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» 7 months since the diagnosis
I'm struggling EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I'm struggling EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I'm struggling EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I'm struggling EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I'm struggling EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
I'm struggling EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
I'm struggling EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
I'm struggling EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
I'm struggling EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  criv01 on Thu Jun 21, 2018 3:02 pm

Long story short, I've been in pain for 6 months, after giving birth to my beautiful baby boy. After many, many appointments, prescriptions and such...i was directed to a specialist that said I have vulvodynia. At first, I was happy as it seemed to match what I was feeling...and then, I began reading and feel beyond helpless....especially as I woke up at 5 this morning with burning pain around my clitorisis. At this point, I've been prescribed a lidocaine cream...which isn't really helping....just shifts the pain to mostly burning and turns down the intensity by one....and I've done two sessions of pt for my pelvic floor.

I'm struggling mentally A LOT. To be honest, I'm crying and ahhhhhhhhhh! Why did this have to happen?????? I am surrounded by a simple, but good life and I am consumed with my thoughts of pain. I'm trying to tell myself this is the beginning...there are options, but I'm having trouble actually believing this pain can change....I'm fried and just want some relief!! Ugh, I don't know if I'm mentally strong enough for this all right now.
criv01
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Post  fairlight10 on Sat Jun 23, 2018 6:04 pm

I am sorry you are suffering this horrible condition as we all are on this forum. Also,at a time that should be special with your new baby. I can recommend one of the tryclic antidepressants. Nortriptyline taken at a low dose of 20mgs can calm down the nerve pain you are experiencing. I have been on it for more than 6years now.It took many months to work but within 2 weeks I knew it was changing the pain signals.After 4months l felt ready to go back to work.I still have flare ups but nothing like it was at the beginning.l have read all the stories on this site and many women have found relief with these medications. It may make you sleepy for awhile but this wears off when you get used to the drug.Hope this helps.

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Post  Thinolgal on Wed Jun 27, 2018 5:09 am

I also got severe burning pain from lidocaine......it stimulated rather than deadened the nerve endings.....no idea how, but the pain felt like a scald.

I'm new on here, so sorry if I'm covering old ground (I've read some of the posts, but far from all). Are you washing too often? I say this as I became a bit obsessed by trying to make myself too clean, and it makes matters worse. Secondly....cool plain live yoghourt after washing and left on the skin helps me, it may help you. Messy, but really soothing. Wipe off with very soft toilet tissue.....don't rub as the toilet tissue often contains chemicals which will irritate the skin.

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