Vulvodynia Support
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» Hope to all my suffering ladies
New member: My story EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
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» By no means cured, but doing much better!
New member: My story EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New member: My story EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New member: My story EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New member: My story EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New member: My story EmptySat Jun 15, 2019 5:21 pm by mary jane

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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New member: My story EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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Post  Emmie0986 Tue Apr 19, 2011 4:24 am

Hi all,
My name is Emmie and I am twenty years old and was just diagnosed with vulvodynia about a month ago. I am writing this to put my story out there so that if anyone has gone through similar experiences they can relate and use my story as some support.

It all started when I met my boyfriend of about a year now (it took me a year to get a right diagnosis). I was perfectly fine all my life until about a week after I was first intimate with him. I was itchy and went to the doctor who diagnosed me with a yeast infection and prescribed me Diflucan. However, the itching did not stop after taking my medication so a week later I saw an OB/GYN to be tested for clamydia, gonorrhea,trich, yeast, and BV. It turns out I still had a yeat infection so once again they prescribed me diflucan, which didn't work. After this I started to have horrible bladder pains and urgency and urning of my urethra. I was then tested for herpes, which came back negative, and I was also told I may have IC (which to this day I might). Now by this time I feel disgusting for being tested for so many STDs but I refused to give up. I traveled from doctor to doctor and got 0 answers until I saw Dr. Nyerjesy's group in Philadelphia. They gave me gabepentin for my nerve endings and they also prescribed this MIRACLE CREAM!!! It is an antidepressant/muscle relaxer cream that instantly takes the itching and burning away. I have finally found some relief and can enjoy my love life now and also enjoy going out and not worrying about scratching constantly. If anyone needs some advice feel free to contact me. I hope that this helps and I am glad I have found a place for support and a place to share my year-long struggle with this disorder that takes forever to diagnose.

Emmie0986

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Join date : 2011-04-19

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Post  lolainslacks Tue Apr 19, 2011 11:35 pm

I'm glad to hear you finally found a solution to your problem. What is the name of this miracle cream? It sounds amazing, I'd like to ask my gynecologist about it when I see her next.

lolainslacks

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Join date : 2011-04-18

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Post  Emmie0986 Wed Apr 20, 2011 2:20 pm

My cream is amitriptyline/baclofen cream and I use it twice daily. It really works well and it can be used up to four times daily so if you feel itchy still after using it twice you can use more. I hope this helps!
-Emmie

Emmie0986

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Post  lolainslacks Wed Apr 20, 2011 2:45 pm

Thank you! I'll be sure to mention it to my gyn. So does this cream numb you? Does it make pressure and penetration less painful?

lolainslacks

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Post  Zazu Wed Apr 20, 2011 2:47 pm

You might also want to ask about a gabapentin/lidocaine compound cream. Some people have had great success with it.

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

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Post  Emmie0986 Wed Apr 20, 2011 6:25 pm

The cream that I take doesn't numb but it makes the after effects of sex (a little pain and pressure) much less noticeable. You can still feel and enjoy penetration but it takes away all the itching and burning. And to Zazu, yea I heard the lidocaine works really well but if your anything like me stay for away from a mixed benadryl ointment. I almost was put on lidocaine but my doctor thought benadryl would work better but all it did was burn me really really bad.

Emmie0986

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Post  Zazu Wed Apr 20, 2011 7:02 pm

I personally also found that the gabapentin/lidocaine cream caused more irritation and didn't make penetration possible, but different things seem to work for everyone. I'm glad you've found something that works for you!

Zazu

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Location : Canada

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