Vulvodynia Support
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» Hope to all my suffering ladies
I have questions! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I have questions! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I have questions! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I have questions! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I have questions! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I have questions! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I have questions! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I have questions! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I have questions! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I have questions!

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Post  KA12 Mon Feb 13, 2012 10:16 am

Is it possible to have two different types of vulvodynia?

I just starting having this about 6 months ago and it is getting worse and worse. Two things trigger it. SEX, of course, and bath or soap stuff. However, when it is the bath or soap stuff I get blisters that don't pop and go away in 48-72 hours. I can hardly move and when I do everyone asks me whats wrong because I walk funny. Its very very painful.

The sex pain comes any time I have pressure down there. That means Sex, gyno visits, or even just cleaning inside. The pain sucks and feels raw. It gets worse the more press that is put (ex: Gyno visit is hell). The only time it has greatly messed with the way I walk is with gyno visits or before I realized the cause and had multiple positions sex.

I believe the trigger was a sacrum injury I got around the same time period.

Is it possible for me to have two different types? I feel like I do but since I am with a doctor who does not know anything about this (she is great and willing to learn!!) I need to ask around.

BTW- I do not have herpes blisters! I am STD and everything else you can test for culturally and blood work wise free!!

Thank you for your help

KA12

Posts : 1
Join date : 2012-02-13

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Post  Sarah001 Mon Feb 13, 2012 12:54 pm

Yes, I have both generalised unprovoked Vulvar pain and Vulvar Vestibulitis so you can have both kinds together. I'm not sure about those blisters you mention though, I haven't come across that as a symptom unless there's an infection which you say there isn't or perhaps a reaction to something?
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Aussie Tue Feb 14, 2012 1:43 am

Don't wash inside it will make it worse. Perhaps see a dermatologist for the blisters.

I have/had both. provoked and unprovoked Soap triggers me awfully. A stinging feeling. I use something called moogoo. Google it. So gentle and smells nice. Other than that the dove sensitive body wash is pretty good but don't put it in the bath.

Pretty much gone now (I hope it lasts) about 80-95% depending on the day.

GOOD LUCK!!

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  shortstuff Wed Feb 15, 2012 11:21 am

KA12 - I wash with Aveeno baby soap with oatmeal. It's the only wash I can find that does not irritate me. I tried the Dove sensitive, but it made it much worse, even though that was the only soap I'd ever used previously down there. Whenever my pain is really bad, I also bathe with Aveeno Oatmeal Bath. Lukewarm water, not hot water (which may irritate it more I've heard).

Maybe some of these tips could help you too...

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States

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