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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Is this what I have?

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Is this what I have?

Post  Daisybun on Sat Oct 06, 2012 4:53 pm

Ok - about 6 years ago after a particularly stressful time I began have frequent urination problems, which caused a lot of burning and stinging. I had a cystoscopy and was given meds for the frequency. I used the calendula cream, acidophilus and calcium citrate, also went on citalopram to help as I began to suffer with panic attacks.
Anyway after a few months everything settled and I went back to normal. Until I had a UTI at the beginning of September. I was given two lots of antibiotics, then treated for thrush. The irritation is back - it feels itchy and just generally uncomfortable. Have been told to use vagisil have used vaseline which kind of helps. Last time i used aqueous cream too.
I do a lot of driving and sitting for my job - some days are better than others - when I don't focus on it seems fine when I panic I feel worse.
I think have had flare ups before when I was younger - they always passed after a few weeks or couple of months.
Am beginning to have panic attacks again and feel like i don't want to go out - not good I have a job that requires lots of driving and sitting. I don't have pain as such just irritation, and at times a kind of numbness with mild pins and needles - then an itchy sensation.
Hope that it will pass. I am back on the frequency meds and have increased citalopram - just afraid that I will slip back. Also fearful that i will have to live with this forever.

Daisybun

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Re: Is this what I have?

Post  Loulou on Sun Oct 07, 2012 7:53 pm

Hi Daisybun

Just a thought, have you considered or been checked out for a trapped or compressed nerve(s) or muscular problems in your pelvis and/or back?? Your symptoms sound very similar and that might be the cause for you? Especially if you do a lot of sitting and driving - your muscles adjust to that scrunched posture and then when you do something else it can cause problems. Problems with the pelvic floor muscles can also cause urinary problems.

Loulou

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Re: Is this what I have?

Post  Daisybun on Mon Oct 08, 2012 4:36 pm

Thanks Loulou
I am so stressed and my muscles are not relaxed at all - feel better overnight as i have no pressure and I relax.
I am sure this will pass it has before just such a misreable feeling x confused

Daisybun

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Re: Is this what I have?

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