Log in

I forgot my password

Latest topics
Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Current date/time is Mon Oct 22, 2018 1:47 am

Memberlist

Find a user or modify list order

Username       Sort by       Order       

#Avatar - UsernameHumorJoin dateLast visitPostsPMWebsite
 51  Tilly19842018-08-19Sun Aug 19, 2018 2:39 am0 Send private message   
 52  raqu2018-08-17Fri Aug 17, 2018 7:05 pm0 Send private message   
 53  HedvigB2018-07-02Thu Aug 16, 2018 1:02 pm1 Send private message   
 54  Nancylee2013-09-18Wed Aug 15, 2018 12:52 pm2 Send private message  http://nancylevinmcgrath.com 
 55  ryn2072018-01-11Wed Aug 15, 2018 2:10 am20 Send private message   
 56  OptimisticHusband2018-07-31Mon Aug 13, 2018 4:38 pm4 Send private message   
 57  Mark2011-03-28Mon Aug 13, 2018 9:15 am53 Send private message   
 58  srbry2018-03-03Sun Aug 12, 2018 10:35 pm12 Send private message   
 59  Alana32012-09-25Sun Aug 12, 2018 6:19 pm1093 Send private message   
 60  donnambr2017-06-02Sat Aug 11, 2018 2:30 am1 Send private message   
 61  NicolaMc2017-10-10Wed Aug 08, 2018 12:21 pm2 Send private message   
 62  Throwawayyy2018-07-03Tue Aug 07, 2018 12:22 pm1 Send private message   
 63  Linc2018-06-04Tue Aug 07, 2018 7:03 am0 Send private message   
 64  nanci3222014-03-17Tue Aug 07, 2018 12:11 am2 Send private message   
 65  suecar20022012-09-14Mon Aug 06, 2018 7:17 pm0 Send private message   
 66  KatePerth2017-10-10Mon Aug 06, 2018 8:30 am0 Send private message   
 67 avatar Tired89Yes2016-07-19Mon Aug 06, 2018 7:35 am7 Send private message   
 68  sulizz2018-08-06Mon Aug 06, 2018 6:49 am0 Send private message   
 69  nola2182015-04-05Sun Aug 05, 2018 7:50 pm2 Send private message   
 70  Castle162016-04-16Fri Aug 03, 2018 6:09 pm10 Send private message   
 71  Anne b2018-08-03Fri Aug 03, 2018 2:08 am0 Send private message   
 72  Taylor12018-07-02Thu Aug 02, 2018 11:26 am4 Send private message   
 73  VVSSufferer2017-10-10Tue Jul 31, 2018 10:54 pm5 Send private message   
 74  Anonym2018-07-27Tue Jul 31, 2018 12:09 pm1 Send private message   
 75  anikita2018-05-30Tue Jul 31, 2018 12:45 am2 Send private message   
 76  Jo442015-02-10Mon Jul 30, 2018 9:19 pm34 Send private message   
 77  angelique20162016-08-16Mon Jul 30, 2018 11:04 am11 Send private message   
 78  HB2018-07-28Sun Jul 29, 2018 8:33 pm1 Send private message   
 79  dunkelma2018-01-02Sun Jul 29, 2018 8:26 am3 Send private message   
 80  SinclairSassy2016-08-02Sun Jul 29, 2018 6:44 am27 Send private message   
 81  Sami2018-07-18Tue Jul 24, 2018 6:13 pm0 Send private message   
 82  Adolora2018-07-17Tue Jul 24, 2018 10:59 am0 Send private message   
 83  Molly_1352018-06-24Mon Jul 23, 2018 10:27 pm5 Send private message   
 84  sweetpkm2012-08-06Fri Jul 20, 2018 1:48 am0 Send private message   
 85  TammySHall2017-07-02Thu Jul 19, 2018 1:24 pm0 Send private message   
 86  Gabbie2017-02-03Mon Jul 16, 2018 1:05 pm0 Send private message   
 87 avatar Esther2018-07-16Mon Jul 16, 2018 12:43 pm0 Send private message   
 88  sheshegabore2017-07-16Mon Jul 16, 2018 8:35 am2 Send private message   
 89  MDias2018-07-15Sun Jul 15, 2018 1:33 am1 Send private message   
 90 avatar Chinchilla2010-03-16Sat Jul 14, 2018 9:20 pm24 Send private message   
 91  Georgie 1212122018-07-14Sat Jul 14, 2018 5:34 pm1 Send private message   
 92  ConcernedYorkieHubby2018-07-12Sat Jul 14, 2018 6:18 am1 Send private message   
 93  cg19912018-07-08Thu Jul 12, 2018 11:11 am1 Send private message   
 94 avatar criv012018-06-20Mon Jul 09, 2018 7:10 pm2 Send private message   
 95  Dhalsim2018-07-04Wed Jul 04, 2018 11:10 am1 Send private message   
 96  k8k_18632018-07-02Mon Jul 02, 2018 9:22 pm0 Send private message   
 97  Aurora2018-06-14Fri Jun 29, 2018 5:24 pm2 Send private message   
 98  itburnssobad2018-06-27Fri Jun 29, 2018 1:43 am0 Send private message   
 99  Bluenuddle2018-05-28Thu Jun 28, 2018 2:25 pm2 Send private message   
 100  Chloe2018-06-27Thu Jun 28, 2018 11:49 am0 Send private message