Vulvodynia Support
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    » Hope to all my suffering ladies
    Forum now optimized for viewing on your mobile! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    Forum now optimized for viewing on your mobile! EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    Forum now optimized for viewing on your mobile! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    Forum now optimized for viewing on your mobile! EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    Forum now optimized for viewing on your mobile! EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Forum now optimized for viewing on your mobile! EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Forum now optimized for viewing on your mobile! EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
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    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Forum now optimized for viewing on your mobile! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


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    Post  Sebby (Admin) Sun Feb 27, 2011 12:03 am


    Forumotion have now enabled the forum to be optimized for veiwing on your smart phone (andriod, blackberry, Iphone etc)

    Its still in process so you can view all posts just not post yourself yet..will anounce as soon as posting is enabled

    I have just tried it on my andriod phone and it looks great Smile can't wait for the posting to be enabled

    Sebby (Admin)
    Sebby (Admin)
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    Post  naomi Sun Feb 27, 2011 10:59 am

    you're a technical whizzkid!!
    naomi
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    Post  Sebby (Admin) Sun Feb 27, 2011 3:17 pm


    Wish I could take the credit! its forumotion, they messaged me in the admin panel bout it..I looks cool on the mobile tho.

    I am looking to getting my own domain name for the forum, doesnt cost much per year like a tenner I think..better check that out.

    Think it would look more professional to have the address as www.vulvodyniasupportforum.com or net or whatever I can get..People will still be able to access it under the old address..Im wondering now if I can get rid of the Forumotion.com at the top and make the actual forum name bigger.

    I may also disable the adds as they get on my nerves and hopefully I should be able to add my own links to the websites I actually want to advertise..

    For some reason Google keeps adversting stuff about eating disorders! as well as advertising bloody money grapping sites that I just dont trust

    Sebby (Admin)
    Sebby (Admin)
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    Post  Sarah001 Mon Feb 28, 2011 7:57 pm

    If you buy a domain name Sebby try 123reg.co.uk they are very reasonable but make sure you opt out of the "who is" section or your name, address and vulvar history will be available for all to see!!
    Sarah001
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