Vulvodynia Support
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» Hope to all my suffering ladies
Not mad, just miserable. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Not mad, just miserable. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Not mad, just miserable. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Not mad, just miserable. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Not mad, just miserable. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Not mad, just miserable. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Not mad, just miserable. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Not mad, just miserable. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Not mad, just miserable. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Not mad, just miserable.

3 posters

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Not mad, just miserable. Empty Not mad, just miserable.

Post  mrs.optimistic Wed May 27, 2015 6:49 am

I can't be optimistic. I feel like I'm building myself up to let myself down again. I'm so tired. I'm tired of trying, having hope. I keep asking myself why. How? I'm letting this take control of my life. Happiness is slipping further away from me. I feel invisible, my words don't mean a thing. I don't want to be touched, or loved. I can't make love. Will this ruin everything? Everything we've worked so hard for? I've battled other medical conditions. But this? This is just hell. Its an unrecognized, belittled, curse. I want to sob forever and drown in my tears, like crying will make the pain go away. Another bacterial infection, who knew? Nothing. Nothing helps. Screw optimism. It's such a waste.

mrs.optimistic

Posts : 33
Join date : 2015-05-14

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Not mad, just miserable. Empty Re: Not mad, just miserable.

Post  mikan92 Thu May 28, 2015 11:30 am

I feel your pain. I also have moments when I just want to curl up and sob and not wanting to deal with any of this, I wish I can wake up one day realising all this was just a nightmare. I'm also scared of having hopes sometimes, because when the hope is high I'll fall harder when the it fails. But look at all the ladies in this forum, many of them have battled this horrible thing for so many years (some for their whole life)and they did not give up. If they can do it, why can't we? There are so many things we have not tried and I think it'll be too early to say nothing works.
I think it's okay to have down moments but we need to pull ourselves tgt after that. I tell myself everyday: don't think about what you have lost, think about what you have. I rmb this quote from the movieThe Theory of Everything 'However bad life may seem, while there is life, there's hope". Please don't give up no matter what! Optimism is super hard and it seems useless, but being pessimistic definitely won't bring us anywhere.

mikan92

Posts : 36
Join date : 2015-04-22

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Not mad, just miserable. Empty I Agree!

Post  Sincere1738 Sun May 31, 2015 6:10 pm

yes living with this is a curse. Thats exactly what it is. I really do try to thank god for what I do have. Which is so much compared to this. Honestly I bet there are men and women who have life in prision, lost a child, or people living in fear everyday in other countries wish they could trade places with us if given a chance. So I really count my blessing and a don't add up my problems( Joel Olsteen) Wink
We just have to take it day by day, and PRAY. Besides all of the remedies and treatments those are most important. Stay strong. I miss my sex life dearly, it is apart of being a woman and not being able to have sex when I want is devastating. This motivates me even more to find what will work for me. When God is ready. Not when I am.

Sincere1738

Posts : 2
Join date : 2015-05-31

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