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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
New-need advice
5 posters
Page 1 of 1
New-need advice
I'm new here and newly diagnosed. What does everyone do when their period comes? I can't wear tampons and now the pads cause my burning to become extremely worse. With the last period I switched to cotton organic pads and changed them every three hours. This did not help. My little friend just arrived again this morning and I am totally panicking. Right now I folded a bounty paper towel down there. I am scared to put a pad on. Any advice or tips would be greatly appreciated.
christina1- Posts : 6
Join date : 2012-01-23
Re: New-need advice
Hello Christina, I dont have periods any more, thank God. I can not imagine how horrible it is for you. I dont even wear underwear anymore cause it hurts to much, I dont know what I would do in your position.
May I ask how old you are? If your in your later thirties and you are all done with having children then you can get an Ablation done which will stop your periods. The procedure is quick and easy and it can be done right there in your Gyno's office. So you may want to talk to your Gyno about this procedure.
I really feel for you and being terrified, I can totally understand. The other night my pain was so very severe that I wanted to go to the ER but I figured they couldnt do anything to help me. When the following night came I was absolutely terrified that the pain would be that severe again. I was having anxiety attacks, panic attacks and could hardly breath. I was just so scared. I understand your fear. I hope someone here has an answer for you. Take care and good luck.
May I ask how old you are? If your in your later thirties and you are all done with having children then you can get an Ablation done which will stop your periods. The procedure is quick and easy and it can be done right there in your Gyno's office. So you may want to talk to your Gyno about this procedure.
I really feel for you and being terrified, I can totally understand. The other night my pain was so very severe that I wanted to go to the ER but I figured they couldnt do anything to help me. When the following night came I was absolutely terrified that the pain would be that severe again. I was having anxiety attacks, panic attacks and could hardly breath. I was just so scared. I understand your fear. I hope someone here has an answer for you. Take care and good luck.
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
Re: New-need advice
I was to suggest a lady cup but since you can't use tampons that wouldn't even a suggestion for you. How about cloth pads? Ive seen many ladies go to cloth pads due to irritation.
mmorgan- Posts : 65
Join date : 2011-07-14
Age : 35
Location : Texas
Re: New-need advice
The only thing I can think of to suggest is that if you are OK to take the contraceptive pill, it is safe to take continuously i.e. without the normal 7 day break so that you just don't have periods at all.
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: New-need advice
I know it is safe to take pills continuosly but it's not recommended. Also, considering how many have posted on here about bc pills starting their symptoms, I'm wondering of the link...? Just my thoughts. I'm new to vulvodynia as well.
Why are you unable to wear tampons? The pain? Tampons are actually much easier for me to deal with than pads... the pads definately made the pain 10x worse by rubbing.
Why are you unable to wear tampons? The pain? Tampons are actually much easier for me to deal with than pads... the pads definately made the pain 10x worse by rubbing.
shortstuff- Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States
Re: New-need advice
I'm 41 and am done having kids. I have a 16 and 13 year old. I also read the pill has bothered many people with this and so I am reluctant to try that at this time. I was reading about the cloth pads online last night and may see if Whole Foods carries any in stock. As for tampons, I wore those as a teenager but they always hurt later on and they would kind of slip down and bother me. This morning I have such a heavy flow and the pad is already bothering me that I may try using one of my daughters Playtex Sport tampons. I think she has unscented. I plan on calling the store about the cloth pads this morning.
Can someone help me by seeing if they have the same symptoms as me? I'm beginning to question my diagnosis just because I am baffled by this. The burning just came on suddenly with me period this past December and hasn't left. Is that what happens? You just wake up one day with burning that never stops? I have never ever had problems below before then. This whole thing just amazes me. It is not just around my opening but all of the skin in that area especially, the left side. Sometimes my clitoris hurts just by my underwear moving around. I get red and raw. Sometimes it feel like cuts down there. The more I pee the more my skin burns and I use water on it while doing so. If I apply anything to the skin just the touch causes it to burn not always what I am applying. Just the touch. If I look and gently pull and move the skin it burns. I get a weird discharge now sometimes like cooked egg whites. It always test negative to yeast and bacteria. Is this right? Seriously? If so, will it ever end or at least get better? I would love to wear jeans again as I have been wearing the same 3 pairs of sweat since this began. Also, prior to this my husband and I had a great sex life. Now I just feel like yuck and am afraid of him touching down there. A new Gyn I saw the other day gave me Lidocaine but I just don't even feel like it now. I think I am going through denial or extreme panic that maybe this is not right or if it is right, how will I cope.
Also I would love to join the FB page. Could someone please tell me how. Thank you all so much. I feel very alone right now.
Can someone help me by seeing if they have the same symptoms as me? I'm beginning to question my diagnosis just because I am baffled by this. The burning just came on suddenly with me period this past December and hasn't left. Is that what happens? You just wake up one day with burning that never stops? I have never ever had problems below before then. This whole thing just amazes me. It is not just around my opening but all of the skin in that area especially, the left side. Sometimes my clitoris hurts just by my underwear moving around. I get red and raw. Sometimes it feel like cuts down there. The more I pee the more my skin burns and I use water on it while doing so. If I apply anything to the skin just the touch causes it to burn not always what I am applying. Just the touch. If I look and gently pull and move the skin it burns. I get a weird discharge now sometimes like cooked egg whites. It always test negative to yeast and bacteria. Is this right? Seriously? If so, will it ever end or at least get better? I would love to wear jeans again as I have been wearing the same 3 pairs of sweat since this began. Also, prior to this my husband and I had a great sex life. Now I just feel like yuck and am afraid of him touching down there. A new Gyn I saw the other day gave me Lidocaine but I just don't even feel like it now. I think I am going through denial or extreme panic that maybe this is not right or if it is right, how will I cope.
Also I would love to join the FB page. Could someone please tell me how. Thank you all so much. I feel very alone right now.
christina1- Posts : 6
Join date : 2012-01-23
Re: New-need advice
As for joining the facebook group, you pm the username Naomi on here and give her your information so she can find you. She will add you to her facebook then to the 'Secret' group. No one will know you are apart of the group on your facebook only you will.
Personally NOT continuing taking my birth control pills stopped my pain dramatically. I'm currently pregnant and after I have the baby for birth control methods I'm think about persuading my boyfriend to get a vasectomy, I will not touch hormonal birth control EVER again. But of course what causes someone elses pain won't cause another persons with this condition because everyones cause may be different we are just having the same symptoms.
Do you have a livejournal account? There is a clothpad community.
http://cloth-pads.livejournal.com/
There are also people who make their own cloth-pads and sell them online on such places as etsy.
As for what I mentioned earlier about a 'ladycup'. . . . you said tampons would slide down. Some ladies are jumping to using these cups during menstruation.
http://menstrual-cups.livejournal.com/
I actually have the same discharge as you are describing, I thought it was just due to getting on birth control but it has stuck ever since, no infection no nothing just new white discharge. Vulvodynia is just a word to describe symptoms, if you don't have vaginal infections or skin problems and you are having pain they just throw the word Vulvodynia to you. Thus is why everyone's pain is different and cause is different.
Personally NOT continuing taking my birth control pills stopped my pain dramatically. I'm currently pregnant and after I have the baby for birth control methods I'm think about persuading my boyfriend to get a vasectomy, I will not touch hormonal birth control EVER again. But of course what causes someone elses pain won't cause another persons with this condition because everyones cause may be different we are just having the same symptoms.
Do you have a livejournal account? There is a clothpad community.
http://cloth-pads.livejournal.com/
There are also people who make their own cloth-pads and sell them online on such places as etsy.
As for what I mentioned earlier about a 'ladycup'. . . . you said tampons would slide down. Some ladies are jumping to using these cups during menstruation.
http://menstrual-cups.livejournal.com/
I actually have the same discharge as you are describing, I thought it was just due to getting on birth control but it has stuck ever since, no infection no nothing just new white discharge. Vulvodynia is just a word to describe symptoms, if you don't have vaginal infections or skin problems and you are having pain they just throw the word Vulvodynia to you. Thus is why everyone's pain is different and cause is different.
mmorgan- Posts : 65
Join date : 2011-07-14
Age : 35
Location : Texas
Re: New-need advice
Yep we're definitely all different with what helps or hinders our pain, I did start the pill a few months before the pain began but in the intervening years I've been off it for very long periods of time with no difference whatsoever, so I don't think mine's hormone related at all. I've never heard that the pill's not recommended for continuous use, I can't see a problem as long as you're getting regular blood pressure checks. (All I've read is that you might get some breakthrough bleeding).
The pill probably does cause v for some people, but although a lot of women with v are on the pill, it's worth remembering that a lot of women are on the pill full stop and don't develop v.
I totally understand not wanting to make things worse, but if it's your period in particular that flares you up then it could be worth thinking about somewhere down the line if you need to. Good luck x
The pill probably does cause v for some people, but although a lot of women with v are on the pill, it's worth remembering that a lot of women are on the pill full stop and don't develop v.
I totally understand not wanting to make things worse, but if it's your period in particular that flares you up then it could be worth thinking about somewhere down the line if you need to. Good luck x
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer