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    » 7 months since the diagnosis
    Have you been treated for ureaplasma?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Have you been treated for ureaplasma?  EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Have you been treated for ureaplasma?  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Have you been treated for ureaplasma?  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Have you been treated for ureaplasma?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Have you been treated for ureaplasma?  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Have you been treated for ureaplasma?  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Have you been treated for ureaplasma?  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Have you been treated for ureaplasma?  EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Have you been treated for ureaplasma?

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    Have you been treated for ureaplasma?  Empty Have you been treated for ureaplasma?

    Post  flower74 on Fri Aug 24, 2018 3:10 pm

    Hello Everyone,

    I was hoping someone might have something to relate.

    I'll keep this short. In December of 2017 I went to a GYN for a routine pap smear. There was nothing wrong with me and I had no complaints. 2 weeks later the office called and said I had BV and needed to take a course of anti-biotics. I rarely take medication and didn't think at the time that I had ever had a bad reaction to anything.

    I started a 7 day course of oral Flagyl and immediately my vagina started burning, along with muscle stiffness and a feeling like my throat was closing. I googled the side-effects of Flagyl and vaginal burning/irritation was listed. I finished the course and a week later still had vaginal burning and irritation. I was retest and told I still had BV and put on another 5 day course of the gel Flagyl.

    My vagina has continued to burn for 8 months. I have been tested repeatedly for BV, yeast, STDs, UTIs and everything comes back negative.

    I finally called the GYNs office in June and they mentioned that my pap smear in December was positive for Ureaplasma and that might be cause all of my symptoms and they prescribed 1000 mg of Azithromycin. From what I have researched 70-80% of sexually active women will have ureaplasma on their pap smear.

    I'm miserable but at the same time very hesitant to take another anti-biotic when I feel pretty convinced that is what has caused all of this chronic burning and irritation. I feel like I have a chemical burn that won't heal and gets irritated constantly. I have no symptoms of a ureaplasma infection. My gut tells me this isn't an infection but an allergic reaction of some kind.

    Does anyone have any thoughts? I don't know what to do. I don't want to make this problem worse.

    Thank you.

    flower74

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    Have you been treated for ureaplasma?  Empty Re: Have you been treated for ureaplasma?

    Post  flower74 on Sun Aug 26, 2018 7:26 pm

    I've been reading through old posts and it seems several people have been treated for ureaplasma and it didn't make a difference or made their symptoms worse. That was the info I needed. I think that tells me what I wanted to know.

    flower74

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    Have you been treated for ureaplasma?  Empty Re: Have you been treated for ureaplasma?

    Post  emalita on Tue Aug 28, 2018 1:38 pm

    Hi,

    I'm on a vulvodynia Facebook group where this question has come up quite a bit, and the response is pretty much the same...it doesn't fix their pain (not the cause). From what I've researched, ureaplasma can be found in normal healthy flora...same with gardnerella, which is why a culture should never diagnose BV either.

    emalita

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    Have you been treated for ureaplasma?  Empty Re: Have you been treated for ureaplasma?

    Post  ChrisB on Tue Aug 28, 2018 2:13 pm

    I was treated for it and felt the same after as I did before. i was told by a few doctors that it is not considered a pathogen. I still opted for treatment and now that i have been testing negative for over a year, I do not feel any different. I did also have hip surgery so I have a lot of trauma to that area. A pelvic PT told me that i have severe pelvic floor dysfunction and that can be causing the weird feelings I get. I also did some research on my own and saw that a pinched nerve can cause the issue. It is called the pudendal nerve and if its entraped or pinched, it can cause issues. I am having some back problems so I am going to see a neurologist and include that in my visit.

    ChrisB

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    Post  flower74 on Wed Aug 29, 2018 11:15 am

    Thank you both for your responses. I've been struggling for 2 months with whether or not to take more anti biotics and this has helped me to decide not to until I can get in to see a specialist.

    flower74

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    Have you been treated for ureaplasma?  Empty Re: Have you been treated for ureaplasma?

    Post  ChrisB on Wed Aug 29, 2018 2:01 pm

    I believe antibiotics can do more harm than good unless really necessary. I read all this info that ureaplasma is really hard to get rid of and people go on many rounds of antibiotics. Even my bf told me that this could be a long time treatment. I took one round of antibiotics, forgot which and for how long but nothing crazy. I was retested in a few weeks and it was gone and never came back. I once saw a gyno specialist who told me that if I ever use any kind of gels down there, it will make the situation worse and make the irritation feeling flare up more. I dont think anything external is causing my irritation because I eliminated anything that could cause it to flare. When this first started, I was convinced it was an allergic reaction because of how it felt but now im leaning towards severe pelvic floor dysfunction and a nerve issue in the area. Ill see what the neurologist says in a few weeks.
    please keep me posted and I hope things get better for you.

    ChrisB

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