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» 7 months since the diagnosis
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Vulvar Vestibulitus Plus External Itching - Please Read!! EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvar Vestibulitus Plus External Itching - Please Read!!

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Vulvar Vestibulitus Plus External Itching - Please Read!! Empty Vulvar Vestibulitus Plus External Itching - Please Read!!

Post  punkerplus on Sat Jun 23, 2018 2:02 pm

Hello All,

I have suffered with symptoms of vulvodynia for about six years now, having just received a diagnosis in December. I was told that I have vulvar vestibulitus. It is clear, as the doctor showed me (with a mirror) that the vulvar vestibules are red and inflamed, he did the Q-Tip test where he poked me and I yelled out because it hurt, but the odd thing is that while I experience some minor irritation in that location during penetrative sex, I can generally have it and enjoy it as long as I'm not "excessive" (i.e. not every night).

My primary concern has been the external itching and burning that has driven me up a wall for years. Its generally around the "clitoral" area, inner lips, and it is HORRIBLE. Before I was diagnosed, doctors would just tell me to use this or use that or prescribe things to me, probably often falsely diagnosing me with yeast infections. Now, we have discovered that the thing that works is hydrocortisone creams or blends such as Pramosone. The problem is I've been using creams like this for years and the doctor says that this causes "thinning of the skin." If I so much as wash the cream off, however, I'm back to burning within a few hours, and its been like this ever since the burning started.

The doctor and I have tried all different things, such as Amitryptlene cream on the vulvar vestibules, gabapentin cream on the vulvar vestibules, and now he wants me to try taking gabapentin orally. Lidocaine solutions on the external itching did not work. The worst part is that as I have been told there is no certainty as to whether or not the vulvar vestibulitus and the external itching is connected in any way.

Has anyone had any experiences like this with severe external itching? Do you have any solutions for external itching that do not involve steroid solutions or lidocaine? I'm starting to become concerned that the doctor I am seeing is running out of ideas for how to solve the problem of the external itching so I am trying to think of ideas on my own as well to discuss with him.

I would really greatly appreciate any advice that you can give me. I realize that I am just at the beginning of figuring this out since I just have received a diagnosis about six months ago, but it took me a long time to get here.

I'm also willing to take suggestions for a second opinion. Live in New York and willing to travel. Thanks!!! Smile


punkerplus

Posts : 3
Join date : 2018-06-23

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Vulvar Vestibulitus Plus External Itching - Please Read!! Empty Boric Acid

Post  ruby on Mon Jun 25, 2018 5:18 pm

hi there! I also have bad external itching/rawness, and something that has helped is boric acid suppositories. I also suffered from several yeast infections, and was being treated for them without success until we realized there was no yeast at all. Boric acid is used to treat yeast infection, but it basically just resets the entire flora and balance of the vagina, and I have found great success in using it. I haven't experienced any negative side effects (no extra burning or pain), and it almost completely reduced my out itching for a few months before it came back. I just finished my second round of it last week and I'm itchless again! I still have my internal pain, but the itching is gone. I got a prescription from my gynecologist and got it ordered from a specialty pharmacy.

ruby

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Join date : 2018-03-19

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Post  punkerplus on Tue Jun 26, 2018 2:55 am

ruby wrote:hi there! I also have bad external itching/rawness, and something that has helped is boric acid suppositories. I also suffered from several yeast infections, and was being treated for them without success until we realized there was no yeast at all. Boric acid is used to treat yeast infection, but it basically just resets the entire flora and balance of the vagina, and I have found great success in using it. I haven't experienced any negative side effects (no extra burning or pain), and it almost completely reduced my out itching for a few months before it came back. I just finished my second round of it last week and I'm itchless again! I still have my internal pain, but the itching is gone. I got a prescription from my gynecologist and got it ordered from a specialty pharmacy.

Thanks so much! I am going to look into this.

punkerplus

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Post  sarisbaris on Sun Jul 01, 2018 4:43 pm

I'm so sorry you're in pain! Yes I had itching too. I had so many symptoms. I had V for 15 years. I've been healed for 2. I followed the protocol by Anthony William. Here's my blog. I would also suggest you also join the Facebook group Vulva Warriors. Most of the women on there are following this protocol to heal their V. A handful of us who have already been healed are on there as well answering questions.
http://myvulvodyniacure.blogspot.com/2018/05/basics.html

First, you're fighting a virus the doctors can't detect right now.

These foods feed the virus so remove them: Dairy, eggs, corn, wheat, canola oil, natural flavorings (they tricked you, it’s MSG), aluminium (any food that has contact with this metal), only eat Himalayan salt for now (random salt was a huge trigger for my itching. Sigh)

These kill the virus:
1) Nettle leaf tincture (alcohol free) at least 3-5 times a day, 2 droppers. (great especially for itching)
https://www.amazon.com/gp/product/B000I4AEBI/ref=as_li_qf_sp_asin_il_tl?ie=UTF8&tag=wwwmedicalmed-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B000I4AEBI&linkId=04916ccf5d496631c562f5e3a92bbb92
2) Green juices: celery juice when you wake up and then 2 other green juices during the day if you're in pain (celery, cucumber, flat leaf parsley, cilantro. These are great for itching)
3) Smoothie: wild blueberry, banana, fresh oranges, and other fresh fruits
4) You should be on this zinc long term. 10 drops in glass of water 2-3x a day
https://www.amazon.com/gp/product/B00D0VI0A8/ref=as_li_qf_sp_asin_il_tl?ie=UTF8&tag=wwwmedicalmed-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B00D0VI0A8&linkId=ec2da5adb556972a4cb73ef3bf7565fd


sarisbaris

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