Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.
I’m sure a lot of you can vouch for this too, but she’s had so many incorrect diagnoses, and too much poor advice (in the form of prescription medications which ended up doing more harm than good) to keep count. Evey time we think we’re getting somewhere the doctors either run out of ideas or just fob her off with thrush treatment (which better consultants have told
us may have led to other problems).
She doesn’t like to talk about her problem to anyone, which is why I’m asking anonymously on here for help. I don’t know if I’m breaking any rules by being here as a man (I apologise if I am), but I just don’t know what to do any more.
My wife is incredible, that she is able to function day to day is a testament to her strength but I know how much she suffers. I really want to help her.
Thank you for reading my introduction, and genuinely sorry if I’ve caused any offence or broken any policies with my post.
- Posts : 1
Join date : 2018-07-12
Certainly no rules broken, and I admire that you care so much to reach out!
All of us are so different, which makes vulva pain so hard to figure out, but if you could answer a few questions, it may help some of us tell you what's worked for us if we've had similar symptoms.
1. When did your wife's pain start? Can she pinpoint when it started getting bad (e.g. after a UTI, yeast infection, other infection, trauma to her back/hip/tailbone, pregnancy, using hormonal birth control, constipation, douching, etc.)?
2. What does her pain feel like? (e.g. burning, itching, muscle spasm/aches, shooting pain, pin pricks, prickly, hot, raw, dry, tight, etc.)
3. Where is her pain located? (e.g. vaginal opening, clitoris, inside the vagina, urethra, etc.)
4. Is her pain constant or only when provoked (e.g. sex, inserting tampon, touch, while urinating or having a bowel movement, sitting/standing too long, etc.)?
5. I assume all tests are negative currently (e.g. BV, yeast, STDs, UTI, lichen sclerosis, etc.)?
6. What has she tried and has any of it reduced her pain? (e.g. antibiotics, diflucan, yeast creams, boric acid, gabapentin pill or cream, antidepressants, estrogen, etc.)
7. What treatment is she using now, even if it's just soothing techniques she's doing at home (e.g. ice packs, baths, lidocaine, etc.)?
8. Since the pain started, how long has she gone without doing anything to her vulva/vagina and being as gentle as possible (e.g. absolutely no creams, antibiotics, boric acid, soaps, douches, washing, kegels, keeping shampoo/lotion/laundry detergent/fabric softener/ultra plush or scented toilet paper off her vulva, etc.)?
I know this is a lot, but it will help us know if we have anything new to offer. Heck, I even read a sufferer's blog where she found the cause was unfiltered water at her home, and when she went on vacation and drank only purified bottle water she was symptom free. So there is a lot to learn from everyone's experience.
If you or your wife would prefer to send me a message privately, please feel free to do so. I'm happy to listen and provide support in any way I can.
Best of luck!
- Posts : 249
Join date : 2016-03-29
Location : USA
- Posts : 2
Join date : 2018-07-27
So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you. All the best everyone! Smile
- Posts : 14
Join date : 2016-08-16
- Posts : 3
Join date : 2015-04-10
Age : 45
Location : Michigan