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» 7 months since the diagnosis
From a concerned husband EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
From a concerned husband EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
From a concerned husband EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
From a concerned husband EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
From a concerned husband EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
From a concerned husband EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
From a concerned husband EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
From a concerned husband EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
From a concerned husband EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


From a concerned husband

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From a concerned husband Empty From a concerned husband

Post  ConcernedYorkieHubby on Thu Jul 12, 2018 10:45 pm

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot of you can vouch for this too, but she’s had so many incorrect diagnoses, and too much poor advice (in the form of prescription medications which ended up doing more harm than good) to keep count. Evey time we think we’re getting somewhere the doctors either run out of ideas or just fob her off with thrush treatment (which better consultants have told
us may have led to other problems).

She doesn’t like to talk about her problem to anyone, which is why I’m asking anonymously on here for help. I don’t know if I’m breaking any rules by being here as a man (I apologise if I am), but I just don’t know what to do any more.

My wife is incredible, that she is able to function day to day is a testament to her strength but I know how much she suffers. I really want to help her.

Thank you for reading my introduction, and genuinely sorry if I’ve caused any offence or broken any policies with my post.

ConcernedYorkieHubby

Posts : 1
Join date : 2018-07-12

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From a concerned husband Empty Re: From a concerned husband

Post  emalita on Fri Jul 13, 2018 6:02 pm

Hi,

Certainly no rules broken, and I admire that you care so much to reach out!

All of us are so different, which makes vulva pain so hard to figure out, but if you could answer a few questions, it may help some of us tell you what's worked for us if we've had similar symptoms.

1. When did your wife's pain start? Can she pinpoint when it started getting bad (e.g. after a UTI, yeast infection, other infection, trauma to her back/hip/tailbone, pregnancy, using hormonal birth control, constipation, douching, etc.)?

2. What does her pain feel like? (e.g. burning, itching, muscle spasm/aches, shooting pain, pin pricks, prickly, hot, raw, dry, tight, etc.)

3. Where is her pain located? (e.g. vaginal opening, clitoris, inside the vagina, urethra, etc.)

4. Is her pain constant or only when provoked (e.g. sex, inserting tampon, touch, while urinating or having a bowel movement, sitting/standing too long, etc.)?

5. I assume all tests are negative currently (e.g. BV, yeast, STDs, UTI, lichen sclerosis, etc.)?

6. What has she tried and has any of it reduced her pain? (e.g. antibiotics, diflucan, yeast creams, boric acid, gabapentin pill or cream, antidepressants, estrogen, etc.)

7. What treatment is she using now, even if it's just soothing techniques she's doing at home (e.g. ice packs, baths, lidocaine, etc.)?

8. Since the pain started, how long has she gone without doing anything to her vulva/vagina and being as gentle as possible (e.g. absolutely no creams, antibiotics, boric acid, soaps, douches, washing, kegels, keeping shampoo/lotion/laundry detergent/fabric softener/ultra plush or scented toilet paper off her vulva, etc.)?

I know this is a lot, but it will help us know if we have anything new to offer. Heck, I even read a sufferer's blog where she found the cause was unfiltered water at her home, and when she went on vacation and drank only purified bottle water she was symptom free. So there is a lot to learn from everyone's experience.

If you or your wife would prefer to send me a message privately, please feel free to do so. I'm happy to listen and provide support in any way I can.

Best of luck!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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From a concerned husband Empty Re: From a concerned husband

Post  Anonym on Fri Jul 27, 2018 12:01 pm

I'm in a similar situation too. We could discuss in pm.

Anonym

Posts : 2
Join date : 2018-07-27

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From a concerned husband Empty My Cure

Post  angelique2016 on Mon Jul 30, 2018 7:48 am

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) used sparingly every night only before going to bed, and not to wash to much off in the shower in the morning. I did this for about 3 months, took the Nortriptyline at night before bed and used the ointment at night before bed. This worked, why, because the Nortriptyline, is for pain, and makes the brain stop thinking about the pain, as it has now become persistent pain, and the ointment, soothes the skin and it has properties in it to help heal the skin. Anyway I stopped posting on here as I was getting abused by people that were not able to get a hold of the medications in other parts of the world. So if anyone is interested in this information, and if you can get these medications, then it will cure you, you will need to do your pelvic floor exercises after you are cured to help strengthen the muscles again, but I hope that this information can help some people out there, as I know how extremely excruciating this problem is, it bought me to tears, and no sleep and could hardly sit, wanted to go to the hospital so many times, I nearly went crazy with the pain, and of course no intercourse what so ever, could barely even wee without pain, had to wear loose clothes, not tight jeans what so ever.

So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you. All the best everyone! Smile

angelique2016

Posts : 14
Join date : 2016-08-16

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From a concerned husband Empty Thank you!

Post  shope610 on Wed Oct 10, 2018 1:46 pm

Thank you for sharing!! You can't please everyone and it takes courage to share, so Thank you!

shope610

Posts : 3
Join date : 2015-04-10
Age : 45
Location : Michigan

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