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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Yesterday at 1:29 am by ryn207

    » So frustrating!!
    Yesterday at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Yesterday at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Mon Jan 15, 2018 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    fibromyalgia and vulvodynia

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    fibromyalgia and vulvodynia

    Post  Gemini23 on Tue Jun 10, 2014 6:24 am

    Does anyone here have fibromyalgia AND vulvodynia? Just curious because mine seem to be very related. I feel as though my vulvodynia is a symptom of my fibro. Has making changes to your diet helped any of you? I am in the beginning stage of making those dietery changes. tried the low oxalate diet already and with no luck. actually felt like it made my fatigue worse. Now I am just trying to incorporate more veggies and fruit into my diet instead.

    Gemini23

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    Vulvodynia and fibromyalgia

    Post  Caropes on Tue Jun 10, 2014 11:48 am

    Hi Gemini, I was just recently diagnosed with vv after about a year. Mine is neuralgic he told me. I only have pain on the outside, not the inside and it is a constant aching, burning. He actually diagnosed me and told me it is like fibromyalgia of the vagina! I am curious what meds you have tried and if anything has worked?

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:06 am

    I have fibro as well it came on about a year ago !! It sucks but my meds control it pretty well. I find if I get tired or run down or a cold it gets alot worse so looking after your self is of utmost importance.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 3:09 am

    Sorry forgot to add changing my diet made mine alot worse.

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Wed Jun 11, 2014 12:26 pm

    Hey Zarli, what kind of diet made your symptoms worse? -Cathy

    Caropes

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    Re: fibromyalgia and vulvodynia

    Post  zarli on Wed Jun 11, 2014 10:24 pm

    I have tried about 5 different diets. Low ox diet did nothing. I tried atkins and similar to only make my pain worse. I stayed on the diets for 2 months to give them a chance to work. I don't bother any more. I am a healthy Eater and stay away from processed foods. I have brought my family up on this no processed foods and I feel its very important but in no way has any diet helped me. It actually is exhausting trying new diets because the pain is unbearable by week 2. Maybe it is something to do with my mind who knows ? Smile

    zarli

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    Re: fibromyalgia and vulvodynia

    Post  Caropes on Thu Jun 12, 2014 2:19 am

    Hi Zarli, I have been trying the low oxalate diet for about a week now and haven't noticed any change. You are the one I have found with the closest symptoms to what I am having. Gonna maybe give it another week and see what happens. I was able to get a referral to another Gyn who has experience with vulvodynia and vv and have an appt mid July. It is 4 hours away but I would travel anywhere for relief of the crap!! Hope you're doing good - Cathy

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    Re: fibromyalgia and vulvodynia

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