Vulvodynia Support
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» Hope to all my suffering ladies
Please help.. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Please help.. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Please help.. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Please help.. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Please help.. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Please help.. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Please help.. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Please help.. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Please help.. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  Guest Fri Oct 02, 2015 4:05 pm

Hello guys, I really hope someone can answer me. I have been using Lyrica for the last two months and haven't seen any improvement. Is this normal? I have given up. I do not believe that I will ever will painless again. Is it possible to be entirely cured? I have unprovoked vestibulitis.

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Post  PainBlogger Fri Oct 02, 2015 4:28 pm

I think it may depend what dose you are on in order to answer that question. Can you maybe post what dose you are on?

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  PainBlogger Fri Oct 02, 2015 4:38 pm

OK, so I see from another post you say you are on 75mg morning and 150mg evening? That's a medium size dose but some doctors will prescribe larger doses than that (of between 300mg and I've even heard of 600mg per day). Side effects are generally more common at higher doses though. But, if you can tolerate the drug ok, you could maybe discuss with your doctor about trying a higher dose? Otherwise there are other drugs - from the antidepressant group of drugs - that are prescribed for nerve pain, at least they are in the UK, like amitriptyline, nortriptyline, imipramine (all tricyclic antidepressants) and duloxetine (a newer SSNRI-type drug). There's also gabapentin (similar to pregabalin). So try not to lose hope. I know it is difficult.

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Post  sailor_moon Fri Oct 02, 2015 8:12 pm

I was on it for 6 months and it did absolutely nothing, when I was on it my doctor said it can take up to 6 months to fully kick in and for you to see an effect.
sailor_moon
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Post  WaahwaahUK Sat Oct 03, 2015 10:40 am

I haven't been on Lyrica, but I do know from having read some success stories with meds on here that it really can take a few months to work and get on the right dose etc. So with that in mind I would say, stick with it if you find you are ok side effect wise etc, but if not, speak to your doctor about another type of medication. There's several that have worked for others so don't give up. I know it's incredibly hard to, but try and stay as positive as you can. I'm on my second month I think now of nortriptyline and I keep telling myself to try and relax because tension is only going to aggravate any pain you're in. Believe me, I know that is at times an impossible task, but just remind yourself when you can. And be kind to yourself.

WaahwaahUK

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Post  WaahwaahUK Sat Oct 03, 2015 10:44 am

To add, this condition is so often complicated I think by additional factors like stress, tension, nerves misfiring after infections, pelvic issues etc that looking at yourself as a whole is in my mind a good thing. Taking the time to really look at what is contributing to your pain because it can be more than one single cause. And above all, don't give up hope. There are people who have got to the other side of this. That's what I keep telling myself. I really think its about finding the treatments and options that suit you personally and of course that takes time and energy.

WaahwaahUK

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Post  Guest Sat Oct 03, 2015 11:56 am

Thank you so much for your answers. I hope we all get better, it means a lot to talk to people who understand my pain. I'm in a country where people know so little about this condition.

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