Log in

I forgot my password

Similar topics
    Latest topics
    » 7 months since the diagnosis
    Question for those who use or have used Cymbalta/duloxetine EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Question for those who use or have used Cymbalta/duloxetine EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Question for those who use or have used Cymbalta/duloxetine EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Question for those who use or have used Cymbalta/duloxetine EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Question for those who use or have used Cymbalta/duloxetine EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Question for those who use or have used Cymbalta/duloxetine EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Question for those who use or have used Cymbalta/duloxetine EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Question for those who use or have used Cymbalta/duloxetine EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Question for those who use or have used Cymbalta/duloxetine EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Question for those who use or have used Cymbalta/duloxetine

    Go down

    Question for those who use or have used Cymbalta/duloxetine Empty Question for those who use or have used Cymbalta/duloxetine

    Post  Aurora on Thu Jun 14, 2018 4:03 pm

    Hello everyone,

    First, I will go over my background, but you can skip the next paragraph if you just want to address the Cymbalta question.

    Here is my story in a few words. Prior to October 2017, I never had any issues. Then, I got my first yeast infection, and it was pretty bad. Really painful, red, inflamed, lots of discharge, etc. It wasn't subtle. I treated it with a 1-day clotrimazole (canesten) pessary and thought it was fine after that. Only the next month, it came back. That time I used a fluconazole pill. Then it came back again the following month... I was prescribed fluconazole and was told to take it whenever it came back. Problem was, I never felt cured from that point on. I saw several doctors, I went to the emergency care, I had at least 5 cultures done, I was tested for everything and it came back negative every single time, even though they did see yeast under the microscope on one occasion, and also found leukocytes (white blood cells, usually indicative of an infection) on an other. They said this could be normal... However, they never cultured my samples longer than 24-36 hours. For a while I worried that this could be a candida glabrata infection, and that it didn't grow in that short time. No doctor ever took me seriously when I mentioned this, so I don't know. In addiction to clotrimazole and fluconazole, I used boric acid for a while. I had good days and bad days and don't know for sure whether it helped.

    So, after living with burning pain for several months that couldn't be explained by any tests, a Dr. told me I have vulvodynia and put me on Cymbalta 30mg. I took that for about 6-7 weeks, and it did help. It did not eliminate the pain completely, but it enabled me to live more freely and not think about my pain 24/7. After my first follow up, my dose was increased to 60mg. So far I can't tell if it makes a difference in my pain levels, but I'm not sure I like how it affects me in terms of mood.

    I've read a lot of horror stories about how hard it is to go off of Cymbalta (brain zaps, confusion, fatigue, etc.), and how the pain comes back stronger when you stop taking it. My question is this : has anyone had success with treating the pain with Cymbalta and was then able to stop taking it ? Or do you intend to keep taking it ? What's your long term strategy ?

    Thank you!



    Aurora

    Posts : 2
    Join date : 2018-06-14

    View user profile

    Back to top Go down

    Question for those who use or have used Cymbalta/duloxetine Empty my experience with cymbalta

    Post  punkerplus on Sat Jun 23, 2018 1:37 pm

    I am not sure if this will be helpful to you or not, but I will let you know my experience.

    I did take Cymbalta, but I was not being treated for Vulvodynia at the time. However, I clearly did have Vulvodynia and I was aware that something was wrong with me vaginally. I was being treated for chronic migraine, which I have now been told is a "comorbid" condition with vulvodynia. I had been switched from Nortryptilyene to Cymbalyta due to side effects in an effort to relieve my migraines, and at that time had unexplained vaginal symptoms for about five years which I discussed routinely with gynecologists with no answers.

    Like yourself, I took 60 mgs per day of Cymbalta, however, this is what I started at (once I gradually increased of dose from weaning down off the other drug). I did not notice any difference in the Vulvodynia symptoms, but I was undiagnosed at the time, being provided only topical creams by gynecologists who did not know what they were doing plain and simple. I pushed my doctors to take me off the Cymbalta because I was suffering from extreme drowsiness (I was taking other medications causing drowsiness as well) and because on the time I was on the Nortriptylene and then the Cymbalta, I completely lost my ability to orgasm, which lasted approximately one year with the two drugs together. Once I was off the antidepressants, I felt much better and did not experience difficulty coming off of them (after about one year of taking them, one following the other). No difference in vaginal symptoms, but I substituted botox treatments for the migraines to mitigate the effects of this decision.

    I hope this helps.

    punkerplus

    Posts : 3
    Join date : 2018-06-23

    View user profile

    Back to top Go down

    Question for those who use or have used Cymbalta/duloxetine Empty Re: Question for those who use or have used Cymbalta/duloxetine

    Post  Aurora on Fri Jun 29, 2018 5:21 pm

    Thank you for your answer. I appreciate reading about your experience. I have been slowly reducing my dose of Cymbalta. Initially I thought it was helpful, but as time goes by, I'm starting to feel like it's not actually helping and like you, I'm dealing with some unpleasant side effects. Vulvodynia has been hard on my relationship and it saddens me that, on the few days where I feel good enough to actually want to have sex, I now struggle with an inability to reach orgasm.

    Aurora

    Posts : 2
    Join date : 2018-06-14

    View user profile

    Back to top Go down

    Question for those who use or have used Cymbalta/duloxetine Empty Re: Question for those who use or have used Cymbalta/duloxetine

    Post  Sponsored content


    Sponsored content


    Back to top Go down

    Back to top

    - Similar topics

     
    Permissions in this forum:
    You cannot reply to topics in this forum