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» How I cured my Vulvodynia!
6 year sufferer but I’ve found some hope EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
6 year sufferer but I’ve found some hope EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
6 year sufferer but I’ve found some hope EmptySat Jun 15, 2019 5:22 pm by mary jane

6 year sufferer but I’ve found some hope EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
6 year sufferer but I’ve found some hope EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
6 year sufferer but I’ve found some hope EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
6 year sufferer but I’ve found some hope EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
6 year sufferer but I’ve found some hope EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
6 year sufferer but I’ve found some hope EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

6 year sufferer but I’ve found some hope

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6 year sufferer but I’ve found some hope Empty 6 year sufferer but I’ve found some hope

Post  Npage14 on Wed Oct 10, 2018 1:33 am

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly find relief, going through my first couple years of high school was a nightmare as you can imagine. I would sit in class and feel the worst burning sensation and want to scream. At first I had no idea how to appease it, but a couple years in I went to a physical therapist and encountered some advice from a dermatologist as well. The physical therapist would Do this thing that was almost like a pressure point massage in my vagina, the first time it hurt so bad I could hardly stand it, but the more she did it the less it hurt and I found some relief. The pain didn’t go away, but she helped me realize I was clenching all the muscles down there because I was in pain, and relaxing them did a great deal for me. Beforehand I used to get what felt like pinched nerves, and I no longer get those since. My dermatologist recommended not wearing underwear at night, which I had heard before but that time it stuck and I started taking that advice. I chose to start wearing night gowns and I think by doing that it was getting rid of irritation, also healing me somewhat. If my clothing options allow me, I choose not to wear underwear as much as I’m able to. I used to avoid thongs, but I realized now that it actually allows more airflow and less back and forth friction since it stays in one place. Now here’s what has helped me the most, somewhere along the way I realized that it seems to be in direct relation with my body temperature,especially in my feet. If I am able to keep myself cool I feel for the most part pain free. Discovering this was key to coping. Minor wardrobe change and sleeping with airflow at night can really make a difference, ladies. Since discovering this, I have been able to go days forgetting there’s even something wrong with me and for some of you that might be huge. Of course there are some situations where it is inevitable like on hot days or if your without air, and that is still a struggle for me. It’s in those times I feel the most trapped. But if you find yourself in that situation I’ve noticed it helps to wear loose fitting shorts and no underwear with sandals. Another thing that has helped me is a product called dermoplast which my aunt first found out about when a doctor gave it to her after having a baby. It is a cooling and moisturizing spray which helps with the heat issue. I used to use lidocaine before that but this is much better and no prescription is necessary, you can buy it online at Walmart. I hope some of these things are helpful for some of you! For the most part I am now living a functional life, but as I plan on getting married within a couple years, and have still kept my virginity, I am worried that the feelings of being trapped with pain are going to come back again. If anyone has any tips or advice on what to expect for that I will gladly take them! I’m hoping to connect with some of you on here, I think the hardest part sometimes is that it’s so private for us that we have to suffer in silence. I’ve only chosen to share my pain with very few people in my life. I’m anxious to hear some of your stories!


Posts : 4
Join date : 2018-10-09

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