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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 6

Very very long introduction (new and miserable)

Wed May 25, 2016 6:45 am by Haze

Okay... I set out keep this as short as possible but boy, it's hard to condense 4+ years of pain. I've got an appointment tomorrow and am losing my mind. Any advice or ideas would be seriously appreciated if anybody can bear to read through.

Female, 25 years old, living the UK.

Pain begins January 2012, about an hour into intercourse with the SO. A "honey, I'm getting sore, can we take a …

Comments: 11

What on earth is wrong with my hoo-hah?

Tue May 24, 2016 12:16 am by tensetensetense

Hi all
Will try to be brief. 40s female, 15 years married, childless by choice.  Sorry if TMI!

My entire life sex has been tight. Painful. I can't relax. Same with pelvic exams.  Tampons? Hell no.  No sexual trauma in my past and I am sex-positive, comfortable with my body.

My husband is normal size. Very patient.  The reason it has taken a back seat is that we have an otherwise nice …

Comments: 3


Fri May 20, 2016 2:22 pm by mac2011


I've just joined today. I was finally diagnosed with Vulvodynia a few months back, after I'd had it for over a year. A year and a half later I feel I am 99% cured. I just want to say that it can get better because for long time I didn't believe that.

I sympathise with anyone going through this because it's hard to discuss with anyone as it's such a sensitive topic. These forums were the …

Comments: 2

My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Mon May 23, 2016 8:28 pm by emmasmudge

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is …

Comments: 3

Did your doctor tell you that the birth control pill caused it?

Sat Apr 23, 2016 12:29 am by orangelight

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding …

Comments: 2

Hello from Northern Norway

Wed May 11, 2016 6:06 pm by Antaea

Hi, very glad that I just found this forum. Today my fears became confirmed: The burning, itching everlasting pain in all parts of the vulva and the labia major is indeed generalized vulvodynia.
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for …

Comments: 3

Hello I'm newly diagnosed too!

Sun May 01, 2016 5:54 pm by Annmaria

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the …

Comments: 3

NEW member - I want my life back

Thu Apr 21, 2016 8:35 am by LouR

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on …

Comments: 5

Current date/time is Mon May 30, 2016 10:07 pm

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