Log in

I forgot my password

Similar topics
    Latest topics
    » 7 months since the diagnosis
    An absolute success story- please read! EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    An absolute success story- please read! EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    An absolute success story- please read! EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    An absolute success story- please read! EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    An absolute success story- please read! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    An absolute success story- please read! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    An absolute success story- please read! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    An absolute success story- please read! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    An absolute success story- please read! EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    An absolute success story- please read!

    Go down

    An absolute success story- please read! Empty An absolute success story- please read!

    Post  Persevere1990 on Fri Mar 08, 2019 10:57 pm

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- visited the sexual health clinic so often in so much pain and panic and tears they started to refuse to see me anymore. I was always told I had to make an appt with the specialist doctor whom everytime I saw told me to apply a numbing gel and that was it. It did no work.

    The pain was all the time- a constant ache at best, a piercing stinging at worse after peeing, exercise, stress etc. In the end I couldn't go to work or make any social plans, the pain was too much.

    Enough was enough- I went so see a private gynaecologist- Dr Adam Roden. He suspected I had caught HPV from my boyfriend (who at the time I had only been seeing for a few months). Whilst most people never know they have caught it unless they get genital warts (80% of sexually active population have contracted HPV at some point) some have a hard time fighting the virus causing inflammation of the vulval glands at the 5 oclock and 7 oclock position which is where my pain was. Lo and behold a smear test came back positive for HPV (not a strain related to cervical cancer thank god) and he advised me not to put a thing on the area. To take nortryptiline in low doses daily to act as a painkiller for nerve pain. It worked wonders- I was pain free most of the time apart from flare ups in time of stress, dehydration or illness. He advised within 8 months to a year my body will have fought off the virus and I would no longer have the inflammation.

    He was right, I was off the nortryptiline within 8 months and have been completely pain free for over a year and a half. At the time I remember thinking I couldn't imagine the pain would ever go and now I can barely remember the pain.

    My advice: 1. do not give up 2. only take oral medication 3. do not google- it will become your worst enemy!

    Persevere1990

    Posts : 4
    Join date : 2017-02-22

    Back to top Go down

    Back to top

    - Similar topics

     
    Permissions in this forum:
    You cannot reply to topics in this forum