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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Starting to loose any faith that i have
4 posters
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Starting to loose any faith that i have
Hi, i just wanted to let this off my chest i grew up in a catholic home so it has been instilled in me to pray and have faith that god can heal you if you just believe so that's all i have been doing and i have had this problem science i was twenty i'm now thirty three and still the problem isn't any better.I am starting to doubt that god doesn't even exists because why would he allow anyone to go through life with this much pain.Before i knew that there were many other's with the same thing that i have i used to think that mybe i was being punished maybe i just wasn't a good enough person . I am starting to think that the whole believing in god thing is a load of crap !Maybe my life is just cursed.
viollette- Posts : 11
Join date : 2011-08-21
Age : 46
Location : Saginaw Mi.
Re: Starting to loose any faith that i have
I'm not religious so I don't get the whole praying to get better and nothing else nor can I tell you if believing in god is a load of crap but it can't hurt to pray and look into treatments, it's a very real physical problem with various causes and options and not a punishment for anything, plenty of women who do only good things get it and other health issues and plenty of women who do plenty of bad don't get anything wrong with them. In my opinion health isn't a religious matter but if you have a faith praying can't hurt.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
faith
Hi you know I am a Christian. I fully believe in the power of prayer. Prayer does help, it has helped me. I have even witnessed people being healed. I am also starting to feel that I too am receiving healing. I'm finally starting to feel better after almost a year of dealing with this. Keep praying- God hears you. and when in doubt attend your church, God will answer you and your questions when you really focus- it may take time... don't expect a miracle over night... but miracles can and do happen.
Melissa777- Posts : 55
Join date : 2011-07-10
Re: Starting to loose any faith that i have
I truly believe that all prayer is answered, but sometimes the answer is not the one we want. I do not believe any of us are being punished. I personally believe that God is only good, and that God suffers and hurts with us as we suffer and hurt. I also believe God is whispering comfort and inspiration in your heart right now. I believe God is rooting for you to develop strength from your pain, to find doctors and people to help you, to learn to take care of your body to the best of your ability and to love it as it is. I believe prayer and meditation can only help you, and that in the fullness of time you will have the answer you seek and you will be at peace with that answer. This may be full physical, emotional and spiritual healing. This may be partial physical healing and full spiritual healing. Whatever it is, I believe you are being led to your greatest good and deepest healing.
I have had vulvar pain for almost 30 years. For about 6 years it was so severe it was disabling. For about ten of those years it was very painful, but I kept living and trying to enjoy what I could in life. For the other 14 years, it has been okay. I have pain with intercourse, but I live a full, normal life otherwise with very little day-to-day pain. For awhile I was very angry about how long I suffered and that I have never had pleasurable intercourse. I also felt that somehow it was my fault. I have gone through many crisis of faith. But I now believe my prayers have been answered and are still being answered. I have grown closer to God. I have learned to be assertive and strong. I have learned to care for my body and be it's number one advocate. I have come to believe my body is a temple and God's temple is not flawed, but perfect in this expression. This growth in faith and belief has been hard-won, with lots of prayer, meditation and spiritual study (I grew up in the Disciples of Christ Church--a common protestant denomination in the Mid-west United States, and have since switched to Unity because it was a better fit for my beliefs. I would now describe myself as a Christian mystic, although I find comfort in many mystical traditions.) I know you are surrounded by God's love in all that you do. God loves you and wants only good for you. Open your heart to God and listen for guidance. I truly believe if you keep following the guidance God places in your heart during your prayer and meditation times that you will be led to an answer to your prayers.
Deepest and warmest blessings,
Heidi
I have had vulvar pain for almost 30 years. For about 6 years it was so severe it was disabling. For about ten of those years it was very painful, but I kept living and trying to enjoy what I could in life. For the other 14 years, it has been okay. I have pain with intercourse, but I live a full, normal life otherwise with very little day-to-day pain. For awhile I was very angry about how long I suffered and that I have never had pleasurable intercourse. I also felt that somehow it was my fault. I have gone through many crisis of faith. But I now believe my prayers have been answered and are still being answered. I have grown closer to God. I have learned to be assertive and strong. I have learned to care for my body and be it's number one advocate. I have come to believe my body is a temple and God's temple is not flawed, but perfect in this expression. This growth in faith and belief has been hard-won, with lots of prayer, meditation and spiritual study (I grew up in the Disciples of Christ Church--a common protestant denomination in the Mid-west United States, and have since switched to Unity because it was a better fit for my beliefs. I would now describe myself as a Christian mystic, although I find comfort in many mystical traditions.) I know you are surrounded by God's love in all that you do. God loves you and wants only good for you. Open your heart to God and listen for guidance. I truly believe if you keep following the guidance God places in your heart during your prayer and meditation times that you will be led to an answer to your prayers.
Deepest and warmest blessings,
Heidi
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer