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    » 7 months since the diagnosis
    Back pain, burning feet and vulvodynia....all related? EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Back pain, burning feet and vulvodynia....all related? EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Back pain, burning feet and vulvodynia....all related? EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Back pain, burning feet and vulvodynia....all related? EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Back pain, burning feet and vulvodynia....all related? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Back pain, burning feet and vulvodynia....all related? EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Back pain, burning feet and vulvodynia....all related? EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Back pain, burning feet and vulvodynia....all related? EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Back pain, burning feet and vulvodynia....all related? EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Back pain, burning feet and vulvodynia....all related?

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    Back pain, burning feet and vulvodynia....all related? Empty Back pain, burning feet and vulvodynia....all related?

    Post  criv01 on Sat Jul 07, 2018 9:01 am

    So I'm laying here awake for the third night in a row. But am trying to make sense of it all. I have noticed that whenever my vulva pain is bad, I have a pins and needles/burning sensation on the bottoms of both of my feet. I Googled the pins and needles and found that people had sciatica or some lower back problem.....my vulvodynia began after giving birth (my first and only)....the last month of pregnancy was excruciating lower back pain, where walking became nearly impossible. Then when giving birth, it felt like my back was breaking. I could then barely walk for 3 weeks afterwards....so my question is, has anyone found that lower back trauma caused the vulvodynia for them??? And in turn, solving the lower back pain elevate the vulva pain??
    criv01
    criv01

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    Join date : 2018-06-20

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    Back pain, burning feet and vulvodynia....all related? Empty Re: Back pain, burning feet and vulvodynia....all related?

    Post  aspaceodyssey on Wed Aug 29, 2018 2:53 pm

    sounds like it could be pudendal neuralgia: http://www.beyondbasicsphysicaltherapy.com/our-services/pudendal-nerve-neuralgia

    maybe physical therapy would be a help to you. I loved physical therapy (for general pelvic floor dysfunction) and felt like it gave me so many great insights about my body and exercises and tools that I still use and benefit from to this day. so I would be inclined to suggest starting there! I know there are also some kind of nerve block injections that are supposed to be effective for pudendal neuralgia. I don't know a ton about that but you could start the conversation with your doc and go from there.

    be well! keep us posted!

    aspaceodyssey

    Posts : 30
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    Back pain, burning feet and vulvodynia....all related? Empty Re: Back pain, burning feet and vulvodynia....all related?

    Post  mary jane on Fri Oct 05, 2018 7:28 pm

    criv01 wrote:So I'm laying here awake for the third night in a row.  But am trying to make sense of it all.  I have noticed that whenever my vulva pain is bad, I have a pins and needles/burning sensation on the bottoms of both of my feet.  I Googled the pins and needles and found that people had sciatica or some lower back problem.....my vulvodynia began after giving birth (my first and only)....the last month of pregnancy was excruciating lower back pain, where walking became nearly impossible.  Then when giving birth, it felt like my back was breaking.  I could then barely walk for 3 weeks afterwards....so my question is, has anyone found that lower back trauma caused the vulvodynia for them??? And in turn, solving the lower back pain elevate the vulva pain??
    I had lower back pain and excruciating coccydnia when my vulvodynia started ... both these symptoms have dissapeared mysteriously

    I doubt you have pudendal neuralgia like the above user suggests, that is only a possibility if you had severe tearing during birth.

    When you start having pain somewhere in your body and this pain expands or moves around it's a sign of central sensitization. You can look it up. It can be treated using exercise and medication like amitriptyline or pregabalin.

    You can also try seeing a physio. Yes, there are some nerve roots which travel from the back and end up in the vulva region, so they are related. It is possible to get, for example, a nerve block likke a caudal epidural and kill two birds with one stone: back pain and V.

    See a doctor first and get their opinion. Maybe a neuro ?

    mary jane
    mary jane

    Posts : 345
    Join date : 2013-10-05
    Location : UK

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    Post  lindsey_taylor on Sat Oct 20, 2018 3:50 am

    I have to just say... This being my second time having vulvodynia, the pain in my feet is much worse this time. If I am up on them for any length of time, and I usually am due to my job, it genuinely feels like I have been jumping up and down on concrete all day. Amitriptyline never really helped me. Sad

    lindsey_taylor

    Posts : 58
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    Age : 34
    Location : Georgia, United States

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