Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Pelvi Pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pelvi Pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pelvi Pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pelvi Pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pelvi Pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pelvi Pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pelvi Pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pelvi Pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pelvi Pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pelvi Pain

4 posters

Go down

Pelvi Pain Empty Pelvi Pain

Post  Vivian Tue May 31, 2011 6:13 pm



.



I feel like I am at the end of my world.... Do any of you ladies feel depressed and have the why me? There are days I struggle to put one foot in front of the other. just when things seem to be going better something else comes up. That brings me to this question, do any of you have pelvic pain and feel sick to your stomach? This is where I hurt my whole vigina feels like it is on fire somedays other days just around the opening and then there are days that my anus itchess and burns, feels like hemrroids on one side, my back hurts and I feel bloated and to top it all off I am going through menopause..................................
Sorry to vent but I just had to get it out there.. This whole thing has just taken a toll on my life, I am tired and have no energy don't want to do anything except be alone and feel sorry for myself.
And yes I too have second guessed my doctor.. But she is the head of the Pelvic Pain Clinic at UNC Chapel Hill and has helped me soo much. Sometimes i think I have a yeast infection, herpes, hpv, you name it and it runs through my mind that is when i almost go off the deep end. I am very happy married but to set my mind at ease she has tested for everyting under the sun and all is negative. This is a mind of matter thing. And believe me you can drive yourself crazy.. and I almost have.........................
Thanks for letting me vent!!!!! It take a little pressure off of my dear husband.
Vivian

Vivian

Posts : 2
Join date : 2011-01-07

Back to top Go down

Pelvi Pain Empty Re: Pelvi Pain

Post  Sebby (Admin) Tue May 31, 2011 6:28 pm


Hi Vivian and welcome to the forum

Dont apologise for venting we all need to do it!

I to have felt like it is the end of the world and even didnt want to go on anymore. Some days I just cried and didnt see the point in everything else in my life even the good things.

I do often get sickness and nausea. I get it mostly when Im very anxious along with cramps and have been unable to eat. Im not sure if this is just my anxiety or some part of the Pelvic Pain. I to get bloated am very sensitive to the foods I can eat and have always had lower back pain problems. The back pain I know is linked to Chronic Pelvic Pain

What treatments are you on at the moment?

I am on 400mg of Pregabalin and am doing biofeedback

Take Care and thank you for sharing with us



Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

Pelvi Pain Empty Re: Pelvi Pain

Post  Joolibee Tue May 31, 2011 7:11 pm

Hi Vivian, It's really OK to vent your feelings - that's what we're here for. My impression is that most people have other types of chronic pain in addition to vulvar pain. I also am going through menopause and have had lots of other symptoms, including severe migraine, exhaustion, arthritic neck and bloating (which I think is a common symptom). I had very heavy periods, but thankfully, they have stopped now and I don't feel quite as exhausted lately. Just lately, my body seems to be reacting to all kinds of things that never bothered me before and my skin has become very sensitive. I'm lucky that I've never really been prone to depression, but I do get anxious and occasionally have days when I just cry all day and want to lock myself away. But I have a very understanding partner, a good family and lots of things to be thankful for, so I don't tend to stay 'down' for long. I've done some research into the psychological effects of pain and it does seem that, when we are feeling anxious and depressed, this feeds into the pain and makes it worse. I know what you mean about the symptoms. I find it hard to understand how my symptoms can vary and I still find it hard to believe that there is nothing to see down there. It is important to try to remain as positive as possible. I do very gentle relaxation exercises and abdominal breathing, which always make me feel better. I think that whatever makes you feel better, you should build into your routine, whether it's exercise, mediation or relaxation etc. Anyway, nice to hear from you. I hope that the forum helps you. Smile

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

Back to top Go down

Pelvi Pain Empty Re: Pelvi Pain

Post  noni Mon Jun 06, 2011 12:07 am

Hey Vivian

Yes vulvodynia can make you feel like you are going crazy and losing your life in the process. Girl I was there for 5 months!!! I now have made peace with my vulvar pain...I take amitriptyline so some days I feel almost ``normal``.

You can vent here anytime !!!!

We know the struggle. The depression, desperation, hopelessness.....isolation of this condition.

Hang in there!

What meds have you tried ? Did any of them work for your pain ?

noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

Back to top Go down

Pelvi Pain Empty Re: Pelvi Pain

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum