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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Is this what I have?
2 posters
Page 1 of 1
Is this what I have?
Ok - about 6 years ago after a particularly stressful time I began have frequent urination problems, which caused a lot of burning and stinging. I had a cystoscopy and was given meds for the frequency. I used the calendula cream, acidophilus and calcium citrate, also went on citalopram to help as I began to suffer with panic attacks.
Anyway after a few months everything settled and I went back to normal. Until I had a UTI at the beginning of September. I was given two lots of antibiotics, then treated for thrush. The irritation is back - it feels itchy and just generally uncomfortable. Have been told to use vagisil have used vaseline which kind of helps. Last time i used aqueous cream too.
I do a lot of driving and sitting for my job - some days are better than others - when I don't focus on it seems fine when I panic I feel worse.
I think have had flare ups before when I was younger - they always passed after a few weeks or couple of months.
Am beginning to have panic attacks again and feel like i don't want to go out - not good I have a job that requires lots of driving and sitting. I don't have pain as such just irritation, and at times a kind of numbness with mild pins and needles - then an itchy sensation.
Hope that it will pass. I am back on the frequency meds and have increased citalopram - just afraid that I will slip back. Also fearful that i will have to live with this forever.
Anyway after a few months everything settled and I went back to normal. Until I had a UTI at the beginning of September. I was given two lots of antibiotics, then treated for thrush. The irritation is back - it feels itchy and just generally uncomfortable. Have been told to use vagisil have used vaseline which kind of helps. Last time i used aqueous cream too.
I do a lot of driving and sitting for my job - some days are better than others - when I don't focus on it seems fine when I panic I feel worse.
I think have had flare ups before when I was younger - they always passed after a few weeks or couple of months.
Am beginning to have panic attacks again and feel like i don't want to go out - not good I have a job that requires lots of driving and sitting. I don't have pain as such just irritation, and at times a kind of numbness with mild pins and needles - then an itchy sensation.
Hope that it will pass. I am back on the frequency meds and have increased citalopram - just afraid that I will slip back. Also fearful that i will have to live with this forever.
Daisybun- Posts : 2
Join date : 2012-10-06
Re: Is this what I have?
Hi Daisybun
Just a thought, have you considered or been checked out for a trapped or compressed nerve(s) or muscular problems in your pelvis and/or back?? Your symptoms sound very similar and that might be the cause for you? Especially if you do a lot of sitting and driving - your muscles adjust to that scrunched posture and then when you do something else it can cause problems. Problems with the pelvic floor muscles can also cause urinary problems.
Just a thought, have you considered or been checked out for a trapped or compressed nerve(s) or muscular problems in your pelvis and/or back?? Your symptoms sound very similar and that might be the cause for you? Especially if you do a lot of sitting and driving - your muscles adjust to that scrunched posture and then when you do something else it can cause problems. Problems with the pelvic floor muscles can also cause urinary problems.
Loulou- Posts : 124
Join date : 2012-01-18
Re: Is this what I have?
Thanks Loulou
I am so stressed and my muscles are not relaxed at all - feel better overnight as i have no pressure and I relax.
I am sure this will pass it has before just such a misreable feeling x
I am so stressed and my muscles are not relaxed at all - feel better overnight as i have no pressure and I relax.
I am sure this will pass it has before just such a misreable feeling x
Daisybun- Posts : 2
Join date : 2012-10-06
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer