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» FB secret Vestibulodynia/vulvodynia groups
Thu Sep 22, 2016 6:19 am by LuLu81

» How do you explain to men?
Wed Sep 21, 2016 9:09 am by Mark

» Cured of Vulvodynia
Wed Sep 21, 2016 3:33 am by Suzie

» Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?
Tue Sep 20, 2016 6:58 pm by LT

» Vaginal Valium Suppositories
Tue Sep 20, 2016 1:21 pm by LT

» Intestinal permeability (leaky gut)
Tue Sep 20, 2016 6:05 am by LuLu81

» How dare he make me feel this way!
Tue Sep 20, 2016 2:17 am by emalita

» Diagnosed and Humiliated
Tue Sep 20, 2016 12:20 am by lindsey_taylor

» Surgery Update - 5 Week Post-Surgery
Sun Sep 18, 2016 10:01 pm by emalita

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 6

Diagnosed and Humiliated

Thu Sep 15, 2016 4:19 pm by Valkywrite

When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

I've never found tampons comfortable or possible to wear, so I've always …

Comments: 4

Anyone Completely Cured?

Sat Nov 28, 2015 7:55 pm by senozs1

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

Comments: 7

Did your doctor tell you that the birth control pill caused it?

Sat Apr 23, 2016 12:29 am by orangelight

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding …

Comments: 5

Urge to Urinate, Vulvadynia or something else?

Thu Aug 04, 2016 7:19 pm by CherryTree23

The last few days I've been feeling the urge to urinate constantly, even when bladder is full. It doesn't hurt to pee, don't think it's a UTI. I'm not sure if it's just the burning on vaginal opening that makes me feel like I have to pee, or I was reading more about IC? Does anyone have any input?? Thanks so much!

Comments: 2

My almost 4 year old was diagnosed today

Mon Aug 01, 2016 11:50 am by HazelsMum


This morning my daughter was diagnosed with Vulvodynia. She has been suffering pain since she was 18months and it has taken over two years to get referred to a paediatrician who diagnosed her.

Her symptoms have been intense pain, normally at night. Now she is older she can tell us about it and she says she feels like her 'front bottom's is on fire. She is SO SO distressed when happens. …

Comments: 4

Another one suffering

Thu Aug 18, 2016 6:51 pm by Ldc

Hi, I was a bit reluctant about registering and posting here.. But this forum has helped me a lot so far. I read it almost everyday since I realized my problems down there weren't caused by an infection.

Well, I think I can skip the emotional journey, as all of you know what it is like. I am 24 years old, apparently healthy, no UTIs in the past and a couple of yeast infections, but many years …

Comments: 3

Surgery Failure :(

Thu Oct 24, 2013 10:35 pm by vetinprep

I joined this forum because I've been feeling really isolated and alone while slogging through a vestibulectomy recovery-hoping to talk to some people who understand!
I'm 28-I was diagnosed with vulvodynia and provoked vestibulitis last year-although I've probably had it forever I just hadn't tried intercourse before haha.
I ended up having a vestibulectomy exactly three months ago and I can't …

Comments: 15

Vulvodynia is ruining my life

Tue Aug 16, 2016 2:33 pm by amy124

Hi everyone. I've read through a bunch of your stories and I am so glad I found this forum. I've felt so isolated in my issues but it's reassuring to find a group of people who seem to be experiencing something similar to what I have been experiencing...although I would never wish this on you all because it sucks.

I'm 18 years old and I've been struggling with all sorts of bladder/vaginal …

Comments: 3

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