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» 7 months since the diagnosis
COCONUT OIL cured me.  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
COCONUT OIL cured me.  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
COCONUT OIL cured me.  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
COCONUT OIL cured me.  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
COCONUT OIL cured me.  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
COCONUT OIL cured me.  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
COCONUT OIL cured me.  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
COCONUT OIL cured me.  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
COCONUT OIL cured me.  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


COCONUT OIL cured me.

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COCONUT OIL cured me.  Empty COCONUT OIL cured me.

Post  britneyb93 on Thu May 24, 2012 12:58 am

for the past week I have been ingesting 2 tablespoons of coconut oil.

by 3 PM day 1 I was pain free.

I was the girl in class crying and running out of the classroom because I could not sit down on those stupid plastic chairs for longer then 15 minutes.

I could not have sex, no tampons, no tight clothes, no underwear, no baths, no contact to my privates at all.

I am pain free. PLEASE go buy coconut oil I got mine at the Vitamin Shoppe in Manhattan Beach Nutiva brand under $12.

I tried Zmax, rephresh, vagisil, all types of washes, lidocaine, aloe vera, ice, pelvic floor muscles, chiropractor.

Everyone is different, but this worked for me, I had to share since I have been visiting this site for months getting tips and advice.


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Post  Chelsea1991 on Fri May 25, 2012 6:59 am

Hi, I was wondering what type of coconut oil did you use?

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COCONUT OIL cured me.  Empty Thank you!

Post  karris87 on Thu Jul 26, 2012 4:50 am

After reading your post, I went out and bought some coconut oil pills at Vitamin World, and I take about three of the gel pills a day. It has really improved my pain with urination. Not 100%, but like 75%. Thanks so much for posting about it!

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Post  Gizzy on Mon Oct 01, 2012 4:01 pm

With the Coconut oil,how many times a day and how much do you take it? Very Happy
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COCONUT OIL cured me.  Empty Symptoms?

Post  katie220 on Mon Oct 01, 2012 6:33 pm

I want to try that. I have a sensitive stomach though. Does it give you any stomach issues when you take it? Thanks for the advice btw.

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Post  Aussie on Tue Oct 02, 2012 4:39 am

I use coconut oil as lubricant. I would be interested to learn how long have you been pain free from using this method?

I have not tried eating the stuff but find it helps greatly with yeast issues when I use it as lubricant Smile

Thanks,

Claire

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COCONUT OIL cured me.  Empty Coconut oil

Post  Char29 on Fri Oct 05, 2012 1:30 am

Hi there
I was just wondering - you said you use coconut oil and it has helped - did you ingest it or use it as a lubricant?
I have had this issue my whole life - and things are really getting to a head in my marriage; I have tried everything!!! I am really desperate!!
I look forward to your answer in anticipation and will be going to buy some ASAP!!!
I really hope to have the same result as yourself!! Crying or Very sad

I have just found this site - out of pure desperation!!!! I am tired of living like this and have no idea what to do!!
Thanks
Charmaine xx

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Post  britneyb93 on Mon Nov 05, 2012 10:49 pm

I incorporated it into my diet,

Used it as an oil in my vegetable stir frys, mixed 2 tablespoons in cranberry juice, spread it on toast with butter. And yes ingest it with food or it will make you nauseous!

It can be used as a lubricant. I should also add that I used it for about 3 weeks and then I stopped, no symptoms since 10 days ago and I have been ingesting it everyday and I'm pain free again.

I have probably ingested 2-3 tablespoons a day when I take it.

That's about it guys.

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Post  Ceriane on Tue Nov 06, 2012 8:05 pm

Bought myself some coconut oil and I'm going to try it!!!

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Post  tamtam on Sat Dec 22, 2012 3:40 am

I am going to try it. I am now using a compound it does help but does not get better. I just joined this group so glad I can talk to woman about the same issues. Thanks so much!

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COCONUT OIL cured me.  Empty any cocnut updates

Post  sherunsandknits on Thu Jan 17, 2013 3:00 am

Just wondering from everyone who was going to try it - any positive results?

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COCONUT OIL cured me.  Empty Coconut Oil

Post  hojolly on Sun Jan 20, 2013 9:57 pm

I'm shooting the moon and going for the coconut treament. No sex in 11 years because of this condition. My husband is a saint! Finger & toes crossed. Exclamation

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Post  dmilly01 on Mon Mar 25, 2013 4:20 pm

I use coconut oil to soothe my vulva every day and if very bad, I use it with lidocaine so doesnt burn as much as lidocaine can sting for few mins when first applying it. But i havent ingested coconut oil, So i will have to give it a go. I get mine from Tescos in the UK. It is pure organic coconut oil and it says on it that you can use it as a spread. I keep mine in a cupboard as goes hard in fridge. Probably because it is an oilx

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Post  catchme on Mon May 20, 2013 11:01 am

Wow, this is quite surprising! But I'm gonna try it too, it's worth a shot. I wonder what it is in it that could ease the pain by eating it. Thanks for the tip! Smile And really happy for you that you found some real help!

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Post  Alana3 on Mon May 20, 2013 12:36 pm

Just saying be very careful with that. If you ingest it it has.a ton of calories and makes you break out. If you put it down there it can cause bacterial infections and yeast. I asked my doctor he said maybe but sometimes it can cause more problems in the long run. If you use it everyday. I've heard of people using it with success so it's worth it but it can cause worse problems so just.be.very careful Smile

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Post  catchme on Mon May 20, 2013 4:41 pm

Alana3 wrote:Just saying be very careful with that. If you ingest it it has.a ton of calories and makes you break out. If you put it down there it can cause bacterial infections and yeast. I asked my doctor he said maybe but sometimes it can cause more problems in the long run. If you use it everyday. I've heard of people using it with success so it's worth it but it can cause worse problems so just.be.very careful Smile

that's why living with this illness is so difficult. there's so many different things that has helped different people that you don't know where to start, don't know what you dare to try 100 % and so on. It feels like trying different things but not full on hasn't gotten me anywhere. Shocked

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Post  Alana3 on Mon May 20, 2013 6:50 pm

We'll oils aren't good to put there they trap bacteria. I did surgery it worked for me but I was sick of experimenting

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Post  catchme on Mon May 20, 2013 8:18 pm

Alana3 wrote:We'll oils aren't good to put there they trap bacteria. I did surgery it worked for me but I was sick of experimenting

I think using some kind of oil is really important for most of us and most doctors recommend it too. It helps me at least. And I've also done surgery (2 months ago) but it's not gonna help for my generalized symptoms even though the vestibulum area is almost pain free now. But sex is still impossible and I get pain inside only by gently using dilators. Plus unprovoked pain on a daily basis Neutral

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Post  Sarah001 on Mon May 20, 2013 8:46 pm

Funnily enough when I use my dilators I use oil, it does make things feel better for me and water based lubricants were the ones responsible for my many UTIs while I used them so it's a case of what works for one may not work for another I suppose. I tried coconut oil however and that made matters worse but a little bit of vaseline with a drop of lavender oil is very soothing for me.
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Post  Alana3 on Tue May 21, 2013 2:45 am

Just saying what I was told and what worked for me. I may have something different than u girls too if you have generalized it probably would be soothing. I just didn't want to mess with any chance of bacteria. But I had provoked v so it's a different beast

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Post  catchme on Tue May 21, 2013 6:24 am

yeah, we are all different and react differently to different things. And some may have had a lot of issues with different infections and maybe then it's not so smart to use oil. So I get your point Alana Smile But those who haven't had those problems and for whom the vagina feels dry it's usually good to use some kind of oil. I use Weleda Organic Calendula Oil and I've found that it does help with the burning and rawness. Plus when you apply the oil you get used to touching and for some that has also alleviated the pain

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Post  yoginimom on Tue Oct 28, 2014 2:47 am

My gyno recommended cocnut oil, and said to use it as a lube as all the over the counter ones can give me V flare ups. Coconut oil is the only moisturiser or lube that doesn't give me a flare so far. But i'm open to trying others. Would replens and such also be in the same risk category for BV and/or yeast?


Last edited by yoginimom on Mon Nov 17, 2014 6:04 am; edited 1 time in total

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Post  Alana3 on Tue Oct 28, 2014 7:12 pm

I got off the pill and i no longer get BV or yeast. Maybe it is hormone levels for you? But I refuse to ever get back on the pill ugh! If coconut oil works for you have at it. Very Happy

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Post  JulesB on Sun Jan 18, 2015 7:36 pm

Before I use anything in my cag I fully research it. Coconut oil has anti bacterial and anti fungal properties and doesn't go rancid. As a result of this it is a good deterrent against candida (although you may need to combine it with a low sugar and low yeast diet). Other oils that can be soothing, such as olive oil, and encourage bacterial growth, but not coconut oil, in fact it is a powerful destroyer of all kinds of microbes, from viruses to bacteria to protozoa. It also has anti irritant and anti inflammatory properties. Around 50 percent of the fat in coconut oil is lauric acid, which is rarely found in nature. In fact, coconut oil contains the most lauric acid of any substance on Earth. Your body converts lauric acid into monolaurin, a monoglyceride that can actually destroy lipid-coated viruses such as HIV and herpes, influenza, measles, gram-negative bacteria, and protozoa such as giardia lamblia. Yes, it is a fat but Coconut oil is comprised of medium chain fatty acids (MCFAs) that are easily digested and readily cross cell membranes. MCFAs are immediately converted by your liver into energy rather than being stored as fat.

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Post  JulesB on Sun Jan 18, 2015 7:39 pm

I meant vag!

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