Vulvodynia Support
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» Hope to all my suffering ladies
anyone heard of this lady??? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
anyone heard of this lady??? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
anyone heard of this lady??? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
anyone heard of this lady??? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
anyone heard of this lady??? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
anyone heard of this lady??? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
anyone heard of this lady??? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
anyone heard of this lady??? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
anyone heard of this lady??? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


anyone heard of this lady???

+2
Sarah001
naomi
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anyone heard of this lady??? Empty anyone heard of this lady???

Post  naomi Sun Jun 13, 2010 7:11 pm

Dr Marjorie Crandall....she is a former yeast/thrush sufferer. She researched for years and her theory as to how recurrent yeast infections lead to constant rawness, soreness, pain etc with the yeast spores burrowing deep into the skin layers.

http://www.yeastconsulting.com/index.html

Last year I spoke to her a lot over the phone and email, when I was in the worst state of mind. She is a lovely lady and so so helpful. I could not continue with her 10 step treatment as I lost my job and in order to claim my benefits (housing/employment support allowance) I had to follow traditional plan of treatment in the UK, gota love the UK. Also daily doses of fluconazole made a lot of my hair fall out, luckily I had lots so it wasnt too bad.

Hence the reason why I am back to square one! If the current gynae consultant can not help me I will continue with Dr Crandalls theory.

Message me if you want more info regarding Marjorie (she has a strong accent so ytou need to concentrate whilst on the phone and vice versa! But shes worth a try...have tried everything else!

Im babbling now... thinking of us all xxxx
naomi
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Post  Sarah001 Tue Jun 15, 2010 1:27 pm

I've read this woman's information before but I also read about a post by a woman who said if you have a biopsy of the area done it will show yeast spores under the skin if that's the case. I would expect itching with yeast though but I may be wrong. Question
Sarah001
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Post  Sebby (Admin) Tue Jun 15, 2010 2:00 pm

I have heard of her, but havnt yet read up on all the theory, I will be taking all my theories to my vulval clinic....they gonna luv me lol

Thanks so much for this info and link


Sebby
xxx
Sebby (Admin)
Sebby (Admin)
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https://vulvodyniasupport.forumotion.net

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Post  naomi Wed Jun 16, 2010 5:10 pm

hehe! bring it on!!

you should see the size of my lever arch folder I take along with past consultants/research etc..... Laughing you can either laugh or cry sometimes with this cant you!!?!
naomi
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Post  Sebby (Admin) Wed Jun 16, 2010 7:27 pm

Oooh a lever arch file! I will start creating one now!!! Better than my scribbled scraps of A4 that squalor in my handbag Laughing
Sebby (Admin)
Sebby (Admin)
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Post  lisa98 Sun Aug 01, 2010 6:56 am

I went to a very helpful Gynecologist (I'm in Australia) who specialises in vulval dermatology. She was in the process of conducting research into chronic yeast infections where the candida is not prevalent enough to be detected by regular swab tests, but where the body has developed an oversensitivity to candida so reacts with burning pain and inflammation even where there is the slightest trace of the yeast. she sent my swabs and biopsies away for fancy testing, but has since abandoned the theory in my case, as i failed to respond to a heavy course of treatment with anti fungal medication. So she deduced my condition is more likely to be neuropathic pain related to pain in my lower back, so has sent me to a physiotherapist and put me on antidepressants.

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Post  Sarah001 Sun Aug 01, 2010 11:21 am

Lisa do you have visibly inflamed skin? I'm just wondering how many women who have pain related to back problems actually get the redness?
Sarah001
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Post  lisa98 Mon Aug 02, 2010 9:44 am

no, there is no visible inflamation. In the first few years, there was some redness and inflammation, and at really bad times the skin even broke. My thoughts on this is that the thrush/ UTIs triggered vulvodynia as well as dermatological sensitivity- since eliminating soaps, harsh detergents, swimming in chlorine and a bunch of other irritants, my skin appears normal and healthy.

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Post  naomi Mon Aug 02, 2010 3:09 pm

I think if these UK docs cnt help im moving over seas...move into Dr Crandalls spare room...think she'll mind?!!!! Very Happy

Oh I wish she was my auntie and would take over my healthcare!!!
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Post  Sarah001 Mon Aug 02, 2010 7:04 pm

Funnily enough I was reading something the other day that said French women get automatically referred to women's health physios after each baby they have to head off gynae problems, now they're just over the water from us so why is the UK so crap??
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Post  jules Thu Aug 19, 2010 3:23 am

Come to America. You pay for your health insurance (employed people)..but with that, you get great care. I pay 820.00 every month for health insurance (pretax). this is for my whole family (4 of us). If I had 8 kids, it would cover all. Single coverage would be much cheaper. my employer pays the rest. i do have to pay 20.00 co-pays for office visits..but, i have a max of 800.00 a year. i have already made my max, so no more copays. my dental 100% coverage is 45.00 for the family each month. sounds like a lot of money..but, i get to see any doctor w/in reason and don't have to wait forever. i have 100% coverage for hospital etc. if you are not employed and have little money, you qualify for medical assistance...which pays for the same care at a 100%. then there are the working poor. people who work, make too much for medical assistance, but they can't afford health care cause it's too expensive. they are barely making ends meet. our system certainly is not perfect. pros and cons to both, i suppose. So, there is your lesson for today on medical care in America. Smile






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anyone heard of this lady??? Empty yes i have and consulted with her

Post  Melissa777 Sun Jul 10, 2011 8:57 pm


(copied and pasted from the yeast infection section)

you know this is all theory until its proven- this is my opinion anyway.


See here is what I did- i contacted the Lady of the yeastinfectionadviser.com page
the "expert on yeast"
and while she constantly reminded me I owed her money $30 ever 1/2 hour or $1 a min afterwards
I started to feel- maybe she is in this for the money

I did buy her packet-i read it to its entirty- all of it.
I even gave it to my GYN who I talked into giving me an RX for diflucan
initally i was supposed to take 200 mg a day every day for a month
and I started this- by the 6th day, my tongue became pale- NOT white coated- it wasnt yeast in my mouth
I started to feel "crazy" yes this amount of diflucan did this to me
all the while- before this i had been on the candida diet for 5 months or so- and doing natural yeast cleansers like candi gone, coconut oil, undeclynic acid, using dr mccombs yeast cleansing theory

anyow Im NOT convinced yeast is the problem
not only have I had yeast cultures
I have had specific DNA candida cultures
as well as the GEN PAP (twice) which tests for many strains of yeast

Oh and i even did boric acid for 1 and 1/2 months- which is what left me in this condition- totally irritated my skin
my internal med doc thinks it gave me what may be like a chemical burn

so i think what im trying to say "red yeast" or intercellular yeast is an interesting theory
but until someone proves to me this is yeast related- im no longer convinced
especially when diflucan and other natural antifungals have done nothing for me-
nor other people on here

it is frustrating that the lady who formed the yeast infection adviser page wont give out info for free
when information really shouldnt be paid for
she will charge you for everything
and you really get little free info on her site
so this makes me skeptical

yes i think she should charge for her packet
but to give someone advice- NO i dont think she should charge
and she shouldnt try and convince us that we need to talk our doctors into giving us antifungals when they can do more harm then good
I hope you all know these antifungals can create resistance of fungal infections just like overuse of antibiotics can
so people- be careful
I ended up only taking the diflucan for 16 days
because when i saw my healthcare pract here- he said Melissa you dont have yeast, and really you need to get off this stuff before it does more harm then good!.

Melissa777

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Post  Melissa777 Sun Jul 10, 2011 11:21 pm

you know- come to think about it, the more i read from people whom come to this conculsion have either had a consult with dr crandall or they have talked to someone whom talked to dr. crandall.

Maybe its possibly were being kind of 'brainwashed" to think its all a yeast issue

I think VV is way more complex than yeast
after all were supposed to have yeast in our vagina- as long as its balanced with the good bacteria
we even have bacteria like gardnerella (a BV culprit) in our vaginas
but if something gets off- like our pH or what have you
than an organism can take over

i often thought white discharge was abnormal- now i know it can be normal depending on what part of your cycle your in.

but I do think Dr Crandall is credible and knowledgeable. i just dont think you should have someone make a diganosis over the phone... you need examinations/ tests
because if you can't prove its yeast- you might actually make things worse by using antifungals

I would say- try a natural approach first- if your unsure and change your diet
for me the yeast free diet only changed my weight
so im smaller now
but i really am starting to think my VV which is on the left side of my entrance
was caused by overuse of products like boric acid

and prob an allergy to a normal amount of yeast
and im still undecided if i want to do allergy shots for it
as i heard it has made some people worse

but im def allergic to yeast and mold
=(

Melissa777

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Post  naomi Mon Jul 11, 2011 8:31 am

yeh u do get obsessed and brainwashed into finding a cure.... its about the only thing that keeps u going.

good luck on getting sorted melissa

xxx
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Post  Melissa777 Tue Jul 12, 2011 6:56 pm

i meant i did consult with dr crandall on yeast consulting services- not on the yeastinfectionadviser web site. i made a mistake on that lol

have a good day

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