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    » It feels like I’m going to have pain forever
    Mon Jul 16, 2018 12:11 pm by mhhh

    » It feels like I’m going to have pain forever
    Mon Jul 16, 2018 10:01 am by dunkelma

    » It feels like I’m going to have pain forever
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    » From a concerned husband
    Fri Jul 13, 2018 6:02 pm by emalita

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 9

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 0

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 1

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 5

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0


    fibromyalgia and vulvodynia

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    fibromyalgia and vulvodynia

    Post  Gemini23 on Tue Jun 10, 2014 6:24 am

    Does anyone here have fibromyalgia AND vulvodynia? Just curious because mine seem to be very related. I feel as though my vulvodynia is a symptom of my fibro. Has making changes to your diet helped any of you? I am in the beginning stage of making those dietery changes. tried the low oxalate diet already and with no luck. actually felt like it made my fatigue worse. Now I am just trying to incorporate more veggies and fruit into my diet instead.

    Gemini23

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    Vulvodynia and fibromyalgia

    Post  Caropes on Tue Jun 10, 2014 11:48 am

    Hi Gemini, I was just recently diagnosed with vv after about a year. Mine is neuralgic he told me. I only have pain on the outside, not the inside and it is a constant aching, burning. He actually diagnosed me and told me it is like fibromyalgia of the vagina! I am curious what meds you have tried and if anything has worked?

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:06 am

    I have fibro as well it came on about a year ago !! It sucks but my meds control it pretty well. I find if I get tired or run down or a cold it gets alot worse so looking after your self is of utmost importance.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:09 am

    Sorry forgot to add changing my diet made mine alot worse.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Wed Jun 11, 2014 12:26 pm

    Hey Zarli, what kind of diet made your symptoms worse? -Cathy

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 10:24 pm

    I have tried about 5 different diets. Low ox diet did nothing. I tried atkins and similar to only make my pain worse. I stayed on the diets for 2 months to give them a chance to work. I don't bother any more. I am a healthy Eater and stay away from processed foods. I have brought my family up on this no processed foods and I feel its very important but in no way has any diet helped me. It actually is exhausting trying new diets because the pain is unbearable by week 2. Maybe it is something to do with my mind who knows ? Smile

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Thu Jun 12, 2014 2:19 am

    Hi Zarli, I have been trying the low oxalate diet for about a week now and haven't noticed any change. You are the one I have found with the closest symptoms to what I am having. Gonna maybe give it another week and see what happens. I was able to get a referral to another Gyn who has experience with vulvodynia and vv and have an appt mid July. It is 4 hours away but I would travel anywhere for relief of the crap!! Hope you're doing good - Cathy

    Caropes

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    Re: fibromyalgia and vulvodynia

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