Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Hope to all my suffering ladies EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Hope to all my suffering ladies EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Hope to all my suffering ladies EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Hope to all my suffering ladies EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Hope to all my suffering ladies EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Hope to all my suffering ladies EmptySat Jun 15, 2019 5:22 pm by mary jane

Hope to all my suffering ladies EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Hope to all my suffering ladies EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Hope to all my suffering ladies EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

Hope to all my suffering ladies

Go down

Hope to all my suffering ladies Empty Hope to all my suffering ladies

Post  ringostarr26 Fri Oct 23, 2020 12:04 am

Hello Beautiful Ladies. I think my last post on here was in 2012. I was moping about my 1 year anniversary with the "best boyfriend" I'm happy to state I lied and we broke up LOL but I am happily married to the "BEST HUSBAND" I've been dealing with some health issues (not related to V) and I was reminded of this forum and how it was so helpful to me years ago when I was suffering. It made me want to post because it seems like when we start feeling better we disappear.

To everyone who is recently diagnosed. THERE IS HOPE. I Have been pain free for over 5 years. Close to 10 even. Yes I have some bad days but for the most part..Vulvodynia is out of my life (or at least on a very long hold). I wanted to share a few things that have helped me over the years. I had to travel to get an answer to why I was in pain.

My OBGYN prescribed me Amitriptyline at an increasing dose over several months when i first started experiencing symptoms. I followed protocol and had no success. She then told me there was no much more she could do. I bounced around from doctor to doctor until I finally booked a flight and went to the Centres for VulvoVaginal Disorders in Washington DC. I saw Dr. Andrew Goldstein and I was properly diagnosed within the first 10 minutes.

I have Hypertrophic Pelvic Floor Dysfunction. My Muscles are just TOO DARN TIGHT! He said it was completely treatable I just needed to put in some work. He looked into his database and connected me with a pelvic floor physiotherapist in Toronto where I am from.

She changed my life. But not without some additional help. A pain specialist prescribed me rectal suppositories with lidocaine, diazepam, and one other drug that was compounded. I used those when my pain was at its worst to help relax the muscles. I supplemented that with weekly physiotherapy. I had to use dilators at home as well. It was a difficult road to recovery. My pain was bad. I couldn't wear pants, the burning spread and I was also having bladder issues.

I did not give up. I didn't miss an appointment. I did my "homework" and I started getting better. I had and still have flare ups once in a while, but i have the tools to control it.

I understand that this is not going to work for everyone BUT please know that there are people who want to help and will help if you seek them out.

I hope you are all staying safe during covid. Have hope. It can and will be better.



Posts : 59
Join date : 2012-07-31

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum