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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


New and need advice and help

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New and need advice and help

Post  Cin124 on Wed Dec 05, 2018 3:26 pm

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole cream and a tablet to treat the yeast infection.

A month ago, it felt like my vulva was getting a bit better, but then I got my period three weeks ago, and my vulva was hurting a lot again. About one and a half week ago, I went back to the doctor, and he told me to try bepanthen ointment. Two days after I went to the doctor, I noticed that I have really raw, inflamed, and painful area on the top of my inner labia on both sides near my urethral opening. It looks like the top layer of the skin in that area has been damaged, and it's really painful to touch. Lately, when I walk, the raw area would often rub against each other, which hurt a lot, and so I've had to walk so slowly to minimise pain. It's taking me twice the time to get to places these days. Urine stings the raw area, so I lean forward when I pee to avoid the pain or at least minimise the pain. I've been too worried to have sex in the last two months since my vulva started hurting. My boyfriend has been really supportive and understanding, and he's been there for me whenever I need him. But my pain is really getting me down and making me feel really depressed. I can't sleep well, I can't walk properly, I can't sit down properly, I get worried when I need to pee, and I've been crying so much lately because of the pain. I've been referred to a gynaecologist but the next available appointment isn't for another two weeks.

Has anyone tried anything that could soothe and/or heal raw, painful and inflamed vulva skin? Also, does anyone know of anything I can take to help lessen the pain or relieve the pain?

I'd really appreciate any help or advice. Thanks!

Cin124

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Re: New and need advice and help

Post  kdh17 on Mon Dec 10, 2018 10:26 pm

Did you end up getting any relief? If you're still having trouble with urination, order a peri bottle like women use after childbirth. You can use this while urinating with water to help alleviate the sting, then lightly pat dry. Whenever you try a new cream/treatment, go easy on it and do a spot test to see how you will react. I hope you're feeling better!

kdh17

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Re: New and need advice and help

Post  Cin124 on Tue Dec 11, 2018 2:53 am

Hi kdh17,

Thanks for your reply. Leaning forward when I pee does help, but I still feel pain sometimes. Some days, the pain is less, and other days, the pain is worse. My gp recommended that I try lidocaine gel, but I'm worried that it might sting the raw area of my vulva when I apply the gel. Have you tried lidocaine gel?

Thanks again for your advice!

Cin124

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Some things that might help

Post  Amethyst on Tue Dec 11, 2018 11:44 am

Wear 100% cotton underwear, no tight pants or bottoms of any kind. Maybe try skirts or dresses instead. When you have your period only use tampons or pads that are entirely cotton. No dyes or anything else in them. Start taking a probiotic with no dairy derivatives in it. Talk to your gynecologist or specialist about getting a prescription for aqueous lidocaine and start applying that if you can.

Amethyst

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Vulvadinia

Post  Derry59 on Thu Dec 13, 2018 9:48 am

Oh, you poor love Sad I know exactly what you are going through. I had this for 2 years. The burning and the redness. I went to the doctor like you and had tests. Everything came back clear. My doctor did not really recognise the condition. I tried everything to no avail. As a desperate measure, I thought to myself...I wonder if I tried Olive Oil, its natural so cannot do any harm. I put Olive Oil down there twice a day in the morning then just before going to bed before a shower. Within 3 weeks the burning stopped. I was really amazed, to be honest. There are products on the shelf that is for burning etc, but there is always some sort of chemical in them, that they just seemed to aggravate it. Olive Oil is all natural with no chemicals or scent. Give it a try, you have nothing to lose. Can you let me know on here if it works? Good luck

Derry59

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Re: New and need advice and help

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