Vulvodynia Support
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» Hope to all my suffering ladies
Newly diagnosed and praying!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newly diagnosed and praying!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newly diagnosed and praying!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newly diagnosed and praying!  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newly diagnosed and praying!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newly diagnosed and praying!  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newly diagnosed and praying!  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newly diagnosed and praying!  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newly diagnosed and praying!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newly diagnosed and praying!

3 posters

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Newly diagnosed and praying!  Empty Newly diagnosed and praying!

Post  Lauren. Wed Feb 15, 2012 4:32 pm

Hi I'm Lauren and a newbie!

I was diagnosed with Vulvodynia about 2 weeks ago and within those 2 weeks I guess I've tried to convince myself that I'm fine, have no pain, and haven't got this condition, which is definitely not the case. I'm so glad that I came across this forum, because it's so comforting to see that other people are going through the exact same thing I am, I thought I was the only one. It’s so refreshing seeing women stand by and advise each other. I've been feeling the burning, aching and irritation symptoms for about 6 months now and am so scared. I never thought that there would be anything wrong with me. I’m scared that I’ll never be cured and won’t be able to feel comfortable in myself again. I’ve tried Aveeno cream, Lidocaine Gel and a numbing cream but I don’t really understand why they give us that seeing as it’s only temporary, it almost builds up your hopes but when the pain comes back it crushes them again. I have physio – therapy in a few weeks so hopefully that will help a lot. If anyone has any tips or anything at all that has remotely helped them please share I would be so so grateful, a day without pain or stress would be bliss!



Lauren.

Posts : 2
Join date : 2012-02-15

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Post  noni Wed Feb 15, 2012 11:41 pm

Hey Lauren!

So glad we can be here for you. And for one another.

Honestly, the biggest thing for me was acceptance that I have had this condition for 1.5 years now and it took me atleast 8 months to accept that I have this and that I may have to live with it for the rest of my life. Hopefully not, but Im thankful my meds are working and I have minimal pain, most days.

The ladies on here have found things that really work for them:physio, diet modifications, lidocaine, meds...etc etc....its all about whatever works for you, or what combo works for you.

I am on Amitriptyline and I dont experience the nasty side-effects alot of the other women have had with this particular med, such as: drowsiness and becoming ''zombie-like''....

Anyways, welcome!!
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  Lauren. Thu Feb 16, 2012 10:43 pm

Hey Noni!

Thank you for your reply, it means a lot Smile I know it was literally such a shock, and still is. That's so good that you have reduced pain now, was there anything in particular that helped you the most?

It's such a nuisance that there isn't just one cure, life would be so much simpler! Some days are good but then other days the pain just won't stop, it's constantly on my mind. I feel that it's affecting my emotions as well, usually I'm such an upbeat happy girl, but even reading some of the messages in the forum caused me to well up and cry, I know how silly!

Anyway thank you for your welcome!

Lauren.

Posts : 2
Join date : 2012-02-15

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Newly diagnosed and praying!  Empty Hi Lauren!!

Post  sadone Thu Feb 16, 2012 11:13 pm

Hi and welcome!!

You have found a great group of wonderful caring ladies here. I just posted a response, but it didn't take I don't think. Anyway, at the risk of repeating myself lol... I wanted to tell you that Lyrica is a medication that worked well for me (150 mg at bedtime). I also sit on a donut cushion in the car and wear loose clothing. I was burning all the time when this first started 3 years ago, but I'm much better now! I have tried numerous treatments and would be happy to write more if you'd like feel free to msg me. You will get better- it does take time and some trial and error. You're in the right place- this forum is great! Take care and keep us posted and ask away with any questions! Smile

sadone

Posts : 53
Join date : 2011-12-12

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