Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
In need of Advice! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
In need of Advice! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
In need of Advice! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
In need of Advice! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
In need of Advice! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
In need of Advice! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
In need of Advice! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
In need of Advice! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
In need of Advice! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


In need of Advice!

2 posters

Go down

In need of Advice! Empty In need of Advice!

Post  amandam Mon Sep 05, 2011 3:43 pm

Hey Everyone,

My name is Amanda and I am new to this site. I have been experiencing symptoms of vulvadynia for about three years now. I went to gynocologist 6 months ago who believed that a skin condition was the source of pain. She prescribled a cream for me but it didn't help at all. When I went back to see her she told me that she was going to refer me to another doctor that specialized in vulvar pain. It took so long for them finally to book an appointment with this doctor and the appointment is this upcoming thursday. Unfortunately, I am expecting to get my period this week as well and I'm pretty sure I will have it the day of the appointment. I don't have alot of experience with these kind of appointments but I am worried that since the doctor won't be able to physically examine me that that the apppoitment might be pointless and the doctor won't be able to prescribe anything that could help my pain. I have waited so long for this appointment and it totally slipped my mind that I would be getting my period that week. I am pretty sure I will have wait months to see the doctor again as he only works one day a week and is usually booked solid. I feel so discouraged right now and I guess im just wondering if it will still be worthwhile to see the doctor and if he will be able to prescribe me anything without a physical examination?

amandam

Posts : 1
Join date : 2011-09-05

Back to top Go down

In need of Advice! Empty Re: In need of Advice!

Post  Sarah001 Mon Sep 05, 2011 8:01 pm

If you use tampons just wear a tampon so they can see the bit they need to. If not they may offer to look anyway and hand you some tissue to wipe the area first, I've had both happen to me and Drs aren't the least bit concerned about it so don't worry. There isn't anything you could be prescribed at this stage to stop your period as far as I know so tampons would be the best option. Remember this is a vulvar doc, they'll definitely have encountered plenty of women on their periods before.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum