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    » I think I've developed vulvodynia?? Please help!
    Yesterday at 9:10 pm by Necromeowncer

    » MY STORY & Vestibulectomy 2/8/17
    Yesterday at 12:38 pm by Mel T

    » New w/ Secondary Provoked Vestibuldynia
    Sun Oct 22, 2017 3:47 am by Birdy

    » Newly diagnosed
    Sat Oct 21, 2017 9:50 pm by sarisbaris

    » Prednisone Injections?
    Wed Oct 18, 2017 5:07 am by sarisbaris

    » Has anyone had continued success with gabapentin or Botox injections?
    Wed Oct 18, 2017 4:47 am by sarisbaris

    » Recent "Poke" Pain - So Confused/Losing My Mind
    Wed Oct 18, 2017 2:37 am by sarisbaris

    » What is Vulvodynia?
    Tue Oct 17, 2017 11:57 pm by Jenjen

    » CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
    Mon Oct 16, 2017 2:22 am by Sagewoman

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1


    fibromyalgia and vulvodynia

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    fibromyalgia and vulvodynia

    Post  Gemini23 on Tue Jun 10, 2014 6:24 am

    Does anyone here have fibromyalgia AND vulvodynia? Just curious because mine seem to be very related. I feel as though my vulvodynia is a symptom of my fibro. Has making changes to your diet helped any of you? I am in the beginning stage of making those dietery changes. tried the low oxalate diet already and with no luck. actually felt like it made my fatigue worse. Now I am just trying to incorporate more veggies and fruit into my diet instead.

    Gemini23

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    Vulvodynia and fibromyalgia

    Post  Caropes on Tue Jun 10, 2014 11:48 am

    Hi Gemini, I was just recently diagnosed with vv after about a year. Mine is neuralgic he told me. I only have pain on the outside, not the inside and it is a constant aching, burning. He actually diagnosed me and told me it is like fibromyalgia of the vagina! I am curious what meds you have tried and if anything has worked?

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:06 am

    I have fibro as well it came on about a year ago !! It sucks but my meds control it pretty well. I find if I get tired or run down or a cold it gets alot worse so looking after your self is of utmost importance.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:09 am

    Sorry forgot to add changing my diet made mine alot worse.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Wed Jun 11, 2014 12:26 pm

    Hey Zarli, what kind of diet made your symptoms worse? -Cathy

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 10:24 pm

    I have tried about 5 different diets. Low ox diet did nothing. I tried atkins and similar to only make my pain worse. I stayed on the diets for 2 months to give them a chance to work. I don't bother any more. I am a healthy Eater and stay away from processed foods. I have brought my family up on this no processed foods and I feel its very important but in no way has any diet helped me. It actually is exhausting trying new diets because the pain is unbearable by week 2. Maybe it is something to do with my mind who knows ? Smile

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Thu Jun 12, 2014 2:19 am

    Hi Zarli, I have been trying the low oxalate diet for about a week now and haven't noticed any change. You are the one I have found with the closest symptoms to what I am having. Gonna maybe give it another week and see what happens. I was able to get a referral to another Gyn who has experience with vulvodynia and vv and have an appt mid July. It is 4 hours away but I would travel anywhere for relief of the crap!! Hope you're doing good - Cathy

    Caropes

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    Re: fibromyalgia and vulvodynia

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