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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Is this what I have?

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Is this what I have?

Post  Daisybun on Sat Oct 06, 2012 4:53 pm

Ok - about 6 years ago after a particularly stressful time I began have frequent urination problems, which caused a lot of burning and stinging. I had a cystoscopy and was given meds for the frequency. I used the calendula cream, acidophilus and calcium citrate, also went on citalopram to help as I began to suffer with panic attacks.
Anyway after a few months everything settled and I went back to normal. Until I had a UTI at the beginning of September. I was given two lots of antibiotics, then treated for thrush. The irritation is back - it feels itchy and just generally uncomfortable. Have been told to use vagisil have used vaseline which kind of helps. Last time i used aqueous cream too.
I do a lot of driving and sitting for my job - some days are better than others - when I don't focus on it seems fine when I panic I feel worse.
I think have had flare ups before when I was younger - they always passed after a few weeks or couple of months.
Am beginning to have panic attacks again and feel like i don't want to go out - not good I have a job that requires lots of driving and sitting. I don't have pain as such just irritation, and at times a kind of numbness with mild pins and needles - then an itchy sensation.
Hope that it will pass. I am back on the frequency meds and have increased citalopram - just afraid that I will slip back. Also fearful that i will have to live with this forever.


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Re: Is this what I have?

Post  Loulou on Sun Oct 07, 2012 7:53 pm

Hi Daisybun

Just a thought, have you considered or been checked out for a trapped or compressed nerve(s) or muscular problems in your pelvis and/or back?? Your symptoms sound very similar and that might be the cause for you? Especially if you do a lot of sitting and driving - your muscles adjust to that scrunched posture and then when you do something else it can cause problems. Problems with the pelvic floor muscles can also cause urinary problems.


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Re: Is this what I have?

Post  Daisybun on Mon Oct 08, 2012 4:36 pm

Thanks Loulou
I am so stressed and my muscles are not relaxed at all - feel better overnight as i have no pressure and I relax.
I am sure this will pass it has before just such a misreable feeling x confused


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Re: Is this what I have?

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