Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
I'm sorry im rambling EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I'm sorry im rambling EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I'm sorry im rambling EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I'm sorry im rambling EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I'm sorry im rambling EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I'm sorry im rambling EmptySat Jun 15, 2019 5:22 pm by mary jane

I'm sorry im rambling EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I'm sorry im rambling EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I'm sorry im rambling EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

I'm sorry im rambling

2 posters

Go down

I'm sorry im rambling Empty I'm sorry im rambling

Post  Jet227 Thu Feb 21, 2019 5:49 am

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went in again and again and they just treated for bacterial vaginosis with antibiotics and nystat cream 2 times, then i did an internal bacteria vaginosis gel treatment as well. I had been prescribed Lidocane and a ph balance cream. at this point i still hadn't gotten a diagnosis (roughly the 9th/10th month) I have recently been diagnosed with vulvadynia and past month been going to physical therapy, I have since had to discontinue because it was not giving me any relief and the doctor said she couldn't help me. I also have been on a testosterone cream and that did nothing so I have discontinued this as well. I am on a probiotic and here is no change. I don't use soap at all anymore- to wash my body (hands as an exemption) and my clothes i use hypoallergenic stuff but i still cant use fabric softener. I am not supposed to have sex, go in my family's hot tub, exercise, or do anything that could exacerbate my symptoms. They are sending me now to a special clinic that I will actually have to travel away from my city to go be seen. I've been diagnosed but no treatment they say works for me. I didn't want to be a special case, i wanted it to be a simple yeast infection or allergic to something in a lube or soap or something, I didn't want this to take over my life but it has. I can't exercise so I can't lose weight and then on top of it i have been stress eating because of this and I feel horrible for my boyfriend because I can have sex, it isn't painful at all but if i am already flaring up I can't have sex and its almost every night, and the night I'm not in pain I don't want to have sex to enjoy the feeling of not pain cause sex doesn't necessarily cause it but any sort of touching can trigger a flair up. I am so discouraged with how disgusting I feel and how much pain I am in. I still invalidate my own pain because my mother has endometriosis and my pain isn't as severe as hers was when she was young. It is not something you can talk about and get ideas for. I was told to find a support group so I guess here I am. I couldn't do one on Facebook like I have found because I am not somebody who wants their medical history for everyone to see, id rather be anonymous. I'm sorry I'm rambling. Sad


Posts : 1
Join date : 2019-02-21

Back to top Go down

I'm sorry im rambling Empty Life is for living

Post  scrumptuous Fri Mar 08, 2019 7:34 pm


Oh gosh you are not rambling ,but simply expressing all the emotions you are feeling inside from hurt, fear, anger, frustration just to mention a few.

I myself have suffered with Vulvodynia for 28 years and have been through everything you have mentioned, including numerous surgeries to cut bits away and a vulval skin graft, as that is what they used to do then. Now I do feel that there is a little more understanding, depending on the particular health care professional and many different medications and therapies to try.

I think that one of the most confusing things, is that there is so much out there and we are so desperate to try and resolve the situation, that we do not know where to start. I can relate to this when years ago, I was advised by the health shop to take garlic capsules, but after taking so many, I then became sensitive to garlic, which meant that I could not even eat garlic bread!!

Still maintaining my relationship with my husband, was an extremely important element to me being a woman and although it used to flare up for a few days after intercourse, I was able to enjoy it at the time and it was my choice. Times when I was unable to have a sexual relationship, being young and in our thirties, I used to instigate a game, where I pleasured him. Although this may not be ideal for many, for us, it meant that we were still very close and I was at least in control of some part of my relationship, as a wife and a woman.

Over the years, I now live a full and varied life and are able to concentrate on other areas, which in time, I know you will be able to do to.



Posts : 5
Join date : 2012-09-12

Back to top Go down

Back to top

Permissions in this forum:
You cannot reply to topics in this forum