Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
I have suffered with symptoms of vulvodynia for about six years now, having just received a diagnosis in December. I was told that I have vulvar vestibulitus. It is clear, as the doctor showed me (with a mirror) that the vulvar vestibules are red and inflamed, he did the Q-Tip test where he poked me and I yelled out because it hurt, but the odd thing is that while I experience some minor irritation in that location during penetrative sex, I can generally have it and enjoy it as long as I'm not "excessive" (i.e. not every night).
My primary concern has been the external itching and burning that has driven me up a wall for years. Its generally around the "clitoral" area, inner lips, and it is HORRIBLE. Before I was diagnosed, doctors would just tell me to use this or use that or prescribe things to me, probably often falsely diagnosing me with yeast infections. Now, we have discovered that the thing that works is hydrocortisone creams or blends such as Pramosone. The problem is I've been using creams like this for years and the doctor says that this causes "thinning of the skin." If I so much as wash the cream off, however, I'm back to burning within a few hours, and its been like this ever since the burning started.
The doctor and I have tried all different things, such as Amitryptlene cream on the vulvar vestibules, gabapentin cream on the vulvar vestibules, and now he wants me to try taking gabapentin orally. Lidocaine solutions on the external itching did not work. The worst part is that as I have been told there is no certainty as to whether or not the vulvar vestibulitus and the external itching is connected in any way.
Has anyone had any experiences like this with severe external itching? Do you have any solutions for external itching that do not involve steroid solutions or lidocaine? I'm starting to become concerned that the doctor I am seeing is running out of ideas for how to solve the problem of the external itching so I am trying to think of ideas on my own as well to discuss with him.
I would really greatly appreciate any advice that you can give me. I realize that I am just at the beginning of figuring this out since I just have received a diagnosis about six months ago, but it took me a long time to get here.
I'm also willing to take suggestions for a second opinion. Live in New York and willing to travel. Thanks!!!
- Posts : 3
Join date : 2018-06-23
- Posts : 2
Join date : 2018-03-19
ruby wrote:hi there! I also have bad external itching/rawness, and something that has helped is boric acid suppositories. I also suffered from several yeast infections, and was being treated for them without success until we realized there was no yeast at all. Boric acid is used to treat yeast infection, but it basically just resets the entire flora and balance of the vagina, and I have found great success in using it. I haven't experienced any negative side effects (no extra burning or pain), and it almost completely reduced my out itching for a few months before it came back. I just finished my second round of it last week and I'm itchless again! I still have my internal pain, but the itching is gone. I got a prescription from my gynecologist and got it ordered from a specialty pharmacy.
Thanks so much! I am going to look into this.
- Posts : 3
Join date : 2018-06-23
First, you're fighting a virus the doctors can't detect right now.
These foods feed the virus so remove them: Dairy, eggs, corn, wheat, canola oil, natural flavorings (they tricked you, it’s MSG), aluminium (any food that has contact with this metal), only eat Himalayan salt for now (random salt was a huge trigger for my itching. Sigh)
These kill the virus:
1) Nettle leaf tincture (alcohol free) at least 3-5 times a day, 2 droppers. (great especially for itching)
2) Green juices: celery juice when you wake up and then 2 other green juices during the day if you're in pain (celery, cucumber, flat leaf parsley, cilantro. These are great for itching)
3) Smoothie: wild blueberry, banana, fresh oranges, and other fresh fruits
4) You should be on this zinc long term. 10 drops in glass of water 2-3x a day
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Join date : 2014-02-17