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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


fibromyalgia and vulvodynia

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fibromyalgia and vulvodynia

Post  Gemini23 on Tue Jun 10, 2014 6:24 am

Does anyone here have fibromyalgia AND vulvodynia? Just curious because mine seem to be very related. I feel as though my vulvodynia is a symptom of my fibro. Has making changes to your diet helped any of you? I am in the beginning stage of making those dietery changes. tried the low oxalate diet already and with no luck. actually felt like it made my fatigue worse. Now I am just trying to incorporate more veggies and fruit into my diet instead.

Gemini23

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Vulvodynia and fibromyalgia

Post  Caropes on Tue Jun 10, 2014 11:48 am

Hi Gemini, I was just recently diagnosed with vv after about a year. Mine is neuralgic he told me. I only have pain on the outside, not the inside and it is a constant aching, burning. He actually diagnosed me and told me it is like fibromyalgia of the vagina! I am curious what meds you have tried and if anything has worked?

Caropes

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Re: fibromyalgia and vulvodynia

Post  zarli on Wed Jun 11, 2014 3:06 am

I have fibro as well it came on about a year ago !! It sucks but my meds control it pretty well. I find if I get tired or run down or a cold it gets alot worse so looking after your self is of utmost importance.

zarli

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Re: fibromyalgia and vulvodynia

Post  zarli on Wed Jun 11, 2014 3:09 am

Sorry forgot to add changing my diet made mine alot worse.

zarli

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Re: fibromyalgia and vulvodynia

Post  Caropes on Wed Jun 11, 2014 12:26 pm

Hey Zarli, what kind of diet made your symptoms worse? -Cathy

Caropes

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Re: fibromyalgia and vulvodynia

Post  zarli on Wed Jun 11, 2014 10:24 pm

I have tried about 5 different diets. Low ox diet did nothing. I tried atkins and similar to only make my pain worse. I stayed on the diets for 2 months to give them a chance to work. I don't bother any more. I am a healthy Eater and stay away from processed foods. I have brought my family up on this no processed foods and I feel its very important but in no way has any diet helped me. It actually is exhausting trying new diets because the pain is unbearable by week 2. Maybe it is something to do with my mind who knows ? Smile

zarli

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Re: fibromyalgia and vulvodynia

Post  Caropes on Thu Jun 12, 2014 2:19 am

Hi Zarli, I have been trying the low oxalate diet for about a week now and haven't noticed any change. You are the one I have found with the closest symptoms to what I am having. Gonna maybe give it another week and see what happens. I was able to get a referral to another Gyn who has experience with vulvodynia and vv and have an appt mid July. It is 4 hours away but I would travel anywhere for relief of the crap!! Hope you're doing good - Cathy

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Re: fibromyalgia and vulvodynia

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