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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Is this what I have?

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Is this what I have?

Post  Daisybun on Sat Oct 06, 2012 4:53 pm

Ok - about 6 years ago after a particularly stressful time I began have frequent urination problems, which caused a lot of burning and stinging. I had a cystoscopy and was given meds for the frequency. I used the calendula cream, acidophilus and calcium citrate, also went on citalopram to help as I began to suffer with panic attacks.
Anyway after a few months everything settled and I went back to normal. Until I had a UTI at the beginning of September. I was given two lots of antibiotics, then treated for thrush. The irritation is back - it feels itchy and just generally uncomfortable. Have been told to use vagisil have used vaseline which kind of helps. Last time i used aqueous cream too.
I do a lot of driving and sitting for my job - some days are better than others - when I don't focus on it seems fine when I panic I feel worse.
I think have had flare ups before when I was younger - they always passed after a few weeks or couple of months.
Am beginning to have panic attacks again and feel like i don't want to go out - not good I have a job that requires lots of driving and sitting. I don't have pain as such just irritation, and at times a kind of numbness with mild pins and needles - then an itchy sensation.
Hope that it will pass. I am back on the frequency meds and have increased citalopram - just afraid that I will slip back. Also fearful that i will have to live with this forever.

Daisybun

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Re: Is this what I have?

Post  Loulou on Sun Oct 07, 2012 7:53 pm

Hi Daisybun

Just a thought, have you considered or been checked out for a trapped or compressed nerve(s) or muscular problems in your pelvis and/or back?? Your symptoms sound very similar and that might be the cause for you? Especially if you do a lot of sitting and driving - your muscles adjust to that scrunched posture and then when you do something else it can cause problems. Problems with the pelvic floor muscles can also cause urinary problems.

Loulou

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Re: Is this what I have?

Post  Daisybun on Mon Oct 08, 2012 4:36 pm

Thanks Loulou
I am so stressed and my muscles are not relaxed at all - feel better overnight as i have no pressure and I relax.
I am sure this will pass it has before just such a misreable feeling x confused

Daisybun

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Re: Is this what I have?

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