Vulvodynia Support
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» Hope to all my suffering ladies
Any success with this? - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Any success with this? - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Any success with this? - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Any success with this? - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Any success with this? - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Any success with this? - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Any success with this? - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Any success with this? - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Any success with this? - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Any success with this?

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Sarah001
Rose86
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Post  Sarah001 Sun Feb 19, 2012 11:45 am

I can just imagine that conversation with my already baffled doctor! Rolling Eyes Seriously though I would only consider it if learning to relax the PF and having trigger points removed didn't do the job because botox doesn't deactivate trigger points so it's another band aid kind of solution with a short life span plus it doesn't retrain the brain to stop clenching so the second the botox started to wear off I'd be clenching again and back to square one. I've read posts all over online from women who've tried botox and never seen anything positive, I think a lady on here tried them and it didn't work because it's more for localised provoked pain as opposed to generalised unprovoked so probably not a great option for me anyway. Another things that would worry me is injection sites can easily turn into yet more trigger points and I really don't need any help in producing trigger points! Are you thinking about having some done?
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Rose86 Sun Feb 19, 2012 6:07 pm

Hi Sarah,

Yeah I am considering it. Just need to find a doctor in London who does it. The research in the area is pretty good for localised provoked V, which is what I have. I know it's short term, but that's probably a positive. I think it might help me find out if the muscles are really causing the VV. If I have it done and things even slightly improve, even in the short term, then i'll know the muscles are part or all of the problem. I'm just not able to stop clenching them. I just cannot seem to remember to relax them often enough for it to make a difference at the moment. Botox has such a high success rate for vagismus too. I know it's a new treatment in the UK, so i'm not sure how easy it is going to be to find someone to do it. I don't even know where to start! I don't want to ask my GP. I'd rather find a doctor and make contact with them, then once I have a name approach my GP. I might not even tell her it's botox, just that this Dr is a a specialist in V. I'm fed up with my GP at the moment to be honest! She doesn't have a bloody clue!

Rose86

Posts : 51
Join date : 2011-06-23

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Post  Sarah001 Tue Feb 21, 2012 7:13 pm

My doctor is the same, referring me for stress incontinence when I have the opposite problem just says it all really. I don't really know what to suggest, I'm not sure what kind of doctor it would have to be either. Anyway keep us posted and remember if you check in every minute or so what you're doing with the pelvic floor and then relax it every time eventually it will stay relaxed for longer and longer. It's not easy, I've got probably a year or more of retraining everything to work correctly because I'm such a mess so I know how daunting it seems. Good luck with your botox search.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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