meant to delete

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Hi Gemini, I was just recently diagnosed with vv after about a year. Mine is neuralgic he told me. I only have pain on the outside, not the inside and it is a constant aching, burning. He actually diagnosed me and told me it is like fibromyalgia of the vagina! I am curious what meds you have tried and if anything has worked?

I have fibro as well it came on about a year ago !! It sucks but my meds control it pretty well. I find if I get tired or run down or a cold it gets alot worse so looking after your self is of utmost importance.

Sorry forgot to add changing my diet made mine alot worse.

Hey Zarli, what kind of diet made your symptoms worse? -Cathy

I have tried about 5 different diets. Low ox diet did nothing. I tried atkins and similar to only make my pain worse. I stayed on the diets for 2 months to give them a chance to work. I don't bother any more. I am a healthy Eater and stay away from processed foods. I have brought my family up on this no processed foods and I feel its very important but in no way has any diet helped me. It actually is exhausting trying new diets because the pain is unbearable by week 2. Maybe it is something to do with my mind who knows ?

Hi Zarli, I have been trying the low oxalate diet for about a week now and haven't noticed any change. You are the one I have found with the closest symptoms to what I am having. Gonna maybe give it another week and see what happens. I was able to get a referral to another Gyn who has experience with vulvodynia and vv and have an appt mid July. It is 4 hours away but I would travel anywhere for relief of the crap!! Hope you're doing good - Cathy