Oestrogen

Well I had a really interesting doctors appointment today, I actually went in to up my dose of Ami and get Lidocaine ointment as per the dermatologist's instructions. When I handed the sheet of paper over with "vulvodynia" on it my GP looked at it and said "that doesn't tell us anything, it isn't even a proper diagnosis just a description of symptoms" which is exactly how I feel about it so I could have kissed her! She offered the Lidocaine but said the higher dose of Ami should have the same effect so it was up to me if I wanted it, I fully intended to try it but forgot to get the prescription! Ami and remembering things don't go together!

Anyway, she told me she would have suggested getting my pelvic floor tested next and was thrilled I'd already done that as it's a big, big cause of vulvar problems so I'm pretty pleased with myself for doing something constructive! I mentioned to her the physio said I ought to try oestrogen to thicken the skin and she, albeit a bit reluctantly, agreed to prescribe me some oestrogen pessaries. I'm chuffed because I wanted to try that method to see if it helps strengthen my sore skin so I collect those next week! They may not help but I always think if you don't try things you don't know and the more I try the more chance I have of recovery.

She also changed my prescription for the Ami so I could take 30-50mg a night as and when I was ready to increase my dose so I don't have to keep going back. A pretty good appointment all in all. She was very interested to hear there is a vulvar clinic a couple of hours away and when I said the GU Consultant said she'd refer me there if necessary said she was pleased I'd gone along to the GU clinic and found someone helpful instead of assuming they only deal with STI's. So onwards with the pelvic floor work, the Ami and an Oestrogen trial. I like having things to try, it keeps me hopeful.

Good work! we can't give up. it's quite apparent that we have to do our own research and advocate for ourselves. we are the experts! good luck. hope it works. I need to find a new P.T. I was driving about 30 miles to an hour appt. during my work day once a month..just too much time away from work. hopefully i find some specialists in my area.

oops, i mean once each week. this disorder really interferes w/ our free time. lots of work to try to get better and figure it all out.