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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Accupuncture? Anyone tried it?
+3
Sebby (Admin)
Sarah001
saskatownv
7 posters
Page 1 of 1
Accupuncture? Anyone tried it?
saskatownv Wed Feb 16, 2011 5:27 am
Just wondering if anyone has had any experience with it?
saskatownv- Posts : 15
Join date : 2011-02-07
Re: Accupuncture? Anyone tried it?
Sarah001 Wed Feb 16, 2011 8:28 pm
The only experience I have had with acupuncture is it hurt me like hell! I had it for back problems before I got V and I felt every needle like a needle and it was awful. Most people don't feel them much though I suspect it's my Fibromyalgia that made that happen. It didn't help my back pain either but I haven't had it specifically for V so don't know about that. We have a member who was about to try it a while ago but never posted back to say if it helped.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Accupuncture? Anyone tried it?
Sebby (Admin) Wed Feb 16, 2011 8:48 pm
I havent yet tried it but it is something Im deff going to try. I found a clinic near me and am gonna book a day off work and get it done then a massage
Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK -
Re: Accupuncture? Anyone tried it?
saskatownv Wed Feb 16, 2011 8:54 pm
ooooooooo nice Sebby. I tried it once, but it didnt work for me but it was only with one girl who wasnt very experienced. It did calm me though, so it did do some good.
saskatownv- Posts : 15
Join date : 2011-02-07
Re: Accupuncture? Anyone tried it?
Mouse Wed Feb 16, 2011 11:52 pm
The blog that Sebby posted the other day had a story on acupuncture. The woman said it didn't help with her pain (one session) BUT she had the best sleep of her life!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Accupuncture? Anyone tried it?
jules Thu Feb 17, 2011 4:58 am
I've had acupuncture in the past for my back. It hurt like hell and i don't have fibro. i have read studies that it can be helpful for some women w/ vulvodynia.
jules- Posts : 225
Join date : 2010-03-17
Re: Accupuncture? Anyone tried it?
Sebby (Admin) Thu Feb 17, 2011 7:53 pm
Im guessing you would have to have a few sessions before you knew it if worked? I dont mind getting the good sleep though!
Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK -
Re: Accupuncture? Anyone tried it?
Sarah001 Thu Feb 17, 2011 9:58 pm
God I'm not going through that again, agony in some areas! 
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
acupunture
mrsbods Mon Feb 21, 2011 3:29 pm
I am currently in acupuncture for vulvodynia, i have been 3 times so far. I know that it isnt a cure but have heard positive news. I can't say for sure that it is helping thus far but I am willing to try anything at this point. It is expensive and insurance doesnt cover it. It may take more than a few weeks to feel the full effect. I do know my pain scale has diminished. I am willing to give this a try for 6-8 weeks. She is wonderful and has worked with women who have Vulvodynia previously. She also is working on my sinuses and other pains that I have .
mrsbods- Posts : 1
Join date : 2011-02-21
Re: Accupuncture? Anyone tried it?
alanasomething Mon Feb 21, 2011 6:54 pm
Hey! I had a LOT of sessions with accupuncture, is spent maybe £1000 on it, and got no results. I also tried hypnotherapy, that was really good for my anger, but not my pain! Accupuncture is good for stress, I found I wasn't as anxious but it wasn't worth the £40 per session for me! xx
alanasomething- Posts : 16
Join date : 2011-02-17
Age : 32
Location : Scotland
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» How I cured my Vulvodynia!
» 7 months since the diagnosis
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