentally ill and what not, needing a therapist, looking for attention, etc. I was finally heard and directed to a vulvar clinic. I was diagnosed with Vulvodynia and Vulvar Vestibulitis. I was put on Gabapentin 3x a day 900mgs. It actually worked and I had no problems, went off of it for like two years and it came back with a vengeance. I lost my virginity when I was 21. It actually didn't hurt, and I was fine, up until I started the Depo shot. Sex became very PAINFUL!!!! I wanted to cry, I felt intense burning and pain, the whole nine. I noticed it was when I went on Depo that sex became painful and it came back and has stayed with me. i can't take gabapentin anymore because for some reason my body doesn't do well with it. I get so nauseous and I eat with it. I puked so much from it. I use to take that on an empty stomach and have just drowsiness, but obviously my body doesn't like it now Sad No matter what I do! Sad

    So, this may seem crazy, but I felt I had more flare ups and more pain being on Depo. It's also weird because I feel like I need a period. When I got my period I actually felt "relieved" with my vulvodynia. For some odd reason my pain would come about like a week before my period, but when I got it, everything was fine and normal again. I asked my doctor what other BC methods would work, but they keep saying just because I was on Depo doesn't mean the Nexplanon will have the same side effects. I feel it would because it's progestrone, and Depo is the same thing. I don't know if Nexplanon will be better? Or if I need a BC that will produce a period? Like the pill or the patch? I tried the copper IUD the one with no hormones in it, my body rejected the IUD and it was extreme cramping that I couldn't deal with. Unfortunately that didn't work out to my favor because that would be the best option.

    What do you suggest? And do you think my theory is crazy that maybe birth control makes your condition worse? I don't know what to do, and the doctors who specialize in this don't seem to answer my questions, so I will go to my fellow sufferers of this condition and see what you all think. Thank you so much for reading, and you have my deepest sympathy and love for dealing with this horrid condition. Xoxo.

    Olivia D

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    Age : 25
    Location : Pittsburgh, PA

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    Which birth control should I choose to be on that won't make my Vulvodynia worse? Empty Re: Which birth control should I choose to be on that won't make my Vulvodynia worse?

    Post  emalita on Tue Jun 12, 2018 4:08 pm

    Here's a good article I had read in the past about the pill and its hormone destroying connection (don't worry, it's not written by Dr. Oz).

    http://blog.doctoroz.com/oz-experts/when-taking-the-pill-takes-away-your-sex-life

    Many women find a link between hormonal birth control and vulvodynia. So honestly, I wouldn't recommend any of them if you've had issues in the past.

    You mentioned you can't take Gabapentin anymore, but have you tried it as a compounded cream (non-alcohol base) that gets applied directly to your vulva? That's how my gynecologist wrote my Rx for it (I never used it though for other reasons I won't go into here).

    emalita

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