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» 7 months since the diagnosis
New and need advice and help EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New and need advice and help EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New and need advice and help EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New and need advice and help EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New and need advice and help EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
New and need advice and help EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
New and need advice and help EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
New and need advice and help EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
New and need advice and help EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New and need advice and help

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New and need advice and help Empty New and need advice and help

Post  Cin124 on Wed Dec 05, 2018 3:26 pm

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole cream and a tablet to treat the yeast infection.

A month ago, it felt like my vulva was getting a bit better, but then I got my period three weeks ago, and my vulva was hurting a lot again. About one and a half week ago, I went back to the doctor, and he told me to try bepanthen ointment. Two days after I went to the doctor, I noticed that I have really raw, inflamed, and painful area on the top of my inner labia on both sides near my urethral opening. It looks like the top layer of the skin in that area has been damaged, and it's really painful to touch. Lately, when I walk, the raw area would often rub against each other, which hurt a lot, and so I've had to walk so slowly to minimise pain. It's taking me twice the time to get to places these days. Urine stings the raw area, so I lean forward when I pee to avoid the pain or at least minimise the pain. I've been too worried to have sex in the last two months since my vulva started hurting. My boyfriend has been really supportive and understanding, and he's been there for me whenever I need him. But my pain is really getting me down and making me feel really depressed. I can't sleep well, I can't walk properly, I can't sit down properly, I get worried when I need to pee, and I've been crying so much lately because of the pain. I've been referred to a gynaecologist but the next available appointment isn't for another two weeks.

Has anyone tried anything that could soothe and/or heal raw, painful and inflamed vulva skin? Also, does anyone know of anything I can take to help lessen the pain or relieve the pain?

I'd really appreciate any help or advice. Thanks!

Cin124

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New and need advice and help Empty Re: New and need advice and help

Post  kdh17 on Mon Dec 10, 2018 10:26 pm

Did you end up getting any relief? If you're still having trouble with urination, order a peri bottle like women use after childbirth. You can use this while urinating with water to help alleviate the sting, then lightly pat dry. Whenever you try a new cream/treatment, go easy on it and do a spot test to see how you will react. I hope you're feeling better!

kdh17

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New and need advice and help Empty Re: New and need advice and help

Post  Cin124 on Tue Dec 11, 2018 2:53 am

Hi kdh17,

Thanks for your reply. Leaning forward when I pee does help, but I still feel pain sometimes. Some days, the pain is less, and other days, the pain is worse. My gp recommended that I try lidocaine gel, but I'm worried that it might sting the raw area of my vulva when I apply the gel. Have you tried lidocaine gel?

Thanks again for your advice!

Cin124

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New and need advice and help Empty Some things that might help

Post  Amethyst on Tue Dec 11, 2018 11:44 am

Wear 100% cotton underwear, no tight pants or bottoms of any kind. Maybe try skirts or dresses instead. When you have your period only use tampons or pads that are entirely cotton. No dyes or anything else in them. Start taking a probiotic with no dairy derivatives in it. Talk to your gynecologist or specialist about getting a prescription for aqueous lidocaine and start applying that if you can.

Amethyst

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New and need advice and help Empty Vulvadinia

Post  Derry59 on Thu Dec 13, 2018 9:48 am

Oh, you poor love Sad I know exactly what you are going through. I had this for 2 years. The burning and the redness. I went to the doctor like you and had tests. Everything came back clear. My doctor did not really recognise the condition. I tried everything to no avail. As a desperate measure, I thought to myself...I wonder if I tried Olive Oil, its natural so cannot do any harm. I put Olive Oil down there twice a day in the morning then just before going to bed before a shower. Within 3 weeks the burning stopped. I was really amazed, to be honest. There are products on the shelf that is for burning etc, but there is always some sort of chemical in them, that they just seemed to aggravate it. Olive Oil is all natural with no chemicals or scent. Give it a try, you have nothing to lose. Can you let me know on here if it works? Good luck

Derry59

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New and need advice and help Empty Re: New and need advice and help

Post  Cin124 on Fri Feb 08, 2019 5:40 am

Hi Amethyst - Thanks so much for your reply. Which probiotic would you recommend to take?

Hi Derry59 - Thanks so much for your reply. Does the olive oil sting when you apply it? I’m so worried to apply new things to my vulva. When I went to the gyno, she prescribed me Diprosone which is a pretty strong steroid ointment. I’ve been using that and it’s made the swelling go down, but hasn’t helped much with the pain. I think I have micro tears or small cuts on the top parts of my inner labia and vestibule below my urethra. I often feel pain from those areas. Sometimes, it’s a stinging pain, and sometimes, it’s a tearing pain or a raw feeling. Did you also experience those types of pain?
Thanks again for your advice.

Cin124

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New and need advice and help Empty This may help with acute soreness etc

Post  feeling desperate on Wed Feb 13, 2019 12:42 pm

Derry 59 - I've had this condition for 18 months and been prescribed numerous creams, all of which produced horrendous burning and discomfort. Eventually I discovered that they all contain parabens, variations of liquid paraffin and/or alcohol and produce an extreme allergic reaction. I couldn't even use the soapless wash cream that the doctor prescribed. The only topical thing I've found which I can tolerate and which provides some relief is called YES vaginal moisturiser. It is organic and water based, available on the NHS and a tube lasts ages.Google it to see variations of the same product.

feeling desperate

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